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Informal Caregivers: The Advocacy and Policy Perspective
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden;Eurocarers, Belgium.ORCID iD: 0000-0001-7609-4822
Eurocarers, Belgium.
2023 (English)In: Informal Caregivers: From Hidden Heroes to Integral Part of Care / [ed] Andreas Charalambous, Springer, 2023, p. 173-188Chapter in book (Other academic)
Abstract [en]

In this chapter we explain how an advocacy and policy perspective based on solid evidence is central to the support and empowerment of informal carers globally. We begin by providing the context for understanding informal carers and an advocacy and policy perspective. We explain the central role of the carers movements in advocating with and for informal carers to work for changes and improvements in practices, policies, legislation and research. The development of carers’ associations at regional, national, European and international levels are outlined, highlighting their lobbying role for carer-friendly policies that both support and empower carers. Further, we highlight the importance of carer-friendly policies being widespread and cross-cutting across different government departments so that they not only focus on health and social care, but on all spheres of life affecting carers. The role of a cross-government plan as part of a proactive and comprehensive carers strategy that covers all dimensions of a carer’s experience is described and an example of a European Carers Strategy is provided. We subsequently highlight the key policy hooks that the carers’ movement can use to help ensure that care is on the policy agenda, starting at an international level before focusing on relevant policy hooks at European level.

Place, publisher, year, edition, pages
Springer, 2023. p. 173-188
Keywords [en]
Informal carers, Carers movements, Carers associations, Advocacy Policy, Carers strategy
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-123876DOI: 10.1007/978-3-031-16745-4_10Scopus ID: 2-s2.0-85161201973ISBN: 9783031167454 (electronic)ISBN: 9783031167447 (print)OAI: oai:DiVA.org:lnu-123876DiVA, id: diva2:1791191
Available from: 2023-08-24 Created: 2023-08-24 Last updated: 2023-09-28Bibliographically approved

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Hanson, Elizabeth

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CiteExportLink to record
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Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf