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Predicting participation of people with impaired vision in epidemiological studies
Linnaeus University, Faculty of Health and Life Sciences, Department of Medicine and Optometry. Univ Minho, Portugal.
Univ Nova Lisboa, Portugal.
Univ Minho, Portugal.
Univ Nova Lisboa, Portugal.
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2018 (English)In: BMC Ophthalmology, ISSN 1471-2415, E-ISSN 1471-2415, Vol. 18, article id 236Article in journal (Refereed) Published
Abstract [en]

Background

The characteristics of the target group and the design of an epidemiologic study, in particular the recruiting methods, can influence participation. People with vision impairment have unique characteristics because those invited are often elderly and totally or partially dependent on help to complete daily activities such as travelling to study sites. Therefore, participation of people with impaired vision in studies is less predictable than predicting participation for the general population.

Methods

Participants were recruited in the context of a study of prevalence and costs of visual impairment in Portugal (PCVIP-study). Participants were recruited from 4 Portuguese public hospitals. Inclusion criteria were: acuity in the better eye from 0.5 decimal (0.30logMAR) or worse and/or visual field of less than 20 degrees. Recruitment involved sending invitation letters and follow-up phone calls. A multiple logistic regression model was used to assess determinants of participation. The J48 classifier, chi-square and Fisher’s exact tests were applied to investigate the possible differences between subjects in our sample.

Results

Individual cases were divided into 3 groups: immediate, late and non-participants. A participation rate of 20% was obtained (15% immediate, 5% late). Factors positively associated with participation included years of education, annual hospital attendance, and intermediate visual acuity. Females and greater distance to the hospital were inversely associated with participation.

Conclusion

In our study, a letter followed by a phone call was efficient to recruit a significant number of participants from a larger group of people with impaired vision. However, the improvement in participation observed after the phone call might not be cost-effective. People with low levels of education and women were more difficult to recruit. These findings need to be considered to avoid studies whose results are biased by gender or socio-economic inequalities of their participants. Young subjects and those at intermediate stages of vision impairment, or equivalent conditions, may need more persuasion than other profiles.

Place, publisher, year, edition, pages
BioMed Central, 2018. Vol. 18, article id 236
Keywords [en]
Study participation; Epidemiologic studies; Study design; Vision impairment; Recruitment strategies
National Category
Ophthalmology Other Medical Sciences not elsewhere specified
Research subject
Natural Science, Optometry; Natural Science, Medicine; Health and Caring Sciences
Identifiers
URN: urn:nbn:se:lnu:diva-77576DOI: 10.1186/s12886-018-0889-9ISI: 000443738400002PubMedID: 30180834Scopus ID: 2-s2.0-85053144738OAI: oai:DiVA.org:lnu-77576DiVA, id: diva2:1245339
Projects
This study was supported by FCT (COMPETE/QREN) grant reference PTDC/DPT-EPI/0412/2012 in the context of the Prevalence and Costs of Visual Impairment in Portugal: a hospital based study (PCVIP-study). PLR is funded by FCT (COMPETE/QREN) grant reference SFRH/BD/119420/2016.Available from: 2018-09-05 Created: 2018-09-05 Last updated: 2019-08-29Bibliographically approved

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Lima Ramos, PedroMacedo, António Filipe

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