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Hanson, Elizabeth
Publications (10 of 131) Show all publications
Santini, S., Socci, M., D’Amen, B., Boccaletti, L., Becker, S., Lewis, F., . . . Hanson, E. (2019). Adolescent young caregivers of older, sick or disabled family members. Evidence from the ‘ME-WE’ European project online survey in Italy. In: : . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 2019, 23- 25 May Gothenburg.
Open this publication in new window or tab >>Adolescent young caregivers of older, sick or disabled family members. Evidence from the ‘ME-WE’ European project online survey in Italy
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2019 (English)Conference paper, Oral presentation with published abstract (Refereed)
National Category
Medical and Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84703 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, 23- 25 May Gothenburg
Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-06-07
Hanson, E., Sennemark, E. & Magnusson, L. (2019). Anhörigas delaktighet och behov (1 uppl.ed.). In: Mirjam Ekstedt & Maria Flink (Ed.), Hemsjukvård: olika perspektiv på trygg och säker vård (pp. 209-226). Stockholm: Liber
Open this publication in new window or tab >>Anhörigas delaktighet och behov
2019 (Swedish)In: Hemsjukvård: olika perspektiv på trygg och säker vård / [ed] Mirjam Ekstedt & Maria Flink, Stockholm: Liber, 2019, 1 uppl., p. 209-226Chapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Liber, 2019 Edition: 1 uppl.
National Category
Nursing
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-75898 (URN)9789147112777 (ISBN)
Available from: 2018-06-14 Created: 2018-06-14 Last updated: 2019-05-20Bibliographically approved
Berghamre Heinz, A., Magnusson, L., Hanson, E. & Furenbäck, I. (2019). Barn som anhöriga: Alla barn ska få möjlighet till hälsa och personlig utveckling. Kalmar: Nationellt kompetenscentrum för anhöriga
Open this publication in new window or tab >>Barn som anhöriga: Alla barn ska få möjlighet till hälsa och personlig utveckling
2019 (Swedish)Report (Other academic)
Abstract [sv]

Alla barn och unga har rätt att växa upp under trygga och goda förhållanden och få det skydd och stöd som kan behövas för en gynnsam fysisk och social utveckling. Vad gäller barn som anhöriga utsätts de för mångfaldigt större risker att drabbas av såväl sjukdom som sociala problem jämfört med andra barn. Samhället kan gemensamt verka förebyggande genom att minska risk- och stärka skyddsfaktorer för barnen och deras familjer och utveckla och systematiskt följa upp riktade stödinsatser för barnen. Genom utveckling av organisatoriska strukturer och rutiner, enskilda initiativ och engagemang kan bättre förutsättningar för alla barn stärkas. Nka arbetar för att bidra till sådant stöd att närståendes svårigheter inte inkräktar på barnets hälsa, utveckling och skolgång. I denna folder finner Ni flera intressanta exempel på rutiner och insatser till barn som anhöriga. Låt er inspireras och vara delaktiga i detta viktiga uppdrag, att alla barn ska få möjlighet till hälsa, personlig utveckling, utbildning och social delaktighet.

Place, publisher, year, edition, pages
Kalmar: Nationellt kompetenscentrum för anhöriga, 2019. p. 24
National Category
Health Sciences
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-73115 (URN)978-91-87731-59-4 (ISBN)
Available from: 2018-04-20 Created: 2018-04-20 Last updated: 2019-05-28Bibliographically approved
Andréasson, F., Aidermark, J., Magnusson, L., Strömberg, A. & Hanson, E. (2019). Lifeworld in co-designing with informal carers. Journal of Enabling Technologies, 13(1), 29-39
Open this publication in new window or tab >>Lifeworld in co-designing with informal carers
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2019 (English)In: Journal of Enabling Technologies, Vol. 13, no 1, p. 29-39Article in journal (Refereed) Published
Abstract [en]

Purpose

The purpose of this paper is to reflect on carers’ experiences of being involved in the development of a web-based support programme for carers of people with heart failure (CPwHF), and discuss the challenges related to their involvement in the development process. The focus was on the different phases in the project as well as the methodological challenges and opportunities that occurred in the user group sessions conducted.

Design/methodology/approach

This research adopt an explorative design studying a co-design process to develop an information and communication technology based support programme for and with CPwHF. Habermas’ concepts of lifeworld and system are used as a theoretical framework to analyse the co-design process employed in the study.

Findings

Reflecting on the co-design approach adopted, the findings highlight the methodological challenges that arise with carer involvement and the possible tensions that occur between researchers’ ambitions to include users in the design process, and the goal of developing a product or service, in the different phases of the design process.

Originality/value

Findings highlight that there is a tension between the system and lifeworld in the co-design process which are not totally compatible. The paper highlights that there is a need to develop flexible and reflexive human-centred design methodologies, able to meet carers’ needs and ideas, and at the same time balance this with proposed research outcomes.

National Category
Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84584 (URN)
Available from: 2019-06-04 Created: 2019-06-04 Last updated: 2019-06-04
Johansson, M., Wåhlin, I., Magnusson, L. & Hanson, E. (2019). Nursing staff's experiences of intensive care unit diaries: a qualitative study.. Nursing in Critical Care
Open this publication in new window or tab >>Nursing staff's experiences of intensive care unit diaries: a qualitative study.
2019 (English)In: Nursing in Critical Care, ISSN 1362-1017, E-ISSN 1478-5153Article in journal (Refereed) Epub ahead of print
Abstract [en]

BACKGROUND: Diaries as an intervention to aid psychological recovery among intensive care patients have been used for about 20 years, and findings tend to be positive. The provision of a diary directed at the patient may clarify the story of the intensive care unit (ICU) even for the family members and the family members of non-survivors. Members of nursing staff are the primary authors, but how they themselves experience the use of ICU diaries has been minimally explored.

AIMS AND OBJECTIVES: This study aimed to explore how nursing staff experienced the use of ICU patient diaries.

DESIGN: Qualitative design using focus group interviews.

METHODS: A qualitative methodology was used. Six focus group interviews were conducted with 27 nursing staff recruited from one university and two county hospitals. The data were analysed via thematic content analysis.

FINDINGS: One overarching theme, 'An effort to do good in words and actions', and four interconnected themes were derived from the analysis. By creating the diary, nursing staff had to deal with a variety of ethical and practical dilemmas, but feedback from patients, family members and ICU follow-up services reinforced the feeling of doing good. This overarching feeling of beneficence encouraged diary authoring and increased motivation and commitment to strive towards excellent patient care. To sustain the use of ICU diaries, collegiate and organizational support was deemed essential.

CONCLUSIONS: Nursing staff strived to do good in words and actions for patients and their families when writing the diaries. Positive feedback from patients, family members and ICU follow-up services reinforced feelings of doing good, which served to enhance work satisfaction and a commitment to good-quality nursing care. Experiential-based education was recommended to help sustain ICU diary writing.

RELEVANCE TO CLINICAL PRACTICE: Nursing staff requested mentoring and group discussions concerning the format, content and communication channels of the diary.

