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Andréasson, Frida
Publications (10 of 26) Show all publications
Engelmann, P., Eilerskov, N., Thilsing, T., Bernardini, F., Rasmussen, S., Löwe, B., . . . Consortium, E. S. (2023). Needs of multimorbid heart failure patients and their carers: a qualitative interview study and the creation of personas as a basis for a blended collaborative care intervention. Frontiers in Cardiovascular Medicine, 10, Article ID 1186390.
Open this publication in new window or tab >>Needs of multimorbid heart failure patients and their carers: a qualitative interview study and the creation of personas as a basis for a blended collaborative care intervention
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2023 (English)In: Frontiers in Cardiovascular Medicine, E-ISSN 2297-055X, Vol. 10, article id 1186390Article in journal (Refereed) Published
Abstract [en]

Introduction: Involving patients and carers in the development of blended collaborative care (BCC) interventions for multimorbid heart failure (HF) patients is recommended but rarely practised, and research on the patient perspective is scarce. The aim of this study is to investigate patients' and carers' care-related needs and preferences to better customize a novel international BCC intervention.

Methods: A qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created.

Results: Data from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support.

Discussion: This is the first international qualitative study on patients' and carers' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing "one size fits all" interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).

Place, publisher, year, edition, pages
Frontiers Media S.A., 2023
Keywords
heart failure, multimorbidity, blended collaborative care, informal carers, care needs, qualitative study, OLDER-ADULTS, DEPRESSION, DISEASE, MANAGEMENT, OUTCOMES, DESIGN, SYMPTOMS, EVENTS, PEOPLE, LIFE
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-125942 (URN)10.3389/fcvm.2023.1186390 (DOI)001105779900001 ()
Available from: 2023-12-08 Created: 2023-12-08 Last updated: 2023-12-08
Andréasson, F., Mattsson, T. & Hanson, E. (2023). ‘The balance in our relationship has changed’: everyday family living, couplehood and digital spaces in informal spousal care. Journal of Family Studies, 29(2), 719-737
Open this publication in new window or tab >>‘The balance in our relationship has changed’: everyday family living, couplehood and digital spaces in informal spousal care
2023 (English)In: Journal of Family Studies, ISSN 1322-9400, E-ISSN 1839-3543, Vol. 29, no 2, p. 719-737Article in journal (Refereed) Published
Abstract [en]

Building on an ethnographic approach, this study aims to explore how the notion of couplehood and family life is understood and negotiated in everyday life by older carers and their spouses. Inspired by Morgan’s perspective on the doing of family life, and Hochschild’s analysis of emotion work and feeling rules, the article shows how the process of becoming a carer/care recipient creates a new life situation for couples. The findings show that gendered tasks of family life such as housework and financial responsibilities change between spouses, and new practicalities emerge. This in turn changes the power balance between the spouses and how they do couplehood. The findings also reveal how the participants’ sense of we and I are negotiated to do family life, with regards to their health, sense of moral obligation, personal autonomy, love and caregiving. A sense of social isolation is apparent, and social media, apps and online games are sometimes used to create digital spaces in which participants can maintain connections with friends and children, find solitude and regain energy by getting a temporary pause from spousal informal care. Such strategies enable couples to find balance and a sense of autonomy in their lives as a family.

Place, publisher, year, edition, pages
Taylor & Francis, 2023
Keywords
informal care, older people, couplehood, housework, emotion work, health, gender, ICT, family practices
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-107157 (URN)10.1080/13229400.2021.1980421 (DOI)000698693200001 ()2-s2.0-85115370069 (Scopus ID)
Available from: 2021-09-28 Created: 2021-09-28 Last updated: 2023-05-10Bibliographically approved
Allemann, H., Andréasson, F., Hanson, E., Magnusson, L., Jaarsma, T., Thylén, I. & Strömberg, A. (2023). The co-design of an online support programme with and for informal carers of people with heart failure: A methodological paper. Journal of Clinical Nursing, 32(19-20), 7589-7604
Open this publication in new window or tab >>The co-design of an online support programme with and for informal carers of people with heart failure: A methodological paper
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2023 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 32, no 19-20, p. 7589-7604Article in journal (Refereed) Published
Abstract [en]

Abstract AimTo describe the co-designing process of an online support programme with and for informal carers of people with heart failure.DesignA co-design process built on core concepts and ideas embedded in co-design methodology.Data sources Our co-design process included three phases involving 32 informal caregivers and 25 content creators; (1) Identification of topics and content through literature searches, focus group interviews and user group sessions; (2) Development of the online support programme and; (3) Refinement and finalization which included testing a paper prototype followed by testing the online version and testing and approval of the final version of the support programme.Outcomes The co-design process resulted in a support programme consisting of 15 different modules relevant to informal carers, delivered on a National Health Portal.Conclusion Co-design is an explorative process where researchers need to balance a range of potentially conflicting factors and to ensure that the end users are genuinely included in the process.Relevance to clinical practice Emphasizing equal involvement of end users (e.g. carers or patients) in the design and development of healthcare interventions aligns with contemporary ideas of person-centred care and provides a valuable learning opportunity for those involved. Furthermore, a co-designed online support programme has the capacity to be both accessible and meet end users' information and support needs, thereby optimizing their self-care abilities. Additionally, an online support programme provides the opportunity to address current challenges regarding scarce resources and the lack of healthcare personnel.Reporting methodsConsolidated criteria for reporting qualitative research (COREQ).Patient or public contributionBoth informal carers and content creators were involved in developing the support programme.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023
Keywords
heart diseases, informal caregiving, information and communication technology, participatory design, web-based support
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-123847 (URN)10.1111/jocn.16856 (DOI)001052348700001 ()37605222 (PubMedID)2-s2.0-85168593466 (Scopus ID)
Available from: 2023-08-22 Created: 2023-08-22 Last updated: 2023-11-21Bibliographically approved
Herz, M., Andreasson, J. & Andréasson, F. (2023). The precariousness of asylum-seekers’ care and support: Informal care within and because of the immigration process. International Journal of Care and Caring, 7(1), 50-66
Open this publication in new window or tab >>The precariousness of asylum-seekers’ care and support: Informal care within and because of the immigration process
2023 (English)In: International Journal of Care and Caring, ISSN 2397-8821, E-ISSN 2397-883X , Vol. 7, no 1, p. 50-66Article in journal (Refereed) Published
Abstract [en]

Using ethnographic data, this article aims to analyse the provision of informal care by asylum-seekers in Sweden and how this intersects with the(ir) asylum process. The article argues that asylum-seekers are framed by the Swedish welfare system and immigration authorities as ungrievable and deportable, which not only impedes their access to formal care systems and values, but also creates a strong need for informal care. Further, it is suggested that the informal care provided by asylum-seekers should be included in current debate on informal care and its impact on people’s lives. 

Place, publisher, year, edition, pages
Policy Press, 2023
National Category
Social Work International Migration and Ethnic Relations Other Health Sciences
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-111026 (URN)10.1332/239788221x16456304482483 (DOI)000886867300001 ()2-s2.0-85160243173 (Scopus ID)
Available from: 2022-03-28 Created: 2022-03-28 Last updated: 2023-09-12Bibliographically approved
Papa, R., Efthymiou, A., Lamura, G., Piccinini, F., Onorati, G., Papastavrou, E., . . . Hanson, E. (2020). Review and Selection of Online Resources for Carers of Frail Adults or Older People in Five European Countries: Mixed-Methods Study. JMIR mhealth and uhealth, 8(6), Article ID e14618.
Open this publication in new window or tab >>Review and Selection of Online Resources for Carers of Frail Adults or Older People in Five European Countries: Mixed-Methods Study
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2020 (English)In: JMIR mhealth and uhealth, E-ISSN 2291-5222, Vol. 8, no 6, article id e14618Article, review/survey (Refereed) Published
Abstract [en]

