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Integrating care for neurodevelopmental disorders by unpacking control: A grounded theory study
Linnaeus University, Faculty of Health and Life Sciences, Department of Psychology.
Lund University.
2016 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, 31987Article in journal (Refereed) Published
Abstract [en]

Background: To establish integrated healthcare pathways for patients with neurodevelopmental disorders ( ND) such as autism spectrum disorder and attention-deficit hyperactivity disorder is challenging. This study sets out to investigate the main concerns for healthcare professionals when integrating ND care pathways and how they resolve these concerns. Methods: Using classic grounded theory ( Glaser), we analysed efforts to improve and integrate an ND care pathway for children and youth in a Swedish region over a period of 6 years. Data from 42 individual interviews with a range of ND professionals, nine group interviews with healthcare teams, participant observation, a 2-day dialogue conference, focus group meetings, regional media coverage, and reports from other Swedish regional ND projects were analysed. Results: The main concern for participants was to deal with overwhelming ND complexity by unpacking control, which is control over strategies to define patients' status and needs. Unpacking control is key to the professionals' strivings to expand constructive life space for patients, to squeeze health care to reach available care goals, to promote professional ideologies, and to uphold workplace integrity. Control-seeking behaviour in relation to ND unpacking is ubiquitous and complicates integration of ND care pathways. Conclusions: The Unpacking control theory expands central aspects of professions theory and may help to improve ND care development.

Place, publisher, year, edition, pages
2016. Vol. 11, 31987
Keyword [en]
Autism, ADHD, health services, integrated care, neurodevelopmental disorders, care pathways
National Category
Nursing Neurosciences
Research subject
Social Sciences, Psychology
Identifiers
URN: urn:nbn:se:lnu:diva-58210DOI: 10.3402/qhw.v11.31987ISI: 000386182700001PubMedID: 27609793OAI: oai:DiVA.org:lnu-58210DiVA: diva2:1047711
Available from: 2016-11-18 Created: 2016-11-18 Last updated: 2016-11-18Bibliographically approved

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CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf