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Preparedness for caregiving and preparedness for death: Associations and modifiable thereafter factors among family caregivers of patients with advanced cancer in specialized home care
Marie Cederschiöld University, Sweden;Karolinska University Hospital, Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kalmar County, Sweden.ORCID iD: 0000-0002-0961-5250
Marie Cederschiöld University, Sweden;Sophiahemmet University, Sweden.ORCID iD: 0000-0003-2074-5985
Marie Cederschiöld University, Sweden.
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2024 (English)In: Death Studies, ISSN 0748-1187, E-ISSN 1091-7683, Vol. 48, no 4, p. 407-416Article in journal (Refereed) Published
Abstract [en]

The purpose of this study was to (1) explore associations between preparedness for caregiving and preparedness for death among family caregivers of patients with advanced cancer and (2) explore modifiable preparedness factors, such as communication and support. Data was derived from a baseline questionnaire collected in specialized home care. The questionnaire included socio-demographics, the Preparedness for Caregiving Scale, and single items addressing preparedness for death, received support and communication about incurable illness. Data was analyzed using descriptive statistics and Spearman correlations. Altogether 39 family caregivers participated. A significant association was found between preparedness for caregiving and preparedness for death. Received support and communication about the illness was associated with higher levels of preparedness for caregiving and death. This study contributes to evidence on the association between preparedness for caregiving and death, but also that communication and support employed by healthcare professionals could improve family caregiver preparedness and wellbeing.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2024. Vol. 48, no 4, p. 407-416
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-123596DOI: 10.1080/07481187.2023.2231388ISI: 001024602000001PubMedID: 37441803Scopus ID: 2-s2.0-85165191936OAI: oai:DiVA.org:lnu-123596DiVA, id: diva2:1786986
Available from: 2023-08-10 Created: 2023-08-10 Last updated: 2024-02-27Bibliographically approved

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Årestedt, Kristofer

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