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Hanson, Elizabeth
Publications (10 of 108) Show all publications
Hanson, E., Hellström, A., Sandvide, Å., Jackson, G. A., MacRae, R., Waugh, A., . . . Tolson, D. (2019). The extended palliative phase of dementia: an integrative literature review. Dementia, 18(1), 108-134
Open this publication in new window or tab >>The extended palliative phase of dementia: an integrative literature review
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2019 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 18, no 1, p. 108-134Article, review/survey (Refereed) Published
Abstract [en]

This article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consistent definition of advanced dementia. The extended palliative phase was generally synonymous with end-of-life care. Advanced care planning is purported to enable professionals to work together with people with dementia and their families. A lack of understanding of palliative care among frontline practitioners was related to a dearth of educational opportunities in advanced dementia care. There are few robust concepts and theories that embrace living the best life possible during the later stages of dementia. These findings informed our subsequent work around the concept, ‘Dementia Palliare’.

Place, publisher, year, edition, pages
Sage Publications, 2019
Keywords
Advanced dementia, Integrative literature review, Palliare, Palliative care
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-61510 (URN)10.1177/1471301216659797 (DOI)000456465500007 ()
Available from: 2017-03-21 Created: 2017-03-21 Last updated: 2019-02-07Bibliographically approved
Hanson, E., Sennemark, E. & Magnusson, L. (2018). Anhörigas roll (In pressed.). In: Ekstedt, M (Ed.), Hemsjukvård: . Stockholm: Liber
Open this publication in new window or tab >>Anhörigas roll
2018 (Swedish)In: Hemsjukvård / [ed] Ekstedt, M, Stockholm: Liber, 2018, In pressChapter in book (Other academic)
Place, publisher, year, edition, pages
Stockholm: Liber, 2018 Edition: In press
National Category
Health Sciences
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-75898 (URN)
Available from: 2018-06-14 Created: 2018-06-14 Last updated: 2018-06-14
Andréasson, F., Andreasson, J. & Hanson, E. (2018). Developing a carer identity and negotiating everyday life through social networking sites: An explorative study on identity constructions in an online Swedish carer community. Ageing & Society, 38(11), 2304-2324
Open this publication in new window or tab >>Developing a carer identity and negotiating everyday life through social networking sites: An explorative study on identity constructions in an online Swedish carer community
2018 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 38, no 11, p. 2304-2324Article in journal (Refereed) Published
Abstract [en]

An overarching reason why carers do not utilise support services is that many people who perform care-giving do not necessarily self-identify as a carer. Understanding the development of carer identities is therefore crucial for the utilisation of different carer-focused health services. This study arose from the European Union-funded INNOVAGE project and aimed to describe how older carers conceptualise and understand their identity as carers on a Swedish online social forum. Theoretically the study adopts a constructionist approach and the method of netnography was applied. The findings reveal that a change in self-perception occurs in the process through which a carer role is acquired. The presence or absence of recognition for the older carers’ capacity, knowledge and life situation is seen as filtered through the needs of the care recipient, making the carer identity into an invisible self. This is not least the case when the identity is constructed in alliance with conceptual and moral obligations found within a marital discourse. Nevertheless, the opportunity for online communication may help to create a virtual space of social recognition through which different experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility it presents for carers to be recognised by other carers. It is a process through which an invisible self can become visible.

Place, publisher, year, edition, pages
Cambridge University Press, 2018
National Category
Nursing Sociology
Research subject
Social Sciences, Sociology
Identifiers
urn:nbn:se:lnu:diva-64980 (URN)10.1017/S0144686X17000551 (DOI)000446465900006 ()
Available from: 2017-06-08 Created: 2017-06-08 Last updated: 2018-11-01Bibliographically approved
Lillo-Crespo, M., Riquelme, J., Macrae, R., De Abreu, W., Hanson, E., Holmerova, I., . . . Tolson, D. (2018). Experiences of advanced dementia care in seven European countries: implications for educating the workforce. Global Health Action, 11(1), Article ID 1478686.
Open this publication in new window or tab >>Experiences of advanced dementia care in seven European countries: implications for educating the workforce
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2018 (English)In: Global Health Action, ISSN 1654-9716, E-ISSN 1654-9880, Vol. 11, no 1, article id 1478686Article in journal (Refereed) Published
Abstract [en]

Background: There is a paucity of robust research concerning the care experiences of peoplewith advanced dementia within Europe. It is essential to understand these experiences if weare to address care inequalities and create impactful dementia policies to improve servicesthat support individuals and enable family caring. Objectives: To identify the strengths and weaknesses in daily life perceived by people with dementia and family caring across Europe by exemplifying experiences and the range of typical care settings for advanced dementia care in seven partner countries. Methods: Twenty two in-depth qualitative case studies were completed in seven European countries across a range of care settings considered typical within that country. Narrative accounts of care illuminated a unique set of experiences and highlighted what was working well (strengths or positive aspects) and not so well (weaknesses or negative aspects) for people with advanced dementia and family caring. A constant comparative method of analysis through thematic synthesis was used to identify the common themes. Results: Eight key themes were identified; Early diagnosis, good coordination between service providers, future planning, support and education for carers, enabling the person with dementia to live thebest life possible and education on advanced dementia for professional and family caregiverswere all significant and recurring issues considered important for care experiences to bepositive. Conclusion: People with advanced dementia may have limited opportunities for self-realization and become increasingly reliant on the support of others to maximize their health and well-being. Careful attention must be given to their psychosocial well-being, living environment and family caring to enable them to live the best life possible. Building on what the case studies tell us about what works well, we discuss the potential for integrating the findings into interprofesional learning solutions for the professional workforce across Europe to champion practice-based change.

Place, publisher, year, edition, pages
Taylor & Francis, 2018
Keywords
Dementia, Alzheimer disease, case study, caregivers, quality improvement
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-77375 (URN)10.1080/16549716.2018.1478686 (DOI)000441642700001 ()30099937 (PubMedID)
Available from: 2018-08-30 Created: 2018-08-30 Last updated: 2018-08-30Bibliographically approved
Johansson, M., Wåhlin, I., Magnusson, L., Runeson, I. & Hanson, E. (2018). Family members' experiences with intensive care unit diaries when the patient does not survive. Scandinavian Journal of Caring Sciences, 32(1), 233-240
Open this publication in new window or tab >>Family members' experiences with intensive care unit diaries when the patient does not survive
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2018 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 32, no 1, p. 233-240Article in journal (Refereed) Published
Abstract [en]

OBJECTIVE: The aim of the study was to explore how family members experienced the use of a diary when a relative does not survive the stay in the intensive care unit (ICU).

METHOD: A qualitative method with a hermeneutic approach was used. Nine participants who read/wrote eight diaries in total were interviewed. The collected data were analysed using a hermeneutic technique inspired by Geanellos.

FINDINGS: The analysis revealed an overall theme 'the diary was experienced as a bridge connecting the past with the future', which was a metaphor referring to the temporal aspect where there was the period with the diary up until the patient's death and then the postbereavement period. The diary contributed to both a rational and emotional understanding of the death of the patient and disclosed glimmers of light that still existed before the illness deteriorated. Further, the diary bridged the space between family members themselves and between family and nursing staff. It helped to maintain a feeling of togetherness and engagement in the care of the patient which family members found comforting.

CONCLUSION: Family members of nonsurvivors had a need to have the ICU time explained and expressed. The diary might work as a form of 'survival kit' to gain coherence and understanding; to meet their needs during the hospital stay; and, finally, to act as a bereavement support by processing the death of the patient.

