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Family caregivers and decision-making for older people with dementia
Linnaeus University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0001-7817-2716
Linnaeus University, Faculty of Social Sciences, Department of Social Work. Lund University, Sweden.
Linnaeus University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-6408-2514
2019 (English)In: Journal of Social Welfare and Family Law, ISSN 0964-9069, E-ISSN 1469-9621, Vol. 41, no 3, p. 321-338Article in journal (Refereed) Published
Abstract [en]

This article addresses the dilemmas concerning legislation, individual autonomy and the reality of everyday life for people coping with dementia. We describe and analyse decision-making in relation to older people with dementia in Sweden, within the area of social work regulated by the Social Services Act and the Parental Act. Swedish legislation is based on the individual's autonomy and capacity to consent to services without anyone having legal authority to decide on behalf of the individual. Based on data from interviews with family caregivers living at home, decision-making through family caregivers is discussed and formal guardianship is also considered. Swedish legislation leaves individuals with dementia and family caregivers in a vacuum between self-determination and full autonomy with the ideal of citizenship emphasised and recognised in the Social Services Act on the one hand, and on the other, a strong need for support in everyday life and with decision-making.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2019. Vol. 41, no 3, p. 321-338
Keywords [en]
Decision-making, dementia, family caregiver, social services, Sweden
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
URN: urn:nbn:se:lnu:diva-88847DOI: 10.1080/09649069.2019.1627087ISI: 000479303000005OAI: oai:DiVA.org:lnu-88847DiVA, id: diva2:1346902
Available from: 2019-08-29 Created: 2019-08-29 Last updated: 2019-08-29Bibliographically approved

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Giertz, LottieMelin Emilsson, UllaVingare, Emme-Li

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf