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Odzakovic, E., Eliasson, A., Jansson, P., Lagerqwist, M., Fridlund, B., Jonasson, L.-L., . . . Broström, A. (2025). Prerequisites for self-care actions in individuals with restless legs syndrome - A deductive qualitative analysis based on the COM-B model. Journal of Health Psychology
Open this publication in new window or tab >>Prerequisites for self-care actions in individuals with restless legs syndrome - A deductive qualitative analysis based on the COM-B model
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2025 (English)In: Journal of Health Psychology, ISSN 1359-1053, E-ISSN 1461-7277Article in journal (Refereed) Epub ahead of print
Abstract [en]

Restless Legs Syndrome (RLS) affects 3% of the world's population, causing tingling sensations primarily in the legs. Incorporating self-care activities could improve the management of RLS symptoms, yet knowledge about effective self-care actions is limited. This study employs the Capability, Opportunity, and Motivation-Behaviour (COM-B) model to explore self-care behaviours in individuals with RLS, as research in this area is sparse. Qualitative content analysis of interviews with 28 participants with RLS, 26 subcategories emerged, aligning with the COM-B model's components. The first part, Capability, highlighted the importance of being able to be in motion, while the second, Opportunity referred to situations where there was a lack of trust and guidance for self-care. The third part, Motivation, emphasised the importance of fixed routines of sleep, rest, and activity. These identified prerequisites can inform the development of screening instruments and patient-reported outcome measures to evaluate self-care needs and interventions for individuals with RLS.

Place, publisher, year, edition, pages
Sage Publications, 2025
Keywords
self-care, COM-B, counselling, capability, opportunity, motivation, restless legs syndrome, sleep, behaviour, qualitative content analysis
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-136887 (URN)10.1177/13591053251315379 (DOI)001410156300001 ()39888005 (PubMedID)2-s2.0-85216799706 (Scopus ID)
Available from: 2025-02-18 Created: 2025-02-18 Last updated: 2025-06-12
Pettersen, T. R., Schjøtt, J., Allore, H., Bendz, B., Borregaard, B., Fridlund, B., . . . Norekvål, T. M. (2024). Discharge Information About Adverse Drug Reactions Indicates Lower Self-Reported Adverse Drug Reactions and Fewer Concerns in Patients After Percutaneous Coronary Intervention. Heart, Lung and Circulation, 33(3), 350-361
Open this publication in new window or tab >>Discharge Information About Adverse Drug Reactions Indicates Lower Self-Reported Adverse Drug Reactions and Fewer Concerns in Patients After Percutaneous Coronary Intervention
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2024 (English)In: Heart, Lung and Circulation, ISSN 1443-9506, E-ISSN 1444-2892, Vol. 33, no 3, p. 350-361Article in journal (Refereed) Published
Abstract [en]

Aim

There are discrepancies between the information patients desire about adverse drug reactions (ADRs) and the information they receive from healthcare providers; this is an impediment to shared decision-making. This study aimed to establish whether patients received information about ADRs resulting from prescribed pharmacotherapy, before hospital discharge, after percutaneous coronary intervention (PCI) and to determine whether receiving information about ADRs was associated with incidence of self-reported ADRs or concerns related to prescribed pharmacotherapy.

Methods

CONCARDPCI, a prospective multicentre cohort study including 3,417 consecutive patients after PCI, was conducted at seven high-volume referral PCI centres in two Nordic countries. Clinical data were collected from patients’ medical records and national quality registries. Patient-reported outcome measures were registered 2 months (T1), 6 months (T2), and 12 months (T3) after discharge. Covariate-adjusted logistic regression yielded adjusted odds ratios (aORs) with 95% confidence intervals (CIs).

Results

At discharge, 38% of participants had been informed about potential ADRs. For these patients, the incidence of self-reported ADRs was significantly lower at T1 (aOR 0.61, 95% CI 0.50–0.74; p<0.001), T2 (aOR 0.60, 95% CI 0.49–0.74; p<0.001), and T3 (aOR 0.57, 95% CI 0.46–0.71; p<0.001). Those who were not informed reported higher levels of concern about prescribed pharmacotherapy at all measuring points (p<0.001 for all comparisons). Those living alone (aOR 0.73, 95% CI 0.57–0.92; p=0.008), who were female (aOR 0.57, 95% CI 0.44–0.72; p<0.001), and with three or more versus no comorbidities (aOR 0.61, 95% CI 0.44–0.84; p=0.002) were less likely to receive information.

Conclusion

A substantial proportion of patients were not informed about potential ADRs from prescribed pharmacotherapy after PCI. Patients informed about ADRs had lower incidences of self-reported ADRs and fewer concerns about prescribed pharmacotherapy.

Place, publisher, year, edition, pages
Elsevier, 2024
National Category
Social and Clinical Pharmacy Health Sciences
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-128664 (URN)10.1016/j.hlc.2023.12.005 (DOI)001226268100001 ()2-s2.0-85183118968 (Scopus ID)
Available from: 2024-04-08 Created: 2024-04-08 Last updated: 2024-06-14Bibliographically approved
Lantz, E., Nilsson, B., Elmqvist, C., Fridlund, B. & Svensson, A. (2024). Experiences and actions of part-time firefighters’ family members: a critical incident study. BMJ Open, 14, Article ID e086170.
Open this publication in new window or tab >>Experiences and actions of part-time firefighters’ family members: a critical incident study
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2024 (English)In: BMJ Open, E-ISSN 2044-6055, Vol. 14, article id e086170Article in journal (Refereed) Published
Abstract [en]

Objectives The purpose of this study was to describe the experiences and actions of part-time firefighters’ family members in rural areas in Sweden.Design The study had an inductive descriptive design and used the critical incident technique.Setting Rural areas, primarily served by a part-time fire station, across Sweden.Participants The study included 25 participants (21 females and 4 males) with experiences of being a family member of a part-time firefighter. Family members who themselves served as firefighters were excluded.Results Being a part-time firefighter’s family member was described into three main areas of experiences: ‘affecting everyday life’, ‘dealing with uncertainty’ and ‘being in this together’. Actions taken were divided into two main areas: ‘pursuing adaptations’ and ‘alleviating difficulties’.Conclusions Family members of part-time firefighters faced increased responsibility at home, managing personal inconvenience and frustration. They offered emotional support for the firefighter, however, expressing a need for guidance on handling firefighters’ emotions and mental health after call-outs. Despite their crucial role, they often felt unrecognised by the fire and rescue service. Nonetheless, they took pride in their firefighter’s contribution to the community and noted positive impacts on the family.

Place, publisher, year, edition, pages
BMJ Publishing Group Ltd, 2024
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-132280 (URN)10.1136/bmjopen-2024-086170 (DOI)001307833900001 ()2-s2.0-85203420146 (Scopus ID)
Funder
The Kamprad Family Foundation
Available from: 2024-09-06 Created: 2024-09-06 Last updated: 2024-09-20Bibliographically approved
Odzakovic, E., Allgurin, M., Jonasson, L.-L., Öberg, S., Fridlund, B., Ulander, M., . . . Broström, A. (2024). Experiences of facilitators and barriers for fulfilment of human needs when living with restless legs syndrome: a qualitative study. International Journal of Qualitative Studies on Health and Well-being, 19(1), Article ID 2348884.
Open this publication in new window or tab >>Experiences of facilitators and barriers for fulfilment of human needs when living with restless legs syndrome: a qualitative study
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2024 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 19, no 1, article id 2348884Article in journal (Refereed) Published
Abstract [en]

Purpose: Restless Legs Syndrome (RLS) is a widespread condition that affects sleep leading to daytime sleepiness, depression, and reduced quality of life. This study aims to determine and describe how patients with RLS experience their everyday life, with a focus on facilitators and barriers related to Maslow's hierarchical theory of human needs.

Method: Semi-structured interviews were analysed with qualitative content analysis resulting in facilitators and barriers affecting the fulfilment of the five human needs.

Results: Addressing RLS symptoms through medications and a quiet sleep environment fulfils psychological needs. Control over RLS symptoms, engagement in activities, trust in treatments, and social support meet safety and security needs. Social inclusion, close relationships, and meaningful interactions fulfil a sense of belongingness and love needs despite RLS. Competence in managing RLS, effective self-care strategies, confident communication, and trust-building support esteem needs. Finally, comprehensive understanding through person-centred interventions and coping fulfils the self-actualization needs in managing RLS.

Conclusion: Holistic and person-centred interventions, including facilitators for the fulfilment of physiological, psychological, and social needs could help healthcare professionals to provide holistic care.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2024
Keywords
Human needs, patient-centred, qualitative content analysis, restless legs syndrome, Willis Ekbom disease, Wittmaack Ekbom syndrome
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-129616 (URN)10.1080/17482631.2024.2348884 (DOI)001221821900001 ()38735061 (PubMedID)2-s2.0-85192906923 (Scopus ID)
Available from: 2024-05-28 Created: 2024-05-28 Last updated: 2025-02-26Bibliographically approved
Björcman, F., Nilsson, B., Elmqvist, C., Fridlund, B., Blom, Å. & Svensson, A. (2024). Fire and Rescue Services’ Interaction with Private Forest Owners During Forest Fires in Sweden: The Incident Commanders’ Perspective. Fire, 7(12), Article ID 425.
Open this publication in new window or tab >>Fire and Rescue Services’ Interaction with Private Forest Owners During Forest Fires in Sweden: The Incident Commanders’ Perspective
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2024 (English)In: Fire, E-ISSN 2571-6255, Vol. 7, no 12, article id 425Article in journal (Refereed) Published
Abstract [en]

Forest fires, i.e., wildfires, often cause an inevitable strain on society and human living conditions. Incident Commanders (IC) at the Fire and Rescue Services (FRS) are challenged to handle forest fires and at the same time address the forest owners’ needs; this stipulates a need for collaboration, information, and communication. Hence, the aim of this study was to explore and describe the ICs’ experiences and actions in their interactions with forest owners during forest fires on private property. Interviews were conducted and analyzed using Flanagan’s Critical Incident Technique (CIT) to describe the experiences and actions of 22 ICs. The results showed that a firefighting operation needs clarity in information exchange with the forest owner as a stakeholder, not a victim. The trust between forest owner and IC accelerated the operational phase. The ICs demonstrate more care than the law stipulates, and they worry about the forest owners. Therefore, the FRS needs to form a strategic partnership with forest owners and their network on a local level. Also, future forest fire drills should not only include emergency stakeholders (i.e., police, ambulance, etc.) but also forest owners and local volunteer organizations. For a resilient community, FRS and forest owner collaboration is vital.

Place, publisher, year, edition, pages
MDPI, 2024
Keywords
cooperation, resilience, wildfire, critical incident technique, disaster
National Category
Forest Science
Research subject
Technology (byts ev till Engineering), Forestry and Wood Technology
Identifiers
urn:nbn:se:lnu:diva-133525 (URN)10.3390/fire7120425 (DOI)001384363800001 ()2-s2.0-85213426793 (Scopus ID)
Funder
The Kamprad Family Foundation, 20202001
Available from: 2024-11-25 Created: 2024-11-25 Last updated: 2025-02-11Bibliographically approved
Drakenberg, A., Sundqvist, A.-S., Fridlund, B. & Ericsson, E. (2024). On a healing journey together and apart: A Swedish critical incident technique study on family involvement from a patient perspective in relation to elective open-heart surgery. Scandinavian Journal of Caring Sciences, 38(4), 1018-1029
Open this publication in new window or tab >>On a healing journey together and apart: A Swedish critical incident technique study on family involvement from a patient perspective in relation to elective open-heart surgery
2024 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 38, no 4, p. 1018-1029Article in journal (Refereed) Published
Abstract [en]

Background: As family members affect patient outcomes following open-heart surgery, the objective was to provide updated knowledge on family involvement in to guide future interventions facilitating family involvement.

Aim: The aim was to explore and describe the experiences and actions of important situations of family involvement asexpressed by patients who underwent elective open-heart surgery in Sweden.

Methodological design and justification: The critical incident technique (CIT) was used, which is a qualitative research method suitable for clinical problems when a phenomenon is known but the experiences and consequences of it are not.

Ethical issues and approval: Considerations for patient integrity were made during the recruitment phase by ensuring that voluntary informed consent was obtained in two steps.

Research methods: Individual interviews were conducted with 35 patients who underwent open-heart surgery in Sweden in 2023. Important situations were analysed according to the CIT method.

Results: Two main areas emerged: Patients described important situations of family involvement as experiences of mutual dependency while also being independent individuals. These experiences led to balancing healing and risk-taking activities as a family. The positive consequences of family involvement described by patients included improved recovery through practical help at home and emotional support.

Conclusions: As complements to preserving the existing positive aspects of family involvement, social support screening, the establishment of individualised visitation policies and the provision of professional and peer support earlier can improve patient recovery following open-heart surgery.

Place, publisher, year, edition, pages
John Wiley & Sons, 2024
Keywords
critical incident technique, family involvement, family nursing, family-centred care, open-heart surgery, qualitative research, social support
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-132998 (URN)10.1111/scs.13303 (DOI)001322452000001 ()39317957 (PubMedID)2-s2.0-85204791332 (Scopus ID)
Available from: 2024-10-24 Created: 2024-10-24 Last updated: 2025-02-26Bibliographically approved
Knutsson, S., Bjork, M., Odzakovic, E., Hellström, A., Sandlund, C., Ulander, M., . . . Broström, A. (2024). The ethos brief index-validation of a brief questionnaire to evaluate wellness based on a holistic perspective in patients with restless legs syndrome. Sleep and Breathing, 28(4), 1781-1791
Open this publication in new window or tab >>The ethos brief index-validation of a brief questionnaire to evaluate wellness based on a holistic perspective in patients with restless legs syndrome
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2024 (English)In: Sleep and Breathing, ISSN 1520-9512, E-ISSN 1522-1709, Vol. 28, no 4, p. 1781-1791Article in journal (Refereed) Published
Abstract [en]

Purpose

The aim of this study was to validate the Ethos Brief Index (EBI) in patients with Restless Legs Syndrome (RLS).

Methods

A cross-sectional design, including 788 subjects with RLS (65% women, 70.8 years, SD 11.3) from the Swedish RLS Association, was used. A postal survey was sent out to collect data regarding socio demographics, comorbidities, and RLS-related treatment data. Questionnaires included were EBI, the Restless Legs Syndrome-6 Scale (RLS-6), Restless Legs Syndrome-Quality of Life questionnaire (RLSQoL), the Insomnia Severity Index (ISI), and the Epworth Sleepiness Scale (ESS). The validity and reliability of the EBI were investigated using Rasch and confirmatory factor analysis (CFA) models. Measurement invariance, unidimensionality, and differential item functioning (DIF) across age and gender groups, as well as insomnia, daytime sleepiness, RLS-related QoL and RLS severity were assessed.

Results

The results supported the unidimensionality of the EBI in the CFA (i.e., explaining 61.5% of the variance) and the Rasch model. The reliability of the EBI was confirmed using composite reliability and Cronbach's alpha. No DIF was identified for gender, age, insomnia, daytime sleepiness, RLS severity or RLS-related QoL.

Conclusion

The EBI showed good validity and reliability and operated equivalently for male and female patients with RLS. Accordingly, healthcare professionals can use the EBI as a psychometrically sound tool to explore and identify patient-centered problems related to the whole life situation.

Place, publisher, year, edition, pages
Springer, 2024
Keywords
Restless legs syndrome, Sleep, Validity, Reliability, Ethos
National Category
Nursing Neurology
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-129614 (URN)10.1007/s11325-024-03058-5 (DOI)001220948900001 ()38740633 (PubMedID)2-s2.0-85192879035 (Scopus ID)
Available from: 2024-05-28 Created: 2024-05-28 Last updated: 2025-02-26Bibliographically approved
Holm, M. S., Falun, N., Bendz, B., Fridlund, B., Langorgen, J., Pettersen, T. R., . . . Norekval, T. M. (2024). The patient experience of in-hospital telemetry monitoring: a qualitative analysis. European Journal of Cardiovascular Nursing, 23(3), 258-266
Open this publication in new window or tab >>The patient experience of in-hospital telemetry monitoring: a qualitative analysis
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2024 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 23, no 3, p. 258-266Article in journal (Refereed) Published
Abstract [en]

Aims In-hospital telemetry monitoring has been an integrated part of arrhythmia monitoring for decades. A substantial proportion of patients require arrhythmia monitoring during stays in non-intensive care units. However, studies exploring patients' experiences of telemetry monitoring are scarce. Therefore, the aim was to explore and describe patients' experiences of in-hospital telemetry monitoring in a non-intensive care setting.Methods and results Twenty face-to-face, semi-structured interviews were conducted. Interviews were conducted before discharge at two university hospitals in Norway. The patients were purposively sampled, resulting in a well-balanced population comprising 11 men and nine women, mean age 62 years (range 25-83). Average monitoring time was 9 days (range 3-14). Data were audiotaped, transcribed verbatim, and coded using NVivo software. Qualitative content analysis using an inductive approach was performed. Patients expressed a need for individualized information during telemetry monitoring. Their feelings of safety were related to responses from nurses from the central monitoring station when alarms from the telemetry were triggered. Despite perceived physical restrictions and psychological limitations associated with telemetry monitoring, they found monitoring to be beneficial because it facilitated the diagnosis of arrhythmia. Moreover, they expressed a need for improvements in wearable monitoring equipment. Patients expressed ambivalent feelings about discontinuing the telemetry and their readiness for discharge.Conclusion Patients need individualized information about the results of their telemetry monitoring in order to better understand the arrhythmia management and to increase their experience of safety after discharge. The limitations patients experienced should be taken into consideration in further upgrades of telemetry monitoring equipment.

Place, publisher, year, edition, pages
Oxford University Press, 2024
Keywords
ECG, Qualitative methods, Telemetry monitoring
National Category
Nursing
Research subject
Health and Caring Sciences, Health Informatics; Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-124641 (URN)10.1093/eurjcn/zvad082 (DOI)001057770600001 ()37590960 (PubMedID)2-s2.0-85190477887 (Scopus ID)
Available from: 2023-09-15 Created: 2023-09-15 Last updated: 2025-02-26Bibliographically approved
Instenes, I., Fridlund, B., Borregaard, B., Larsen, A. I., Allore, H., Bendz, B., . . . Norekval, T. M. (2024). 'When age is not a barrier': an explorative study of nonagenarian patients' experiences of undergoing percutaneous coronary intervention. European Journal of Cardiovascular Nursing, 23(6), 608-617
Open this publication in new window or tab >>'When age is not a barrier': an explorative study of nonagenarian patients' experiences of undergoing percutaneous coronary intervention
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2024 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 23, no 6, p. 608-617Article in journal (Refereed) Published
Abstract [en]

Aims The recent rise in the number of nonagenarians (age >= 90 years) undergoing percutaneous coronary intervention (PCI) has revealed gaps in research, in particular on patients' experiences. Therefore, the aim of the study was to explore and describe nonagenarians' internal resources and their experiences of the in-hospital pathway.Methods and results Nineteen nonagenarian patients (women n = 9), mean age 91 years, 9 acutely, and 10 electively treated, were consecutively enrolled from a tertiary university hospital from June 2021 to February 2023. In-depth interviews were conducted during hospitalization, audiotaped and transcribed. The interviews were analysed using qualitative content analysis. Three sub-themes emerged from the nonagenarians' experiences with the PCI treatment trajectory: (i) Taking lifelong responsibility for own physical and mental health describes a population striving to live a healthy life and to stay independent. Physical and mental activities including healthy food choices had been an integral aspect of their lives from early childhood. (ii) Individual internal resources influenced the PCI pathway describes how their internal resources were used, from actively engaging in the decision-making process to withstanding discomfort during the PCI procedure. (iii) The post-PCI pathway was multifaceted describes a short stay at the cardiac ward with individual post-procedural experiences, close monitoring, and preparation for discharge including cardiac rehabilitation.Conclusion Nonagenarians undergoing PCI demonstrated a personal incentive to stay healthy and independent. Their internal resources of independence, stoicism, and resilience were used during their in-hospital stay contributing to a successful PCI procedure. Individual cardiac rehabilitation strategies were highlighted after discharge from hospital. Graphical Abstract

