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The extended palliative phase of dementia: an integrative literature review
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
University of the West of Scotland, UK.
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2017 (English)In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684Article in journal (Refereed) Epub ahead of print
Abstract [en]

This article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consistent definition of advanced dementia. The extended palliative phase was generally synonymous with end-of-life care. Advanced care planning is purported to enable professionals to work together with people with dementia and their families. A lack of understanding of palliative care among frontline practitioners was related to a dearth of educational opportunities in advanced dementia care. There are few robust concepts and theories that embrace living the best life possible during the later stages of dementia. These findings informed our subsequent work around the concept, ‘Dementia Palliare’.

Place, publisher, year, edition, pages
Sage Publications, 2017.
Keyword [en]
Advanced dementia, Integrative literature review, Palliare, Palliative care
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-61510DOI: 10.1177/1471301216659797OAI: oai:DiVA.org:lnu-61510DiVA: diva2:1083410
Available from: 2017-03-21 Created: 2017-03-21 Last updated: 2017-03-27

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Hanson, ElizabethHellström, AmandaSandvide, Åsa
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CiteExportLink to record
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Citation style
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