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Breaking the patientification process - through co-creation of care, using old arctic survival knowledge
Lund University, Sweden.ORCID iD: 0000-0001-9520-0168
Lund University, Sweden.ORCID iD: 0000-0001-9652-5714
Linnaeus University, Faculty of Health and Life Sciences, Department of Medicine and Optometry.ORCID iD: 0000-0002-3785-5630
Lund University, Sweden.
2021 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 16, no 1, article id 1926052Article in journal (Refereed) Published
Abstract [en]

Purpose: Cancer research and connected innovation processes often lack a major component; patient participation. We revisit three studies (a-c) in order to explore how Momentary contentment theory may be used to improve patient participation and psychosocial health. Method: We revisited data from the initial (a) classic grounded theory study on Momentary contentment, based on four years of observation and 14 interviews. It explains a way of dealing with life close to death and morbidity. In the imminence of danger the studied culture resembles the context of cancer patients. The two following studies used focus group interviews with (b) 19 cancer patients and (c) 17 relatives of cancer patients in southern Sweden. Results: We suggest a process where cancer patients are taught to be submissive and that the support they receive from health providers may be counterproductive to contentment; a patientification process. We present alternative ways for people to handle issues such as hope, waiting, knowledge gaps and healthcare navigation while living with cancer. We introduce an alternative to patientification and passive patients where active patients create their own safety and truly participates in their care.Conclusions: We propose clinical studies to introduce such a shift from patentification to co-creation of care.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2021. Vol. 16, no 1, article id 1926052
Keywords [en]
Cancer, design thinking, health, hope, identity, innovation, patient perspective, rehabilitation, waiting, co-creation
National Category
Nursing
Research subject
Natural Science, Medicine
Identifiers
URN: urn:nbn:se:lnu:diva-103538DOI: 10.1080/17482631.2021.1926052ISI: 000649105500001PubMedID: 33974518Scopus ID: 2-s2.0-85105714527Local ID: 2021OAI: oai:DiVA.org:lnu-103538DiVA, id: diva2:1556673
Available from: 2021-05-24 Created: 2021-05-24 Last updated: 2022-12-08Bibliographically approved

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Thulesius, Hans

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