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The use of informal care by people with vision impairment
NOVA University of Lisbon, Portugal.ORCID iD: 0000-0001-8242-7021
Linnaeus University, Faculty of Health and Life Sciences, Department of Medicine and Optometry. University of Minho Braga, Portugal . (Medicine and optometry)ORCID iD: 0000-0003-3436-2010
University of Minho Braga, Portugal .
Linnaeus University, Faculty of Health and Life Sciences, Department of Medicine and Optometry.
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2018 (English)In: PLoS ONE, ISSN 1932-6203, E-ISSN 1932-6203, Vol. 13, no 6, article id e0198631Article in journal (Refereed) Published
Abstract [en]

Purpose

To estimate and characterize the use of informal care by people with vision impairment in Portugal.

Methods

A total of 546 visually impaired individuals were recruited from Portuguese hospitals. Clinical information was obtained from medical records, socio-demographic details and informal care use were collected during face-to-face interviews. In addition, participants responded to a functional vision questionnaire (activity inventory) to assess their visual ability. Logistic regression was used to determine independent factors associated with informal care use and linear regression was used to determine independent predictors of intensity of informal care use.

Results

Informal care was reported by 39.6% of the participants. The probability of reporting informal care was higher in non-married, those with comorbidities, with lower visual ability and worse visual acuity. The median number of caregivers’ hours per year was 390 (mean = 470; 95%CI = 488–407), which represent a median opportunity cost of €2,586. Visual ability was the only independent predictor of number of hours of informal care received.

Conclusions

Informal care was frequently used by individuals with impaired vision. Improving visual ability of people with impaired vision when performing valued activities may reduce the burden of visual loss at personal and societal level. This could be achieved with person-centred visual rehabilitation.

Place, publisher, year, edition, pages
Public Library of Science , 2018. Vol. 13, no 6, article id e0198631
National Category
Other Health Sciences
Research subject
Natural Science, Optometry; Natural Science, Medicine
Identifiers
URN: urn:nbn:se:lnu:diva-75353DOI: 10.1371/journal.pone.0198631OAI: oai:DiVA.org:lnu-75353DiVA, id: diva2:1215198
Available from: 2018-06-07 Created: 2018-06-07 Last updated: 2018-06-18Bibliographically approved

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Macedo, António FilipeLima Ramos, Pedro

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Marques, Ana PatriciaMacedo, António FilipeLima Ramos, Pedro
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