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Experiences of encounters with healthcare professionals through the lenses of families living with chronic illness
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Ctr Collaborat Palliat Care)ORCID iD: 0000-0002-1876-213X
Malmö University.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Ctr Collaborat Palliat Care)ORCID iD: 0000-0002-9714-4056
2018 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 27, no 3-4, p. 836-847Article in journal (Refereed) Published
Abstract [en]

Aims and objectivesTo describe and explore the experience of healthcare encounters in families living with chronic illness. BackgroundLiving with chronic illness is a family concern and often includes frequent encounters with healthcare professionals. These encounters affect how persons with illness and family members handle everyday life. Disease-related explanations are perceived by healthcare professionals as being of higher importance than the actual experience of illness, even though patients are concerned with issues involving their everyday life. DesignA descriptive design with a qualitative approach. MethodsNarrative family interviews were conducted with twelve families, using a qualitative content analysis. ResultsOne main category was indicated following analysis, specifically The impact of an accompanying family member. Additionally, three subcategories were revealed; The importance of collaboration, Mutual understanding, A desire to be confirmed in one's illness. Conclusions and relevance to clinical practiceHaving a participating family member increased the sense of power in families during encounters with healthcare professionals. This participation constitutes a level of support, making it easier for families to handle everyday life due to illness. Family members are, in most cases, included in discussions and decisions, both before and after encounters, and it should be a natural for healthcare professionals to invite them to the encounter too. This is an offer that may not fit every family, but the person with illness or the family should at least have the opportunity to choose.

Place, publisher, year, edition, pages
Wiley-Blackwell, 2018. Vol. 27, no 3-4, p. 836-847
Keyword [en]
content analysis, experiences, family, family systems nursing, healthcare encounters, healthcare professionals, Swedish
National Category
Nursing
Research subject
Health and Caring Sciences
Identifiers
URN: urn:nbn:se:lnu:diva-71447DOI: 10.1111/jocn.14126ISI: 000425733600065PubMedID: 29076223OAI: oai:DiVA.org:lnu-71447DiVA, id: diva2:1189367
Available from: 2018-03-09 Created: 2018-03-09 Last updated: 2018-03-09Bibliographically approved

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Årestedt, LiselottPersson, CarinaBenzein, Eva

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