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Intensity of Predeath Grief and Postdeath Grief of Family Caregivers in Palliative Care in Relation to Preparedness for Caregiving, Caregiver Burden, and Social Support
Sophiahemmet University, Sweden.ORCID iD: 0000-0002-3647-1686
Ersta Sköndal Bräcke University College, Sweden;Dalen Hospital, Sweden.
Sophiahemmet University, Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health. Region Kalmar County, Sweden.ORCID iD: 0000-0002-0961-5250
2020 (English)In: Palliative Medicine Reports, E-ISSN 2689-2820, Vol. 1, no 1, p. 191-200Article in journal (Refereed) Published
Abstract [en]

Background: The intensity of predeath grief is associated with postdeath grief in family caregivers of patients in palliative care. Different factors during caregiving may influence this association.Objective: To examine (1) the intensity of grief in relation to preparedness for caregiving, caregiver burden, and social support, and (2) if these variables moderate associations between predeath and postdeath grief.Methods: This prospective correlational study used unpaired t-test to compare grief in relation to preparedness for caregiving, caregiver burden, and social support. Hierarchical multiple linear regression analysis investigated moderation effects. Family caregivers were recruited from 10 palliative homecare facilities. The Anticipatory Grief Scale, Texas Revised Inventory of Grief, Preparedness for Caregiving Scale, Caregiver Burden Scale, and Multidimensional Scale of Perceived Social Support were used. Ethical approval for the study was granted by the Regional Ethical Review Board in Stockholm, Sweden.Results: In total, 128 family caregivers participated. Those with high caregiver burden scored significantly higher intensity of predeath but not postdeath grief. Caregiver burden and social support moderated the association between intensity of predeath grief and postdeath grief. There was a stronger association between predeath and postdeath grief among caregivers with low caregiver burden or low social support. Preparedness for caregiving had no moderating effect.Discussion: Attention should be directed to caregiver burden and social support during family caregiving, as these variables seem to be significant for the intensity of grief before and after the patient's death. Acknowledging predeath grief during caregiving and recognizing pre- and postdeath grief as parts of the same process are of importance in clinical practice and when designing supportive interventions.

Place, publisher, year, edition, pages
Mary Ann Liebert, 2020. Vol. 1, no 1, p. 191-200
Keywords [en]
burden, family caregiver, grief, moderation, palliative care, preparedness
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-108476DOI: 10.1089/pmr.2020.0033ISI: 000721612600003PubMedID: 34223476Local ID: 2020OAI: oai:DiVA.org:lnu-108476DiVA, id: diva2:1618143
Available from: 2021-12-08 Created: 2021-12-08 Last updated: 2023-04-17Bibliographically approved

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Årestedt, Kristofer

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