Background: Informal carers have a crucial role in the care of older people, but they are at risk of social isolation and psychological exhaustion. Web-based services like apps and websites are increasingly used to support informal carers in addressing some of their needs and tasks, such as health monitoring of their loved ones, information and communication, and stress management. Despite the growing number of available solutions, the lack of knowledge or skills of carers about the solutions often prevent their usage. Objective: This study aimed to review and select apps and websites offering functionalities useful for informal carers of frail adults or older people in 5 European countries (Cyprus, Greece, Italy, Portugal, and Sweden). Methods: A systematic online search was conducted from January 2017 to mid-March 2017 using selected keywords, followed by an assessment based on a set of commonly agreed criteria and standardized tools. Selected resources were rated and classified in terms of scope. Focus groups with informal carers were conducted to validate the list and the classification of resources. The activities were conducted in parallel in the participating countries using common protocols and guidelines, a standardization process, and scheduled group discussions. Results: From a total of 406 eligible resources retrieved, 138 apps and 86 websites met the inclusion criteria. Half of the selected resources (109/224, 48.7%) were disease-specific, and the remaining resources included information and utilities on a variety of themes. Only 38 resources (38/224, 17.0%) were devoted specifically to carers, addressing the management of health disturbances and diseases of the care recipient and focusing primarily on neurodegenerative diseases. Focus groups with the carers showed that almost all participants had no previous knowledge of any resource specifically targeting carers, even if interest was expressed towards carer-focused resources. The main barriers for using the resources were low digital skills of the carers and reliability of health-related apps and websites. Results of the focus groups led to a new taxonomy of the resources, comprising 4 categories: carer's wellbeing, managing health and diseases of the care recipient, useful contacts, and technologies for eldercare. Conclusions: The review process allowed the identification of online resources of good quality. However, these resources are still scarce due to a lack of reliability and usability that prevent users from properly benefiting from most of the resources. The involvement of end users provided added value to the resource classification and highlighted the gap between the potential benefits from using information and communication technologies and the real use of online resources by carers.

Place, publisher, year, edition, pages
JMIR Publications, Inc, 2020
Keywords
informal carers, mobile apps, websites, usability, reliability
National Category
Other Health Sciences
Research subject
Health and Caring Sciences, Health Informatics
Identifiers
urn:nbn:se:lnu:diva-97178 (URN)10.2196/14618 (DOI)000540701200001 ()32554378 (PubMedID)2-s2.0-85086692338 (Scopus ID)
Available from: 2020-07-16 Created: 2020-07-16 Last updated: 2023-08-16Bibliographically approved
Andréasson, F., Aidemark, J., Magnusson, L., Strömberg, A. & Hanson, E. (2019). Lifeworld in co-designing with informal carers. Journal of Enabling Technologies, 13(1), 29-39
Open this publication in new window or tab >>Lifeworld in co-designing with informal carers
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2019 (English)In: Journal of Enabling Technologies, ISSN 2398-6263, Vol. 13, no 1, p. 29-39Article in journal (Refereed) Published
Abstract [en]

Purpose – The purpose of this paper is to reflect on carers’ experiences of being involved in the development of a web-based support programme for carers of people with heart failure (CPwHF), and discuss the challenges related to their involvement in the development process. The focus was on the different phases in the project as well as the methodological challenges and opportunities that occurred in the user group sessions conducted.

Design/methodology/approach – This research adopt an explorative design studying a co-design process to develop an information and communication technology based support programme for and with CPwHF. Habermas’ concepts of lifeworld and system are used as a theoretical framework to analyse the co-design process employed in the study.

Findings – Reflecting on the co-design approach adopted, the findings highlight the methodological challenges that arise with carer involvement and the possible tensions that occur between researchers’ ambitions to include users in the design process, and the goal of developing a product or service, in the different phases of the design process.

Originality/value – Findings highlight that there is a tension between the system and lifeworld in the co-design process which are not totally compatible. The paper highlights that there is a need to develop flexible and reflexive human-centred design methodologies, able to meet carers’ needs and ideas, and at the same time balance this with proposed research outcomes.

Place, publisher, year, edition, pages
Emerald Group Publishing Limited, 2019
National Category
Other Health Sciences Information Systems, Social aspects
Research subject
Health and Caring Sciences, Health Informatics
Identifiers
urn:nbn:se:lnu:diva-88908 (URN)10.1108/JET-05-2018-0023 (DOI)000484263700003 ()2-s2.0-85063910007 (Scopus ID)
Projects
ICT4SelfCare
Available from: 2019-09-02 Created: 2019-09-02 Last updated: 2023-08-16Bibliographically approved
Ahmadi, F., Andréasson, F., Andreasson, J., Bayati, Z., Bečević, Z., Bredström, A., . . . Öhlund, T. (2019). Remissyttrande över utkast till lagrådsremiss: Förlängning av lagen om tillfälliga begränsningar av möjligheten att få uppehållstillstånd i Sverige (Dnr Ju2019/00509/L7).
Open this publication in new window or tab >>Remissyttrande över utkast till lagrådsremiss: Förlängning av lagen om tillfälliga begränsningar av möjligheten att få uppehållstillstånd i Sverige (Dnr Ju2019/00509/L7)
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2019 (Swedish)Other (Other (popular science, discussion, etc.))
Publisher
p. 8
National Category
International Migration and Ethnic Relations
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-103149 (URN)
Note

Brev till Justitiedepartementet

Available from: 2021-05-10 Created: 2021-05-10 Last updated: 2023-04-12Bibliographically approved
Andréasson, F., Andreasson, J. & Hanson, E. (2018). Developing a carer identity and negotiating everyday life through social networking sites: An explorative study on identity constructions in an online Swedish carer community. Ageing & Society, 38(11), 2304-2324
Open this publication in new window or tab >>Developing a carer identity and negotiating everyday life through social networking sites: An explorative study on identity constructions in an online Swedish carer community
2018 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 38, no 11, p. 2304-2324Article in journal (Refereed) Published
Abstract [en]

An overarching reason why carers do not utilise support services is that many people who perform care-giving do not necessarily self-identify as a carer. Understanding the development of carer identities is therefore crucial for the utilisation of different carer-focused health services. This study arose from the European Union-funded INNOVAGE project and aimed to describe how older carers conceptualise and understand their identity as carers on a Swedish online social forum. Theoretically the study adopts a constructionist approach and the method of netnography was applied. The findings reveal that a change in self-perception occurs in the process through which a carer role is acquired. The presence or absence of recognition for the older carers’ capacity, knowledge and life situation is seen as filtered through the needs of the care recipient, making the carer identity into an invisible self. This is not least the case when the identity is constructed in alliance with conceptual and moral obligations found within a marital discourse. Nevertheless, the opportunity for online communication may help to create a virtual space of social recognition through which different experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility it presents for carers to be recognised by other carers. It is a process through which an invisible self can become visible.

Place, publisher, year, edition, pages
Cambridge University Press, 2018
National Category
Nursing Sociology
Research subject
Social Sciences, Sociology
Identifiers
urn:nbn:se:lnu:diva-64980 (URN)10.1017/S0144686X17000551 (DOI)000446465900006 ()2-s2.0-85020271213 (Scopus ID)
Available from: 2017-06-08 Created: 2017-06-08 Last updated: 2021-01-08Bibliographically approved
Barbabella, F., Poli, A., Hanson, E., Andréasson, F., Salzmann, B., Doehner, H., . . . Lamura, G. (2018). Usage and Usability of a Web-based Program for Family Caregivers of Older People in Three European Countries: A Mixed-Methods Evaluation. Computers, Informatics, Nursing, 36(5), 232-241
Open this publication in new window or tab >>Usage and Usability of a Web-based Program for Family Caregivers of Older People in Three European Countries: A Mixed-Methods Evaluation
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2018 (English)In: Computers, Informatics, Nursing, ISSN 1538-2931, E-ISSN 1538-9774, Vol. 36, no 5, p. 232-241Article in journal (Refereed) Published
Abstract [en]

InformCare is a European Web platform that supports informal caregivers of older people by providing access to online information and professional and peer support. The aim of this study was to assess the usage and usability of a psychosocial Web-based program carried out in three European countries (Italy, Sweden, and Germany). A mixed-methods sequential explanatory design was adopted, comprising baseline and postintervention assessments, as well as combined thematic content analysis of results and focus group findings. A convenience sample of 118 caregivers was enrolled, of whom 94 used the services offered by the program at least once. The subsamples in the three countries used the platform in different ways, with a predominance of passive strategies (eg, seeking information and reading other people's comments) for Italian caregivers, and more active usage by Swedish and German caregivers. The usability assessment showed that the platform was perceived well by Italian and German caregivers, whereas technical problems affected the Swedish sample's experiences. Focus group data highlighted user satisfaction with the online support and reliability of the environment. Recommendations for practitioners are to ensure digital training for caregivers who have lower confidence in use of the Internet, to involve different healthcare professionals in the provision of professional support, and to adequately manage online community building.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2018
Keywords
Caregivers, Frail elderly, Health education, Internet, Social support
National Category
Nursing
Research subject
Health and Caring Sciences, Health Informatics
Identifiers
urn:nbn:se:lnu:diva-76813 (URN)10.1097/CIN.0000000000000422 (DOI)000431738300005 ()29505433 (PubMedID)2-s2.0-85046726412 (Scopus ID)
Available from: 2018-07-11 Created: 2018-07-11 Last updated: 2020-11-26Bibliographically approved
Andréasson, F., Andreasson, J. & Hanson, E. (2017). Developing a carer identity and negotiating everyday life through social networking sites. Paper presented at 21st IAGG World Congress of Gerontology and Geriatrics, San Francisco, California, USA, July 23-27, 2017. Innovation in Aging, 1(Suppl_1), 465-466
Open this publication in new window or tab >>Developing a carer identity and negotiating everyday life through social networking sites
2017 (English)In: Innovation in Aging, E-ISSN 2399-5300, Vol. 1, no Suppl_1, p. 465-466Article in journal, Meeting abstract (Other academic) Published
Abstract [en]

Research highlights that a key overarching reason why family carers do not utilize support services is that many people who perform the duties of caregiving do not necessarily self-identify as a carer. Understanding the development of carer identities may thus be understood as crucial for the utilization of different health services directed towards carers. Based on the EU funded Innovage project, this project aims to describe and analyse how older carers supporting and caring for an older person understand and socially negotiate their life situation and identity as carers on a Swedish online social forum. Theoretically the project departs from a constructionist approach and methodologically it has been inspired by a specifically designed method for studying the cultures and communities that emerge from online computer-mediated or Internet-based communications, called netnography. The results indicate that in the process through which a carer role is acquired, a significant change in self-perception occurs. The presence or absence of recognition for the older carers’ capacity, is understood as filtered through the needs of the cared for person, making the carer identity into an invisible self. At the same time, the opportunity for online communication may help to create a virtual space of social recognition through which negative and positive experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility to be recognized, and feel empowered by other carers.

Place, publisher, year, edition, pages
Oxford University Press, 2017
National Category
Sociology Nursing
Research subject
Social Sciences, Sociology
Identifiers
urn:nbn:se:lnu:diva-67294 (URN)10.1093/geroni/igx004.1659 (DOI)
Conference
21st IAGG World Congress of Gerontology and Geriatrics, San Francisco, California, USA, July 23-27, 2017
Note

Poster

Available from: 2017-08-17 Created: 2017-08-17 Last updated: 2020-11-18Bibliographically approved
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