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Barriers to and facilitators of ethical encounters at the end of life in a nursing home: an ethnigraphic study
Nord University, Norway.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.ORCID iD: 0000-0002-8912-8101
2024 (English)In: The 5th International NCCS & EACS Conference, University of Stavanger, Norway: Caring cience - the heart of multi-professional care: Program and Book of Abstracts, april 24th-25th 2024, 2024, p. 6-6Conference paper, Oral presentation with published abstract (Refereed)
Sustainable development
SDG 3: Ensure healthy lives and promote well-being for all at all ages
Abstract [en]

Background: This study explored the dynamics of ethical encounters between frail older residents and assistant nurses during assisted bodily care at the end of life within nursing homes. While personalized palliative care is recognized as crucial for this demographic, little is known about the ethical dimensions of daily care practices in this setting. 

Design: Focused ethnography. 

Methods: Data consisted of 170 hours of fieldwork in an urban Swedish nursing home. This involved participant observation and interviews. Thematic analysis was used, with input from five public community stakeholders during a focus group. 

Results: Our findings uncover barriers to achieving ethical encounters in assisted bodily care within the nursing home, primarily linked to communication, relationships, and care quality. These obstacles stem from resource limitations, ineffective communication, and misaligned work values. However, ethical encounters can be facilitated through the promotion of moral sensitivity, genuine resident engagement, and collaborative practices, essential for person-centered care. Personnel, particularly assistant nurses, must recognize their responsibility in addressing resident vulnerability. 

Conclusion: We advocate for continuous moral reflection on communication, compassion, decision-making, and behavior, with a strong focus on the care relationship. To improve care quality, organizations should allocate resources for relationship-building and provide assistant nurses with adequate post-shift recovery time. Additionally, we recommend further research, including the implementation of ethically grounded palliative care, to continuously enhance care practices in nursing homes.

Ethical issues and approvals: The study followed ethical standards stated by the Declaration of Helsinki, approved by The Regional Ethics Board of Stockholm (Dnr 2017/8-31/1).

Place, publisher, year, edition, pages
2024. p. 6-6
Keywords [en]
Bodily care, Caring ethics, End of life, Ethnography, Nursing home
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-129082OAI: oai:DiVA.org:lnu-129082DiVA, id: diva2:1855031
Conference
The 5th International NCCS & EACS Conference: "Caring science- the heart of multiprofessional care", Stavanger, Norway, April 24-25, 2024
Funder
Forte, Swedish Research Council for Health, Working Life and Welfare, 2020-01563Available from: 2024-04-29 Created: 2024-04-29 Last updated: 2024-05-08Bibliographically approved

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Holmberg, Bodil

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