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Magnusson, Lennart
Publications (10 of 69) Show all publications
Hanson, E., Sennemark, E. & Magnusson, L. (2019). Anhörigas delaktighet och behov (1 uppl.ed.). In: Mirjam Ekstedt & Maria Flink (Ed.), Hemsjukvård: olika perspektiv på trygg och säker vård (pp. 209-226). Stockholm: Liber
Open this publication in new window or tab >>Anhörigas delaktighet och behov
2019 (Swedish)In: Hemsjukvård: olika perspektiv på trygg och säker vård / [ed] Mirjam Ekstedt & Maria Flink, Stockholm: Liber, 2019, 1 uppl., p. 209-226Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Liber, 2019 Edition: 1 uppl.
National Category
Nursing
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-75898 (URN)9789147112777 (ISBN)
Available from: 2018-06-14 Created: 2018-06-14 Last updated: 2019-05-20Bibliographically approved
Berghamre Heinz, A., Magnusson, L., Hanson, E. & Furenbäck, I. (2019). Barn som anhöriga: Alla barn ska få möjlighet till hälsa och personlig utveckling. Kalmar: Nationellt kompetenscentrum för anhöriga
Open this publication in new window or tab >>Barn som anhöriga: Alla barn ska få möjlighet till hälsa och personlig utveckling
2019 (Swedish)Report (Other academic)
Abstract [sv]

Alla barn och unga har rätt att växa upp under trygga och goda förhållanden och få det skydd och stöd som kan behövas för en gynnsam fysisk och social utveckling. Vad gäller barn som anhöriga utsätts de för mångfaldigt större risker att drabbas av såväl sjukdom som sociala problem jämfört med andra barn. Samhället kan gemensamt verka förebyggande genom att minska risk- och stärka skyddsfaktorer för barnen och deras familjer och utveckla och systematiskt följa upp riktade stödinsatser för barnen. Genom utveckling av organisatoriska strukturer och rutiner, enskilda initiativ och engagemang kan bättre förutsättningar för alla barn stärkas. Nka arbetar för att bidra till sådant stöd att närståendes svårigheter inte inkräktar på barnets hälsa, utveckling och skolgång. I denna folder finner Ni flera intressanta exempel på rutiner och insatser till barn som anhöriga. Låt er inspireras och vara delaktiga i detta viktiga uppdrag, att alla barn ska få möjlighet till hälsa, personlig utveckling, utbildning och social delaktighet.

Place, publisher, year, edition, pages
Kalmar: Nationellt kompetenscentrum för anhöriga, 2019. p. 24
National Category
Health Sciences
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-73115 (URN)978-91-87731-59-4 (ISBN)
Available from: 2018-04-20 Created: 2018-04-20 Last updated: 2019-05-28Bibliographically approved
Andréasson, F., Aidemark, J., Magnusson, L., Strömberg, A. & Hanson, E. (2019). Lifeworld in co-designing with informal carers. Journal of Enabling Technologies, 13(1), 29-39
Open this publication in new window or tab >>Lifeworld in co-designing with informal carers
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2019 (English)In: Journal of Enabling Technologies, ISSN 2398-6263, Vol. 13, no 1, p. 29-39Article in journal (Refereed) Published
Abstract [en]

Purpose – The purpose of this paper is to reflect on carers’ experiences of being involved in the development of a web-based support programme for carers of people with heart failure (CPwHF), and discuss the challenges related to their involvement in the development process. The focus was on the different phases in the project as well as the methodological challenges and opportunities that occurred in the user group sessions conducted.

Design/methodology/approach – This research adopt an explorative design studying a co-design process to develop an information and communication technology based support programme for and with CPwHF. Habermas’ concepts of lifeworld and system are used as a theoretical framework to analyse the co-design process employed in the study.

Findings – Reflecting on the co-design approach adopted, the findings highlight the methodological challenges that arise with carer involvement and the possible tensions that occur between researchers’ ambitions to include users in the design process, and the goal of developing a product or service, in the different phases of the design process.

Originality/value – Findings highlight that there is a tension between the system and lifeworld in the co-design process which are not totally compatible. The paper highlights that there is a need to develop flexible and reflexive human-centred design methodologies, able to meet carers’ needs and ideas, and at the same time balance this with proposed research outcomes.

Place, publisher, year, edition, pages
Emerald Group Publishing Limited, 2019
National Category
Other Health Sciences Information Systems, Social aspects
Research subject
Health and Caring Sciences, Health Informatics
Identifiers
urn:nbn:se:lnu:diva-88908 (URN)10.1108/JET-05-2018-0023 (DOI)000484263700003 ()
Projects
ICT4SelfCare
Available from: 2019-09-02 Created: 2019-09-02 Last updated: 2019-09-25Bibliographically approved
Malm, C., Andersson, S., Joenson, H., Magnusson, L. & Hanson, E. (2019). Moving beyond the first response phenomenon Exploring carers' views and experiences of being involved in research and development work. International journal of sociology and social policy, 39(7-8), 627-643
Open this publication in new window or tab >>Moving beyond the first response phenomenon Exploring carers' views and experiences of being involved in research and development work
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2019 (English)In: International journal of sociology and social policy, ISSN 0144-333X, E-ISSN 1758-6720, Vol. 39, no 7-8, p. 627-643Article in journal (Refereed) Published
Abstract [en]

Purpose In Sweden, the care of older people and people with disabilities is increasingly carried out by informal carers, often family members, who are unpaid and outside a professional or formal framework. While there is an increasing awareness of the role of carers within service systems and their own needs for support, their involvement in research is underexplored. The purpose of this paper is to explore carers' views and experiences of involvement in research and development (R&D) work. Design/methodology/approach A qualitative study was conducted, consisting of 12 individual interviews with carers from different local Swedish carer organizations. Findings Core findings included carers' discussions of the perceived challenges and benefits of their involvement in research, both generally and more specifically, in the context of their involvement in the development of a national carer strategy. Research limitations/implications - Limitations included the relative lack of male carer participants and the convenience sample. Practical implications - Authentic carer involvement in research demands a high level of engagement from researchers during the entire research process. The provided CRAC framework, with reference to the themes community, reciprocity, advocacy and circumstantiality, may help researchers to understand and interpret carer involvement in research and provide the prerequisites for their involvement. Originality/value There is a dearth of studies that systematically examine carer involvement in research. This paper attempts to redress this gap by providing a nuanced analysis of carer involvement in R&D work from the perspective of carers themselves.

Place, publisher, year, edition, pages
Emerald Group Publishing Limited, 2019
Keywords
Identity, Heterogeneity, Research and development, Social policy, Carer involvement, Carer strategy
National Category
Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-89259 (URN)10.1108/IJSSP-05-2019-0091 (DOI)000482906500008 ()
Available from: 2019-09-24 Created: 2019-09-24 Last updated: 2019-09-24Bibliographically approved
Johansson, M., Wåhlin, I., Magnusson, L. & Hanson, E. (2019). Nursing staff's experiences of intensive care unit diaries: a qualitative study. Nursing in Critical Care, 24(6), 407-413
Open this publication in new window or tab >>Nursing staff's experiences of intensive care unit diaries: a qualitative study
2019 (English)In: Nursing in Critical Care, ISSN 1362-1017, E-ISSN 1478-5153, Vol. 24, no 6, p. 407-413Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Diaries as an intervention to aid psychological recovery among intensive care patients have been used for about 20 years, and findings tend to be positive. The provision of a diary directed at the patient may clarify the story of the intensive care unit (ICU) even for the family members and the family members of non-survivors. Members of nursing staff are the primary authors, but how they themselves experience the use of ICU diaries has been minimally explored.

AIMS AND OBJECTIVES: This study aimed to explore how nursing staff experienced the use of ICU patient diaries.

DESIGN: Qualitative design using focus group interviews.

METHODS: A qualitative methodology was used. Six focus group interviews were conducted with 27 nursing staff recruited from one university and two county hospitals. The data were analysed via thematic content analysis.

FINDINGS: One overarching theme, 'An effort to do good in words and actions', and four interconnected themes were derived from the analysis. By creating the diary, nursing staff had to deal with a variety of ethical and practical dilemmas, but feedback from patients, family members and ICU follow-up services reinforced the feeling of doing good. This overarching feeling of beneficence encouraged diary authoring and increased motivation and commitment to strive towards excellent patient care. To sustain the use of ICU diaries, collegiate and organizational support was deemed essential.

CONCLUSIONS: Nursing staff strived to do good in words and actions for patients and their families when writing the diaries. Positive feedback from patients, family members and ICU follow-up services reinforced feelings of doing good, which served to enhance work satisfaction and a commitment to good-quality nursing care. Experiential-based education was recommended to help sustain ICU diary writing.

RELEVANCE TO CLINICAL PRACTICE: Nursing staff requested mentoring and group discussions concerning the format, content and communication channels of the diary.

Place, publisher, year, edition, pages
John Wiley & Sons, 2019
Keywords
Diaries, Experiences, ICU, Nursing staff, Qualitative, Thematic content analysis
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84583 (URN)10.1111/nicc.12416 (DOI)000497775700013 ()30680873 (PubMedID)
Available from: 2019-06-04 Created: 2019-06-04 Last updated: 2019-12-12Bibliographically approved
Hanson, E. & Magnusson, L. (2019). Quality of long term care from a carer perspective: a commissioned study to inform the national quality plan for care of older people in Sweden. In: Presented at the International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019, 2019: . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019.
Open this publication in new window or tab >>Quality of long term care from a carer perspective: a commissioned study to inform the national quality plan for care of older people in Sweden
2019 (English)In: Presented at the International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019, 2019, 2019Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

The presentation will highlight findings from a report commissioned by the independent investigator for the National Quality Plan for Care of Older People. In Sweden, a traditional welfare model of care for older people has come under increasing threat in recent years leading to a pattern of de-universalisation of care, an increase in for-profit provision of publicly funded care for older people and an increase in informal/family care.   This contextual backdrop provides the rationale for the commissioned study that focused on the role of informal/ family carers of older people within long term care.

The overall aim was to explore what makes for a good quality of care for older people from a carer perspective? The specific aims were:

  1. To map carers’ experiences and preferences regarding quality of long term care for an older relative
  2. To identify potential differences in experiences in relation to gender, class and cultural background
  3. Suggest priority areas for policy, practice and research

The study was underpinned by the ‘carers as experts’ model in which carers and practitioners are viewed as co-experts, each with differing yet complementary forms of knowledge. The study comprised a systematic literature review and findings  were validated  via three focus group interviews and individual  interviews with representatives from pensionist, disability and carer organisations and decision makers from the municipality and health care region (n= 21).

The main findings focused on the theme of a sense of security together with five interrelated themes. Despite a policy rhetoric of equal care, older people and carers tend to be treated differently depending on their education, work/social position, gender, ethnic origin, religious beliefs, disability, sexual preferences and age.

To conclude, current quality indicators need to include a carer perspective and gaps in the research include studies focusing on service provision in older people’s own homes.

National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84702 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019
Note

Symposium: Towards carer-friendly systems in the European Union: the EU pillar of social rights as a framework for evidence-based policymaking- findings from the Eurocarers Research Working Group

Symposium Chair: Elisabeth Hanson

Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-11-20Bibliographically approved
Hanson, E. & Magnusson, L. (2019). Young carer involvement in the EU H2020 ME-WE project. In: Symposium presentation at "It takes a village..." International Conference: Families experiencing substance abuse, mental or physical health problems, Oslo, Norway, May 14-16, 2019: . Paper presented at "It takes a village..." International Conference: Families experiencing substance abuse, mental or physical health problems, Oslo, Norway, May 14-16, 2019.
Open this publication in new window or tab >>Young carer involvement in the EU H2020 ME-WE project
2019 (English)In: Symposium presentation at "It takes a village..." International Conference: Families experiencing substance abuse, mental or physical health problems, Oslo, Norway, May 14-16, 2019, 2019Conference paper, Oral presentation with published abstract (Refereed)
National Category
Medical and Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84706 (URN)
Conference
"It takes a village..." International Conference: Families experiencing substance abuse, mental or physical health problems, Oslo, Norway, May 14-16, 2019
Note

Symposium: Promoting mental health among adolescent young carers in Europe: The EU- funded ME-WE project

Symposium Chair: Elisabeth Hanson

Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-11-20Bibliographically approved
Johansson, M., Wåhlin, I., Magnusson, L., Runeson, I. & Hanson, E. (2018). Family members' experiences with intensive care unit diaries when the patient does not survive. Scandinavian Journal of Caring Sciences, 32(1), 233-240
Open this publication in new window or tab >>Family members' experiences with intensive care unit diaries when the patient does not survive
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2018 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 32, no 1, p. 233-240Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: The aim of the study was to explore how family members experienced the use of a diary when a relative does not survive the stay in the intensive care unit (ICU).

METHOD: A qualitative method with a hermeneutic approach was used. Nine participants who read/wrote eight diaries in total were interviewed. The collected data were analysed using a hermeneutic technique inspired by Geanellos.

FINDINGS: The analysis revealed an overall theme 'the diary was experienced as a bridge connecting the past with the future', which was a metaphor referring to the temporal aspect where there was the period with the diary up until the patient's death and then the postbereavement period. The diary contributed to both a rational and emotional understanding of the death of the patient and disclosed glimmers of light that still existed before the illness deteriorated. Further, the diary bridged the space between family members themselves and between family and nursing staff. It helped to maintain a feeling of togetherness and engagement in the care of the patient which family members found comforting.

CONCLUSION: Family members of nonsurvivors had a need to have the ICU time explained and expressed. The diary might work as a form of 'survival kit' to gain coherence and understanding; to meet their needs during the hospital stay; and, finally, to act as a bereavement support by processing the death of the patient.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018
Keywords
Gadamer, Diaries, Experiences, Family members, Hermeneutics, Intensive care unit, Relatives
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-68205 (URN)10.1111/scs.12454 (DOI)000426524200023 ()28524380 (PubMedID)2-s2.0-85042564022 (Scopus ID)
Available from: 2017-10-04 Created: 2017-10-04 Last updated: 2019-09-07Bibliographically approved
Andreasson, J., Johansson, T. & Magnusson, L. (2018). Våldsbejakande extremism och radikalisering: En översikt: [Violent extremism and radicalization: an overview]. In: Theo Gavrielides (Ed.), Young, Marginalised but not Radicalised: A comparative study of positive approaches to youth radicalisation (pp. 152-175). London: IARS Publications
Open this publication in new window or tab >>Våldsbejakande extremism och radikalisering: En översikt: [Violent extremism and radicalization: an overview]
2018 (Swedish)In: Young, Marginalised but not Radicalised: A comparative study of positive approaches to youth radicalisation / [ed] Theo Gavrielides, London: IARS Publications , 2018, p. 152-175Chapter in book (Other academic)
Abstract [en]

In Sweden, the understanding of processes of radicalization and the development of preventive work against violent extremism can be said to be framed by a few specific political decisions that were formative for the policies developed. These are dealt with in the text. Among other things, the result shows that the security discourse and preventive work are often mixed up at the policy level, which has repercussions in research and prevention. One important key to developing the work on security and prevention lies in the need for further knowledge development regarding everything from methods and field studies to policy practices. Apart from providing an account of developments in Sweden, there are also arguments for a more skeptical, reflexive, and critical attitude towards all forms of simplified categorizations of young people, which risks stigmatizing individuals and groups. By starting from a critical and reflexive social education perspective, it will become possible to contribute to understanding and to an analysis of social contexts, risks, and negative spirals. The ambition of trying to predict which individuals will potentially commit crimes of terror represents a dead end. On the other hand, there are possibilities of identifying risk environments, subcultural groups that cultivate extreme opinions, and then to approach these groups in various ways in order to develop effective social pedagogical work and positive and GLM-based trajectories for young people at risk for radicalisation.

Abstract [sv]

På relativt kort tid har arbetet med förebyggande socialpolitiska åtgärder mot våldsbejakande extremism kommit att få stor uppmärksamhet i Sverige. Föreliggande text är en kortfattad kunskapsöversikt med fokus på ungas radikalisering och våldsbejakande extremism. Texten utgör en första delrapport i ett Erasmus-finansierat projekt kallat Youth Empowerment and Innovation Project (YEIP). I Sverige kan förståelsen för radikaliseringsprocesser och utvecklandet av preventionsarbetet mot våldsbejakande extremism sägas vara inramat av några specifika politiska beslut som varit formativa för de policys som utvecklats. Dessa behandlas utförligt i texten. Bland annat visar resultaten att säkerhetsdiskursen och det preventiva arbetet ofta sammanblandas på policynivå, vilket får återverkningar i såväl forskning som prevention. En viktig nyckel till hur man ska kunna utveckla arbetet med säkerhet och prevention ligger i behovet av ytterligare kunskapsutveckling vad gäller alltifrån metoder, fältstudier till policypraktiker. Utöver att redogöra för utvecklingen i Sverige, argumenteras också för behovet av ett mer skeptiskt, reflexivt och kritiskt förhållningssätt till alla former av förenklade kategoriseringar av unga, som kan riskera att stigmatisera individer och grupperingar. Genom att utgå från ett kritiskt och reflexivt socialpedagogiskt perspektiv blir det möjligt att bidra till förståelse och till en analys av sociala sammanhang, risker och negativa spiraler. Ambitionen att försöka predicera vilka individer som eventuellt kommer att begå terrorbrott utgör en återvändsgränd. Däremot finns det möjligheter att identifiera riskmiljöer, subkulturella grupperingar som odlar extrema åsikter och att sedan på olika sätt närma sig dessa grupperingar för att kunna utveckla ett effektivt socialpedagogiskt arbete och skapa förutsättningar för positiva trajektorier.

Place, publisher, year, edition, pages
London: IARS Publications, 2018
National Category
Sociology
Research subject
Social Sciences
Identifiers
urn:nbn:se:lnu:diva-70529 (URN)978-1-907641-46-6 (ISBN)
Available from: 2018-02-05 Created: 2018-02-05 Last updated: 2018-03-09Bibliographically approved
Hjern, A., Berg, L., Arat, A., Klöfvermark, J., Manhica, H., Rostila, M., . . . Hanson, E. (2017). Children as next of kin in Sweden. Kalmar: Nationellt kompetenscentrum anhöriga
Open this publication in new window or tab >>Children as next of kin in Sweden
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2017 (English)Report (Other academic)
Abstract [sv]

Översikten är en sammanfattning av åtta rapporter om barn som anhöriga i Sverige. Rapporterna har gjorts inom ramen för ett regeringsuppdrag om ett brett nationellt utvecklingsarbete där Socialstyrelsen, Folkhälsomyndigheten och Sveriges Kommuner och Landsting samarbetar för att stärka stödet till barn och unga i familjer med missbruk, allvarlig sjukdom eller psykisk ohälsa, eller då en förälder avlider.

Place, publisher, year, edition, pages
Kalmar: Nationellt kompetenscentrum anhöriga, 2017. p. 31
Series
Nka Rapport ; 2017:2
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-73118 (URN)978-91-87731-49-5 (ISBN)
Available from: 2018-04-20 Created: 2018-04-20 Last updated: 2018-12-05Bibliographically approved
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