Place, publisher, year, edition, pages
Oxford University Press, 2024
Keywords
Nonagenarian patients, Coronary artery disease, Percutaneous coronary intervention, Cardiac rehabilitation strategies, Quality of care
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-127394 (URN)10.1093/eurjcn/zvad132 (DOI)001145216200001 ()38243638 (PubMedID)2-s2.0-85203161015 (Scopus ID)
Available from: 2024-02-01 Created: 2024-02-01 Last updated: 2025-02-26Bibliographically approved
Eide, L. S. P., Fridlund, B., Hufthammer, K. O., Haaverstad, R., Packer, E. J. S., Ranhoff, A. H., . . . The CARDELIR Investigators, .. (2023). Anxiety and depression in patients aged 80 years and older following aortic valve therapy. A six-month follow-up study. Aging Clinical and Experimental Research, 35(11), 2463-2470
Open this publication in new window or tab >>Anxiety and depression in patients aged 80 years and older following aortic valve therapy. A six-month follow-up study
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2023 (English)In: Aging Clinical and Experimental Research, ISSN 1594-0667, E-ISSN 1720-8319, Vol. 35, no 11, p. 2463-2470Article in journal (Refereed) Published
Abstract [en]

Background Little is known about mental health following advanced cardiac procedures in the oldest patients. Aims To study changes in anxiety and depression from baseline to one- and six-month follow-up in older patients following transcatheter aortic valve implantation (TAVI) or surgical aortic valve replacement (SAVR). Methods Prospective cohort study of patients >= 80 years undergoing elective TAVI or SAVR in a tertiary university hospital. Anxiety and depression were assessed with the Hospital Anxiety and Depression Scale. Differences between TAVI/SAVR were analyzed using Welch's t test or chi-squared. Changes over time and group differences were established with longitudinal models using generalized least squares. Results In 143 patients (83.5 +/- 2.7 years), 46% (n = 65) received TAVI. Anxiety was identified in 11% of TAVI patients at baseline. One- and six-months later, percentages were 8% and 9%. In SAVR patients, 18% had baseline scores indicating anxiety. One and six-months later, percentages were 11% and 9%. Depression was identified in 15% of TAVI patients. One- and six-months later, percentages were 11% and 17%. At baseline, 11% of SAVR patients had scores indicating depression. One- and six-months after SAVR, percentages were 15% and 12%. Longitudinal analyses showed reductions (P < 0.001) in anxiety from baseline to one-month, and stable scores between one- and six-months for both treatment groups. There was no change over time for depression among treatment groups (P = 0.21). Discussion and conclusions SAVR or TAVI in patients >= 80 years was associated with anxiety reduction between baseline and follow-up. For depression, there was no evidence of change over time in either treatment group.

Place, publisher, year, edition, pages
Springer, 2023
Keywords
TAVI, SAVR, Anxiety and depression, HADS, 80 and over
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-125425 (URN)10.1007/s40520-023-02541-5 (DOI)001064870500001 ()37648928 (PubMedID)2-s2.0-85169165089 (Scopus ID)
Available from: 2023-11-01 Created: 2023-11-01 Last updated: 2025-02-06Bibliographically approved
Organisations
Identifiers
ORCID iD: ORCID iD iconorcid.org/0000-0002-5412-9497

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