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Järkestig Berggren, UlrikaORCID iD iconorcid.org/0000-0002-1325-9965
Publications (10 of 25) Show all publications
Järkestig Berggren, U., Melin Emilsson, U. & Bergman, A.-S. (2019). Strategies of austerity used in needs assessments for personal assistance - changing Swedish social policy for persons with disabilities. European Journal of Social Work
Open this publication in new window or tab >>Strategies of austerity used in needs assessments for personal assistance - changing Swedish social policy for persons with disabilities
2019 (English)In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664Article in journal (Refereed) Epub ahead of print
Abstract [en]

The austerity measures in social welfare implemented by street-level bureaucrats in their practice are changing the direction of social policy. This article examines the strategies used by public officials in implementing austerity measures in needs assessment for personal assistance in Sweden. The article is based on a document study with N = 100 records of needs assessment for personal assistance for persons with serious functional disabilities. Findings show that the public officials at the Swedish Social Insurance Agency either limit or extend their discretion as a strategy, as well as use weak warrants as strong warrants in recommending decisions. Other strategies involve the organisational logic, fragmentation of the content in the needs assessment and division of work among the public officials. Implementing the cost-cutting goals causes severe consequences for persons with disabilities who bear the brunt by being excluded from participation in society. The social policy values of fifty years, emphasising the right to equal participation in society, are traded for economic austerity goals.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2019
Keywords
Austerity, personal assistance, social policy, street-level bureaucracy
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-88839 (URN)10.1080/13691457.2019.1639627 (DOI)000479876900001 ()
Available from: 2019-08-29 Created: 2019-08-29 Last updated: 2019-08-29
Järkestig Berggren, U., Bergman, A.-S., Eriksson, M. & Priebe, G. (2019). Young carers in Sweden — A pilot study of care activities, view of caring, and psychological well‐being. Child & Family Social Work, 24(2), 292-300
Open this publication in new window or tab >>Young carers in Sweden — A pilot study of care activities, view of caring, and psychological well‐being
2019 (English)In: Child & Family Social Work, ISSN 1356-7500, E-ISSN 1365-2206, Vol. 24, no 2, p. 292-300Article in journal (Refereed) Published
Abstract [en]

Children who have parents with any kind of illness may become young carers who take a responsibility not expected of children for household tasks, or personal or emotional care for parents and siblings. So far, little is known about children in Sweden who are at risk of becoming young carers. The aim of this article is therefore to explore the extent and impact of children's caring activities as reported in a pilot study by a sample of children in Sweden. A number of international questionnaires measuring the amount of caring activities, impact of caring, quality of life, and psychological well‐being were translated and combined into a survey. The pilot survey was completed by 30 children 10–18 years of age. Also, when completing the survey, the children were interviewed concerning their experiences of caregiving. The participants report on a group level emotional symptoms such as fear and nervousness above the clinical cut‐off value. They also rate a lower level of caring compared with findings from the United Kingdom, but they report a higher degree of negative impact of caring than young carers in the United Kingdom.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2019
Keywords
care activities, child protection, impact of caring, psychological wellbeing, young carers, youth
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-79252 (URN)10.1111/cfs.12614 (DOI)000466428700015 ()2-s2.0-85055089285 (Scopus ID)
Available from: 2018-12-18 Created: 2018-12-18 Last updated: 2019-08-29Bibliographically approved
Järkestig Berggren, U. & Hanson, E. (2016). Children as next of kin: a scoping review of support interventions for children who have a parent with a serious physical illness. Child Care in Practice, 22(3), 277-295
Open this publication in new window or tab >>Children as next of kin: a scoping review of support interventions for children who have a parent with a serious physical illness
2016 (English)In: Child Care in Practice, ISSN 1357-5279, E-ISSN 1476-489X, Vol. 22, no 3, p. 277-295Article in journal (Refereed) Published
Abstract [en]

Young children and adolescents who have a parent with a serious physical illness require information and support to cope with their everyday lives. The purpose of this scoping review was to summarise and disseminate the research findings of interventions that support children in families with a serious physically ill parent. The review also aimed to identify research gaps in the existing literature. Following a comprehensive search, only nine support interventions from 12 studies were identified, indicating that a dearth of intervention research has been conducted in the area. Although positive results were reported from all interventions at some stage, many of the studies were small pilot studies that did not show robust proof of the effectiveness of the interventions. However, the scoping review revealed that the main aim of most interventions is to enhance family functioning for all afflicted families by helping parents to communicate with their children. Further, some interventions offer a comprehensive support for identified “at risk” families. Few interventions examined the improvement within the everyday lives of families facing a serious physical illness other than cancer or HIV. The measures of effectiveness for children were limited to internal psychological symptoms of stress and depression, behavioural problems and issues regarding communication within the family. Few studies evaluated external measures; for example, effects on children's care burden, improved support from social network or school achievements. Implications for practitioners include gaining inspiration from the programmes to enhance communication between parents and children and also, wherever possible, to ask children themselves to evaluate the effectiveness of the support offered to them.

Place, publisher, year, edition, pages
Taylor & Francis, 2016
Keywords
Children in need, Evaluation studies, Parental mental health, Children's rights, Young carers, Risk in social work
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-49685 (URN)10.1080/13575279.2015.1102125 (DOI)2-s2.0-84949550929 (Scopus ID)
Available from: 2016-02-10 Created: 2016-02-10 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U., Rowan, D., Bergbäck, E. & Blomberg, B. (2016). Disabled students' experiences of higher education in Sweden, the Czech Republic, and the United States: a comparative institutional analysis. Disability & Society, 31(3), 339-356
Open this publication in new window or tab >>Disabled students' experiences of higher education in Sweden, the Czech Republic, and the United States: a comparative institutional analysis
2016 (English)In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 31, no 3, p. 339-356Article in journal (Refereed) Published
Abstract [en]

Students with disabilities face obstacles in their encounters with higher education. The aim of this study is to investigate how the institutional context shapes students' experiences of unequal opportunities in higher education. In comparing disabled students' experiences from universities in Sweden, the Czech Republic, and the United States, the study makes visible the kind of experiences that students share and how experiences differ between these countries within the global context of higher education. The study has shown that students' possibilities for equal participation are shaped by the institutional context that is based on medical diagnosis and compensation for an inaccessible education.

Keywords
Disability, student experience, student accommodation, institutional and neo-institutional theories, social sciences, higher education
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-54702 (URN)10.1080/09687599.2016.1174103 (DOI)000377289900003 ()2-s2.0-84965054182 (Scopus ID)
External cooperation:
Available from: 2016-07-21 Created: 2016-07-21 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U. & Hanson, E. (2016). Stödprogram riktade till barn och/eller föräldrar när en förälder missbrukar alkohol eller andra droger - en kunskapsöversikt. Kalmar: Nationellt kompetenscentrum anhöriga
Open this publication in new window or tab >>Stödprogram riktade till barn och/eller föräldrar när en förälder missbrukar alkohol eller andra droger - en kunskapsöversikt
2016 (Swedish)Report (Other academic)
Abstract [sv]

Syftet med denna kunskapsöversikt är att systematiskt kartlägga, granska och sammanställa kunskap om vilka utvärderade metoder och program som finns för att ge stöd till barn och/eller förälder när en förälder är beroende av alkohol eller andra droger. Kunskapsöversikten syftar också till att ge underlag för slutsatser om behov och riktning för vidare kunskapsutveckling och forskning.

Place, publisher, year, edition, pages
Kalmar: Nationellt kompetenscentrum anhöriga, 2016. p. 140
Series
Nka Barn som anhöriga ; 2016:4
National Category
Social Work
Research subject
Health and Caring Sciences, Caring Science; Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-61323 (URN)9789187731389 (ISBN)
Available from: 2017-03-13 Created: 2017-03-13 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U., Magnusson, L. & Hanson, E. (Eds.). (2015). Att se barn som anhöriga - om beroende i relationer, interventioner och omsorgsansvar: Antologi. Kalmar/Växjö: Nka, Linnéuniversitetet
Open this publication in new window or tab >>Att se barn som anhöriga - om beroende i relationer, interventioner och omsorgsansvar: Antologi
2015 (Swedish)Collection (editor) (Other academic)
Abstract [sv]

Barn föds anhöriga och växer upp som anhöriga till föräldrar och syskon och andra viktiga personer i familjen. I dessa relationer har minderåriga barn sin trygghet och tillitsbas att bygga sitt liv på. Omvänt får de svårigheter som drabbar föräldrar och syskon konsekvenser också för barn. Vilka är dessa konsekvenser och hur kan vi förstå barns anhörigskap? Vilka roller kan barnet ha i sin familj? När behöver barn och föräldrar stöd och hur?

Place, publisher, year, edition, pages
Kalmar/Växjö: Nka, Linnéuniversitetet, 2015. p. 380
Series
Barn som anhöriga ; 2015:6
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-49699 (URN)978-91-87731-26-6 (ISBN)
Available from: 2016-02-11 Created: 2016-02-11 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U. & Bergman, A.-S. (2015). Barn är anhöriga: när en förälder är svårt sjuk eller dör. In: Utsatt barndom, sårbara familjer och samhällets insatser, 18-20 mars, 2015, Göteborg: . Paper presented at Utsatt barndom, sårbara familjer och samhällets insatser, 18-20 mars, 2015, Göteborg. Göteborg: Göteborgs universitet
Open this publication in new window or tab >>Barn är anhöriga: när en förälder är svårt sjuk eller dör
2015 (Swedish)In: Utsatt barndom, sårbara familjer och samhällets insatser, 18-20 mars, 2015, Göteborg, Göteborg: Göteborgs universitet, 2015Conference paper, Oral presentation with published abstract (Refereed)
Place, publisher, year, edition, pages
Göteborg: Göteborgs universitet, 2015
National Category
Social Work
Identifiers
urn:nbn:se:lnu:diva-43709 (URN)
Conference
Utsatt barndom, sårbara familjer och samhällets insatser, 18-20 mars, 2015, Göteborg
Available from: 2015-06-05 Created: 2015-06-05 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U. (2015). Building on users' knowledge as a basis for professional expertise? An example from Swedish social care services. European Journal of Social Work, 18(5), 718-730
Open this publication in new window or tab >>Building on users' knowledge as a basis for professional expertise? An example from Swedish social care services
2015 (English)In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, Vol. 18, no 5, p. 718-730Article in journal (Refereed) Published
Abstract [en]

Implementing new occupations in social care services as a solution to social problems challenges the knowledge base for social care. This has been particularly evident in services for persons with disabilities. Social policy has emphasized influence over services for persons with disabilities and hence has implemented personal assistance and case management services. Using these as examples, this article explores the professional logic developed, and the ways it relate to existing social professions. The results are presented in a typology defining two occupations as examples of a professional logic based on users’ knowledge. This logic, here called ‘user-mandated professionalism’, is denoted by wide discretion, relationships with users built on trust, and legitimacy mainly stemming from user organizations. The analysis then raises the challenge for social professionals in social care occupations based on users’ knowledge to be explicit about the knowledge base they build on in their arguments and in decision-making.

Keywords
professions, disability, evidence-based, social policy, practice, theory, mental health
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-37157 (URN)10.1080/13691457.2014.934662 (DOI)000369907600007 ()2-s2.0-84942825229 (Scopus ID)
Available from: 2014-09-22 Created: 2014-09-22 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U. & Hanson, E. (2015). Stöd till barn när en förälder är allvarligt fysiskt sjuk. In: Ulrika Järkestig Berggren, Lennart Magnusson & Elizabeth Hanson (Ed.), Att se barn som anhöriga-om beroende i relationer, interventioner och omsorgsansvar: Antologi (pp. 179-198). Kalmar: Nka, Linnéuniversitetet
Open this publication in new window or tab >>Stöd till barn när en förälder är allvarligt fysiskt sjuk
2015 (Swedish)In: Att se barn som anhöriga-om beroende i relationer, interventioner och omsorgsansvar: Antologi / [ed] Ulrika Järkestig Berggren, Lennart Magnusson & Elizabeth Hanson, Kalmar: Nka, Linnéuniversitetet , 2015, p. 179-198Chapter in book (Other academic)
Abstract [sv]

Barn föds anhöriga och växer upp som anhöriga till föräldrar och syskon och andra viktiga personer i familjen. I dessa relationer har minderåriga barn sin trygghet och tillitsbas att bygga sitt liv på. Omvänt får de svårigheter som drabbar föräldrar eller syskon konsekvenser också för barn. Vilka är dessa konsekvenser och hur kan vi förstå barns anhörigskap? Vilka roller kan barnet ha i sin familj? När behöver barn och föräldrar stöd och hur?

Place, publisher, year, edition, pages
Kalmar: Nka, Linnéuniversitetet, 2015
Series
Barn som anhöriga ; 2015:6
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-49701 (URN)978-91-87731-26-6 (ISBN)
Available from: 2016-02-11 Created: 2016-02-11 Last updated: 2019-02-27Bibliographically approved
Järkestig Berggren, U. & Hanson, E. (2015). Support for children and their families when a parent is seriously ill. In: Presented at the 6th International Carers Conference, Young Carers Symposium, Gothenburg, Sweden, September 3-6, 2015: . Paper presented at 6th International Carers Conference, Young Carers Symposium, Gothenburg, Sweden, September 3-6, 2015.
Open this publication in new window or tab >>Support for children and their families when a parent is seriously ill
2015 (English)In: Presented at the 6th International Carers Conference, Young Carers Symposium, Gothenburg, Sweden, September 3-6, 2015, 2015Conference paper, Oral presentation with published abstract (Refereed)
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84785 (URN)
Conference
6th International Carers Conference, Young Carers Symposium, Gothenburg, Sweden, September 3-6, 2015
Available from: 2019-06-10 Created: 2019-06-10 Last updated: 2019-10-18Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-1325-9965

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