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Dementia care and service systems - a mapping system tested in nine Swedish municipalities
Lund University.
Linnaeus University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0001-7817-2716
Linnaeus University, Faculty of Social Sciences, Department of Social Work.ORCID iD: 0000-0002-6408-2514
Lund University.
2018 (English)In: BMC Health Services Research, ISSN 1472-6963, E-ISSN 1472-6963, Vol. 18, article id 778Article in journal (Refereed) Published
Abstract [en]

BackgroundIn dementia care, it is crucial that the chain of care is adapted to the needs of people with dementia and their informal caregivers throughout the course of the disease. Assessing the existing dementia care system with regard to facilities, availability and utilization may provide useful information for ensuring that the professional dementia care and service system meets the needs of patients and their families from disease onset to end of life.MethodsThe aim of this study was to further develop and test a mapping system, and adapt it to a local context. In addition, the aim was to assess availability and utilization of care activities as well as professional providers' educational level in nine municipalities under the categories of Screening, the diagnostic procedures, and treatment; Outpatient care facilities; Institutional care and Palliative care. This cross-sectional study was conducted in April through May 2015. Data was derived from the health care and social service systems in nine rural and urban municipalities in two counties in Sweden. The mapping system covered seven categories with altogether 56 types of health care and social service activities.ResultsThe mapping system was found to be reliable with minor adaptations to the context mainly in terms of activities. Availability of care activities was common with low utilization regarding Screening, the diagnostic procedures, and treatment; Outpatient care facilities; Institutional care and Palliative care and dementia trained staff was rare. Availability and utilization of care activities and professionals' educational level was higher concerning screening, the diagnostic procedures and treatment compared with outpatient care facilities, institutional care and palliative care.ConclusionsThe mapping system enables policy makers and professionals to assess and develop health care and social service systems, to be offered proactively and on equal terms to people with dementia and their informal caregivers throughout the course of the disease. The educational level of professionals providing care and services may reveal where, in the chain of care, dementia-specific education for professionals, needs to be developed.

Place, publisher, year, edition, pages
BioMed Central, 2018. Vol. 18, article id 778
Keywords [en]
Dementia, Chain of care, Screening, Institutional care, Palliative care, Professional care providers, Education
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
URN: urn:nbn:se:lnu:diva-78610DOI: 10.1186/s12913-018-3592-xISI: 000447634000003PubMedID: 30326900Scopus ID: 2-s2.0-85054967224OAI: oai:DiVA.org:lnu-78610DiVA, id: diva2:1260284
Available from: 2018-11-01 Created: 2018-11-01 Last updated: 2019-08-29Bibliographically approved

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Giertz, LottieVingare, Emme-Li

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