Place, publisher, year, edition, pages
John Wiley & Sons, 2018
Keywords
Gadamer, Diaries, Experiences, Family members, Hermeneutics, Intensive care unit, Relatives
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-68205 (URN)10.1111/scs.12454 (DOI)000426524200023 ()28524380 (PubMedID)
Available from: 2017-10-04 Created: 2017-10-04 Last updated: 2018-03-29Bibliographically approved
Lindqvist, G. & Hanson, E. (2018). Informal caregivers who are interested and do make use of information and communication technologies. Clinical Nursing Studies, 6(4), 12-22
Open this publication in new window or tab >>Informal caregivers who are interested and do make use of information and communication technologies
2018 (English)In: Clinical Nursing Studies, ISSN 2324-7940, E-ISSN 2324-7959, Vol. 6, no 4, p. 12-22Article in journal (Refereed) Published
Abstract [en]

Objective: The aim of the study was to highlight informal caregivers’ interest in using the Information and Communication Technology (ICT)-based ACTION service (Assisting Carers using Telematics Interventions to meet Older People’s Needs) and their ideas for how to further develop and extend the service. The use of ICT is constantly increasing worldwide. Europe has the highest old age dependency ratio, but other parts of the world are also experiencing a dramatic ageing of their population. The demands for care are increasing, and resources are shrinking. One way to support informal caregivers is through ICT.

Methods: The study employed a qualitative design. Focus group interviews were carried out with informal caregivers in Sweden. The interviews were analysed using a latent content analysis method.

Results: The analysis yielded a major theme, striving to feel confident, with four categories: informal caregivers’ reflections and ideas about ICT; promoting their own health process; increasing their knowledge bank and informal caregivers’ rights; and striving for inclusiveness.

Conclusions: The present study highlights the challenges that informal caregivers face in their daily life as well as their resources to devise possible solutions that could improve their situation. To preserve their health, a carer support plan including regular health checks could be helpful. ICT-based support (such as the ACTION service) could act as a way forward for supporting informal caregivers in their striving to feel confident. The study highlighted that ICT-based support has the potential to act as a direct benefit for informal caregivers.

Place, publisher, year, edition, pages
Sciedu Press, 2018
National Category
Nursing
Identifiers
urn:nbn:se:lnu:diva-73730 (URN)10.5430/cns.v6n4p12 (DOI)
Available from: 2018-04-27 Created: 2018-04-27 Last updated: 2018-05-02Bibliographically approved
Barbabella, F., Poli, A., Hanson, E., Andréasson, F., Salzmann, B., Doehner, H., . . . Lamura, G. (2018). Usage and Usability of a Web-based Program for Family Caregivers of Older People in Three European Countries: A Mixed-Methods Evaluation. Computers, Informatics, Nursing, 36(5), 232-241
Open this publication in new window or tab >>Usage and Usability of a Web-based Program for Family Caregivers of Older People in Three European Countries: A Mixed-Methods Evaluation
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2018 (English)In: Computers, Informatics, Nursing, ISSN 1538-2931, E-ISSN 1538-9774, Vol. 36, no 5, p. 232-241Article in journal (Refereed) Published
Abstract [en]

InformCare is a European Web platform that supports informal caregivers of older people by providing access to online information and professional and peer support. The aim of this study was to assess the usage and usability of a psychosocial Web-based program carried out in three European countries (Italy, Sweden, and Germany). A mixed-methods sequential explanatory design was adopted, comprising baseline and postintervention assessments, as well as combined thematic content analysis of results and focus group findings. A convenience sample of 118 caregivers was enrolled, of whom 94 used the services offered by the program at least once. The subsamples in the three countries used the platform in different ways, with a predominance of passive strategies (eg, seeking information and reading other people's comments) for Italian caregivers, and more active usage by Swedish and German caregivers. The usability assessment showed that the platform was perceived well by Italian and German caregivers, whereas technical problems affected the Swedish sample's experiences. Focus group data highlighted user satisfaction with the online support and reliability of the environment. Recommendations for practitioners are to ensure digital training for caregivers who have lower confidence in use of the Internet, to involve different healthcare professionals in the provision of professional support, and to adequately manage online community building.

Place, publisher, year, edition, pages
Lippincott Williams & Wilkins, 2018
Keywords
Caregivers, Frail elderly, Health education, Internet, Social support
National Category
Nursing
Research subject
Health and Caring Sciences, Health Informatics
Identifiers
urn:nbn:se:lnu:diva-76813 (URN)10.1097/CIN.0000000000000422 (DOI)000431738300005 ()29505433 (PubMedID)
Available from: 2018-07-11 Created: 2018-07-11 Last updated: 2018-07-11Bibliographically approved
Bergström, A. L. & Hanson, E. (2017). An integrative review of information and communication technology based support interventions for carers of home dwelling older people. Technology and Disability, 29(1-2), 1-14
Open this publication in new window or tab >>An integrative review of information and communication technology based support interventions for carers of home dwelling older people
2017 (English)In: Technology and Disability, ISSN 1055-4181, E-ISSN 1878-643X, Vol. 29, no 1-2, p. 1-14Article in journal (Refereed) Published
Abstract [en]

BACKGROUND A growing number of studies of informal carers of older people reveal positive results concerning support via Information and Communication Technologies (ICT). Systematic examination of factors that have a potential impact on carer outcomes are needed to inform future research.

OBJECTIVE To explore studies concerning ICT support of adult carers of older people and to identify study characteristics that have a potential impact on carer outcomes.

METHODS This integrative review includes 123 studies published since 2005. Fundamental questions for designing sensitive support interventions; ‘who, what, and how’ were applied to a synthesis of the results.

RESULTS Identified characteristics from the studies responding to the who question included variables of the carers, such as their relationship with the care recipient or their ethnicity. Characteristics related to the what question related to the types of interventions, and the how question concerned the different services or programs offered, the idiosyncratic needs of the carers, and the types of technologies used.

CONCLUSION Results are discussed according to micro, meso and macro levels of analysis. This extensive review can inform future studies and highlight the evidence in the area for decision makers, practitioners and/or NGOs working with innovative forms of support for carers of older people

Place, publisher, year, edition, pages
IOS Press, 2017
Keywords
Adult, Aged, Family caregivers, Internet, Review, Social support, Technology
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-72280 (URN)10.3233/TAD-160158 (DOI)
Available from: 2018-04-06 Created: 2018-04-06 Last updated: 2018-11-01Bibliographically approved
Hanson, E. & Starr, M. (2017). Care and caring: future-proofing the new demographics (The 6th International Carers Conference). Paper presented at The 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015. International Journal of Care and Caring, 1(1), 143-146
Open this publication in new window or tab >>Care and caring: future-proofing the new demographics (The 6th International Carers Conference)
2017 (English)In: International Journal of Care and Caring, ISSN 2397-8821, Vol. 1, no 1, p. 143-146Article in journal, Meeting abstract (Other academic) Published
Place, publisher, year, edition, pages
Policy Press, 2017
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-72703 (URN)10.1332/239788217X14867302343633 (DOI)
Conference
The 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015
Available from: 2018-04-13 Created: 2018-04-13 Last updated: 2018-04-13Bibliographically approved
Hjern, A., Berg, L., Arat, A., Klöfvermark, J., Manhica, H., Rostila, M., . . . Hanson, E. (2017). Children as next of kin in Sweden. Kalmar: Nationellt kompetenscentrum anhöriga
Open this publication in new window or tab >>Children as next of kin in Sweden
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2017 (English)Report (Other academic)
Abstract [sv]

Översikten är en sammanfattning av åtta rapporter om barn som anhöriga i Sverige. Rapporterna har gjorts inom ramen för ett regeringsuppdrag om ett brett nationellt utvecklingsarbete där Socialstyrelsen, Folkhälsomyndigheten och Sveriges Kommuner och Landsting samarbetar för att stärka stödet till barn och unga i familjer med missbruk, allvarlig sjukdom eller psykisk ohälsa, eller då en förälder avlider.

Place, publisher, year, edition, pages
Kalmar: Nationellt kompetenscentrum anhöriga, 2017. p. 31
Series
Nka Rapport ; 2017:2
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-73118 (URN)978-91-87731-49-5 (ISBN)
Available from: 2018-04-20 Created: 2018-04-20 Last updated: 2018-12-05Bibliographically approved
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