Keywords
Diaries, Experiences, ICU, Nursing staff, Qualitative, Thematic content analysis
National Category
Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84583 (URN)10.1111/nicc.12416 (DOI)30680873 (PubMedID)
Available from: 2019-06-04 Created: 2019-06-04 Last updated: 2019-06-04
Hanson, E., Centola, F., Leu, A., Nap, H. & Lewis, F. (2019). Promoting mental health among adolescent young carers in Europe. The EU funded ME-WE project. In: Symposium chair, ‘It takes a village’: . Paper presented at International Conference-Families experiencing substance abuse, mental or physical health problems, 14-16 May Oslo.
Open this publication in new window or tab >>Promoting mental health among adolescent young carers in Europe. The EU funded ME-WE project
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2019 (English)In: Symposium chair, ‘It takes a village’, 2019Conference paper, Oral presentation with published abstract (Refereed)
National Category
Medical and Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84705 (URN)
Conference
International Conference-Families experiencing substance abuse, mental or physical health problems, 14-16 May Oslo
Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-06-07
Hanson, E. & Magnusson, L. (2019). Quality of care from a carer perspective. In: Eurocarers Symposium presentation: . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 23- 25 May 2019, Gothenburg.
Open this publication in new window or tab >>Quality of care from a carer perspective
2019 (English)In: Eurocarers Symposium presentation, 2019Conference paper, Oral presentation with published abstract (Refereed)
National Category
Medical and Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84702 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 23- 25 May 2019, Gothenburg
Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-06-07
Ewertzon, M. & Hanson, E. (2019). Support Interventions for Family Members of Adults with Mental Illness: A Narrative Literature Review.. Issues in Mental Health Nursing, 30, 1-13
Open this publication in new window or tab >>Support Interventions for Family Members of Adults with Mental Illness: A Narrative Literature Review.
2019 (English)In: Issues in Mental Health Nursing, ISSN 0161-2840, E-ISSN 1096-4673, Vol. 30, p. 1-13Article in journal (Refereed) Epub ahead of print
Abstract [en]

The aim of this review was to describe research related to support interventions for adult family members of people with mental illness and the significance that support may have. The results indicate the importance of flexible and individualized forms of support from both professionals and people with personal experience as a family member of someone with mental illness. In many cases, the intervention studies revealed that family members' burden decreased, their knowledge of the disease and treatment increased, and their ability to cope with the situation was improved. The results highlight the importance of support both from professionals and peers.

National Category
Health Sciences
Identifiers
urn:nbn:se:lnu:diva-84580 (URN)10.1080/01612840.2019.1591547 (DOI)31145025 (PubMedID)
Available from: 2019-06-04 Created: 2019-06-04 Last updated: 2019-06-04
Hanson, E., Hellström, A., Sandvide, Å., Jackson, G. A., MacRae, R., Waugh, A., . . . Tolson, D. (2019). The extended palliative phase of dementia: an integrative literature review. Dementia, 18(1), 108-134
Open this publication in new window or tab >>The extended palliative phase of dementia: an integrative literature review
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2019 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 18, no 1, p. 108-134Article, review/survey (Refereed) Published
Abstract [en]

This article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consistent definition of advanced dementia. The extended palliative phase was generally synonymous with end-of-life care. Advanced care planning is purported to enable professionals to work together with people with dementia and their families. A lack of understanding of palliative care among frontline practitioners was related to a dearth of educational opportunities in advanced dementia care. There are few robust concepts and theories that embrace living the best life possible during the later stages of dementia. These findings informed our subsequent work around the concept, ‘Dementia Palliare’.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Advanced dementia, Integrative literature review, Palliare, Palliative care
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-61510 (URN)10.1177/1471301216659797 (DOI)000456465500007 ()
Available from: 2017-03-21 Created: 2017-03-21 Last updated: 2019-02-26Bibliographically approved
Hanson, E., Yghemonos, S., Yeandle, S., Lamura, G., Cès, S., Hlebec, V., . . . Magnusson, L. (2019). Towards carer-friendly systems in the European Union: the EU pillar of social rights as a framework for evidence-based policymaking- findings from the Eurocarers Research Working Group. In: Symposium chair: . Paper presented at International Association of Gerontology and Geriatrics European Region Congress 23-25 May Gothenburg.
Open this publication in new window or tab >>Towards carer-friendly systems in the European Union: the EU pillar of social rights as a framework for evidence-based policymaking- findings from the Eurocarers Research Working Group
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2019 (English)In: Symposium chair, 2019Conference paper, Oral presentation with published abstract (Refereed)
National Category
Medical and Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-84700 (URN)
Conference
International Association of Gerontology and Geriatrics European Region Congress 23-25 May Gothenburg
Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-06-07
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