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Parents' experiences of family health conversations after having a child in need of neonatal intensive care
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kalmar county, Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health.ORCID iD: 0000-0002-1876-213X
Region Kronoberg, Sweden;University of Gothenburg, Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.ORCID iD: 0000-0002-9714-4056
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2021 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 35, no 4Article in journal (Refereed) Published
Sustainable development
SDG 3: Ensure healthy lives and promote well-being for all at all ages
Abstract [en]

Background When a newborn child requires neonatal intensive care, it is often the beginning of a journey of stress and worry for the parents. Such situations could cause difficulties in problem-solving and communication within the family and result in decreased family functioning. Studies have shown that nurse-led interventions in the form of Family Health Conversations promote family's well-being and functioning and strengthen their relationships. However, this model has not previous been used and evaluated with families who have a child in need of neonatal intensive care. Aim To describe parents' experiences of participating in Family Health Conversations after having a child in need of neonatal intensive care. Method Family interviews were conducted with 12 families from three neonatal intensive care units in southern Sweden, six months after a Family Health Conversations intervention. Data were analysed using qualitative content analysis. Findings The parents experienced the Family Health Conversations as an opportunity to co-create a comprehensive picture of what had happened after their child was born. Parents shared their experiences of the Family Health Conversations in terms of feeling validated and strengthened as individuals, as a couple, and as a family. They found the conversations to be supportive to their well-being and to processing experiences and becoming equipped for the future. The parents reported that it was valuable to talk with conversational leaders who had knowledge in neonatal care and who thereby understood what the parents were talking about. This provided a different type of support compared with other conversational contacts. Conclusion These results highlight the importance of having an early onset of family conversations in order to help the parents to cope with their challenges and improve their well-being.

Place, publisher, year, edition, pages
John Wiley & Sons, 2021. Vol. 35, no 4
Keywords [en]
family systems nursing, family health conversations, neonatal intensive care, parents, nurse‐, led intervention, qualitative content analysis
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-100048DOI: 10.1111/scs.12945ISI: 000599616200001PubMedID: 33336821Scopus ID: 2-s2.0-85097760216Local ID: 2020OAI: oai:DiVA.org:lnu-100048DiVA, id: diva2:1518506
Available from: 2021-01-15 Created: 2021-01-15 Last updated: 2024-10-09Bibliographically approved
In thesis
1. När det nyfödda barnet behöver neonatalintensivvård: föräldrars erfarenheter under vårdtiden och av enfamiljecentrerad intervention
Open this publication in new window or tab >>När det nyfödda barnet behöver neonatalintensivvård: föräldrars erfarenheter under vårdtiden och av enfamiljecentrerad intervention
2024 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Background: Having an infant requiring care in a Neonatal Intensive CareUnit (NICU) is challenging for parents, often the beginning of a journeyof stress and worry for parents. Such situations could cause difficulties inproblem solving and communication within the family and result indecreased family functioning.Aim: The overall aim of the thesis was to investigate parents' experienceswhen their children have needed NICU in the newborn period, and toinvestigate parents' experiences and effects of a family-centredintervention.

Method: Data was collected through interviews with parents of infantsrequiring NICU care (I) and six months after the intervention with FamilyHealth Conversations (IV), analysed using thematic analysis (I) andqualitative content analysis (IV). Questionnaire data was collected inconjunction with inclusion (n=147) (II, III), and five (n=113) and eight(n=92) months after inclusion (III). The questionnaire included measuresto assess mental health symptoms, bonding, family wellbeing, and familyfunctioning. Quantitative data was analysed with descriptive andinferential statistics (II, III).

Results: The results of study I were presented as two themes: interactionswithin the family, and interactions between parents and staff. Interpersonalinteractions could both facilitate and hinder in the sense of becoming aparent and a family. In study II nearly 40% of the parents reported anxietysymptoms. Mothers reported more mental health issues than non-birthingparents. Depression was associated with bonding difficulties and familywellbeing. In the longitudinally study (III) the intervention trended towardpositive effects on mental health, family well-being, and familyfunctioning. However, the estimated effects were not statisticallysignificant. Regardless of the intervention, mental health symptomsdecreased over time, whereas family well-being and functioning remainedstable. Parents experienced the Family Health Conversations (IV) as anopportunity to co-create a comprehensive picture of what had happenedafter their child was born.

Conclusion: The process of becoming a parent and a family could benefitfrom a systemic approach, focusing on the family as a unit, as individuals,and as parents with unique needs and experiences.

Place, publisher, year, edition, pages
Linnaeus University Press, 2024. p. 82
Series
Linnaeus University Dissertations ; 543
Keywords
Neonatal intensive care, Parents' experiences, Parents’ mental health, Bonding, Family well-being, Family functioning, Family systems nursing, Family health conversations
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-132939 (URN)10.15626/LUD.543.2024 (DOI)9789180822053 (ISBN)9789180822060 (ISBN)
Public defence
2024-10-31, Fullriggaren, Kalmar, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2024-10-09 Created: 2024-10-09 Last updated: 2024-10-30Bibliographically approved

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Åberg Petersson, MariePersson, CarinaBenzein, EvaWåhlin, Ingrid

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