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Whether Disabled Parents Receive Personal Assistance for Parenting and the Consequences for Children — An Interview Study
Linnaeus University, Faculty of Social Sciences, Department of Social Work. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health.ORCID iD: 0000-0002-1325-9965
Stockholm University, Sweden.ORCID iD: 0000-0001-5202-0722
2022 (English)In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 19, no 6, article id 3330Article in journal (Refereed) Published
Sustainable development
SDG 3: Ensure healthy lives and promote well-being for all at all ages
Abstract [en]

Personal assistance, since its implementation in 1993, has been shown to provide support for persons with severe functional disabilities in their everyday life, ensuring inclusion in societal roles such as working life. Personal assistance (PA) may also provide support in parenting; however, with the right to PA becoming increasingly questioned in Sweden, parents with disabilities have varying experiences of receiving support for their role as parents. Experiences also differ in regard to how access to a personal assistant is important to their child’s daily life. The aim of this article is to shed light on the meaning of PA for parents and children in everyday life, especially when PA is reduced or even withdrawn. Eleven parents who have had or presently have PA were interviewed. The results show that parents describe that PA help them to fullfil their parental roles although the support could be more flexible to the needs of parents and their children. In situations when PA has been denied, children are negatively impacted and some children act by taking on responsibilities for the care of their parent. In conclusion; childrens’ perspective of their family life needs to be taken in consideration when assessing the rights to PA.

Place, publisher, year, edition, pages
MDPI, 2022. Vol. 19, no 6, article id 3330
Keywords [en]
children, parent, personal assistance, disability, young carers
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
URN: urn:nbn:se:lnu:diva-110990DOI: 10.3390/ijerph19063330ISI: 000775376400001PubMedID: 35329015Scopus ID: 2-s2.0-85126314010Local ID: 2022OAI: oai:DiVA.org:lnu-110990DiVA, id: diva2:1647340
Note

This article belongs to the Special Issue 'Effects of Parental Physical and Mental Illness on Children and Adolescents'

Available from: 2022-03-25 Created: 2022-03-25 Last updated: 2023-04-17Bibliographically approved

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Järkestig Berggren, UlrikaBergman, Ann-Sofie

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