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Family caregivers' experiences of discussing their needs with a nurse during specialised home care utilizing the carer support needs assessment tool intervention - A qualitative study
Marie Cederschiöld University, Sweden;Dalen Hospital, Sweden.
Sophiahemmet University, Sweden.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kalmar County, Sweden.ORCID iD: 0000-0002-0961-5250
Univ Manchester, UK.
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2023 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 66, article id 102412Article in journal (Refereed) Published
Abstract [en]

Purpose: The Carer Support Needs Assessment Tool Intervention (CSNAT-I) was designed to help family caregivers identify, reflect upon, and express their support needs in a conversation with a health care professional and gain tailored support. The CSNAT-I has shown positive effects for both nurses and family caregivers but for more comprehensive understanding this study aims to examine family caregivers' experiences of discussing their needs with a nurse during specialised home care, utilizing the CSNAT-I. Methods: The study used an inductive qualitative descriptive design based on framework analysis. Data was collected using individual semi-structured telephone interviews with 10 family caregivers, with a median age of 66, from four specialised home care services. Results: Family caregivers appreciated having scheduled meetings with nurses utilizing the CSNAT-I which gave them an opportunity to focus on what was important to them. Family caregivers experienced that the conversations were co-created with a flexible dialogue. The conversations provided new perspectives and insights which helped in finding possible solutions. Family caregivers felt empowered by the co-created conversation and took on a more active role in involving the rest of their family to find support to themselves and the patients. Conclusion: The CSNAT-I can facilitate communication between family caregivers and nurses leading to adequate supportive inputs. The intervention gives family caregivers an increased opportunity to be involved in their own support, which may enhance their sense of security. According to family caregivers' experiences, CSNAT-I may be an adequate way to support family caregivers to reflect and discuss their needs.

Place, publisher, year, edition, pages
Elsevier, 2023. Vol. 66, article id 102412
Keywords [en]
Caregivers, Home care, Intervention, Palliative, Support, Qualitative
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-125507DOI: 10.1016/j.ejon.2023.102412ISI: 001083434100001PubMedID: 37742425Scopus ID: 2-s2.0-85171894864OAI: oai:DiVA.org:lnu-125507DiVA, id: diva2:1809969
Available from: 2023-11-06 Created: 2023-11-06 Last updated: 2023-11-21Bibliographically approved

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Årestedt, Kristofer

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