lnu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
I have never been invited - A cross-sectional explorative study of family members' experiences of encounters with healthcare professionals in diabetes care
Marie Cederschiöld University, Sweden.
Marie Cederschiöld University, Sweden;Swedish Family Care Competence Centre, Sweden.
Uppsala University, Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kalmar County, Sweden.ORCID iD: 0000-0002-0961-5250
Show others and affiliations
2024 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 38, no 1, p. 82-91Article in journal (Refereed) Published
Abstract [en]

Aim: To explore the experiences of family members of adult persons with type 1 diabetes concerning both the approach of healthcare professionals and feelings of alienation in encounters with professional diabetes care. Methods: A cross-sectional explorative quantitative and qualitative design. The Family Involvement and Alienation Questionnaire-Revised (FIAQ-R), including an open-ended question, was answered by 37 family members of adult persons with type 1 diabetes. Analyses included descriptive statistics and qualitative analysis. The study has received ethical approval. Results: Family members rated the approach of the healthcare professionals as being somewhat positive and considered that the approach towards them is important. They only felt partially alienated from the professional care. Qualitative data revealed that the family members often lacked direct access to the professional care and that their involvement was dependent on their relationship with the person with diabetes. Findings highlighted that the family members' wish to be involved in the care was sometimes unanswered. Conclusion: Based on the findings, it is reasonable to stress the importance of considering family members' perspectives and involving them in diabetes care to improve overall patient support.

Place, publisher, year, edition, pages
John Wiley & Sons, 2024. Vol. 38, no 1, p. 82-91
Keywords [en]
alienation, diabetes, experience of approach, family member, involvement, participation
National Category
Nursing Endocrinology and Diabetes
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-123887DOI: 10.1111/scs.13197ISI: 001040964100001PubMedID: 37526063Scopus ID: 2-s2.0-85166532289OAI: oai:DiVA.org:lnu-123887DiVA, id: diva2:1791407
Available from: 2023-08-25 Created: 2023-08-25 Last updated: 2024-02-27Bibliographically approved

Open Access in DiVA

No full text in DiVA

Other links

Publisher's full textPubMedScopus

Authority records

Årestedt, Kristofer

Search in DiVA

By author/editor
Årestedt, Kristofer
By organisation
Department of Health and Caring Sciences
In the same journal
Scandinavian Journal of Caring Sciences
NursingEndocrinology and Diabetes

Search outside of DiVA

GoogleGoogle Scholar

doi
pubmed
urn-nbn

Altmetric score

doi
pubmed
urn-nbn
Total: 16 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf