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Quality of long term care from a carer perspective: a commissioned study to inform the national quality plan for care of older people in Sweden
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
2019 (English)In: Presented at the International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019, 2019, 2019Conference paper, Oral presentation with published abstract (Refereed)
Abstract [en]

The presentation will highlight findings from a report commissioned by the independent investigator for the National Quality Plan for Care of Older People. In Sweden, a traditional welfare model of care for older people has come under increasing threat in recent years leading to a pattern of de-universalisation of care, an increase in for-profit provision of publicly funded care for older people and an increase in informal/family care.   This contextual backdrop provides the rationale for the commissioned study that focused on the role of informal/ family carers of older people within long term care.

The overall aim was to explore what makes for a good quality of care for older people from a carer perspective? The specific aims were:

  1. To map carers’ experiences and preferences regarding quality of long term care for an older relative
  2. To identify potential differences in experiences in relation to gender, class and cultural background
  3. Suggest priority areas for policy, practice and research

The study was underpinned by the ‘carers as experts’ model in which carers and practitioners are viewed as co-experts, each with differing yet complementary forms of knowledge. The study comprised a systematic literature review and findings  were validated  via three focus group interviews and individual  interviews with representatives from pensionist, disability and carer organisations and decision makers from the municipality and health care region (n= 21).

The main findings focused on the theme of a sense of security together with five interrelated themes. Despite a policy rhetoric of equal care, older people and carers tend to be treated differently depending on their education, work/social position, gender, ethnic origin, religious beliefs, disability, sexual preferences and age.

To conclude, current quality indicators need to include a carer perspective and gaps in the research include studies focusing on service provision in older people’s own homes.

Place, publisher, year, edition, pages
2019.
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-84702OAI: oai:DiVA.org:lnu-84702DiVA, id: diva2:1321299
Conference
International Association of Gerontology and Geriatrics European Region Congress 2019, Gothenburg, Sweden, May 23-25, 2019
Note

Symposium: Towards carer-friendly systems in the European Union: the EU pillar of social rights as a framework for evidence-based policymaking- findings from the Eurocarers Research Working Group

Symposium Chair: Elisabeth Hanson

Available from: 2019-06-07 Created: 2019-06-07 Last updated: 2019-11-20Bibliographically approved

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Hanson, ElizabethMagnusson, Lennart

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