lnu.sePublications
Change search
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf
Det outsagda och ohörsammade lidandet: Tillvaron för personer med långvarig psykossjukdom och deras närstående
Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
2010 (Swedish)Doctoral thesis, monograph (Other academic)
Abstract [en]

Syrén, Susanne (2010). Det outsagda och ohörsammade lidandet. Tillvaron för personer med långvarig psykossjukdom och deras närstående (Being in the world with long term psychotic illness – the unspoken and unheard suffering), Linnaeus University Dissertations No 6/2010. ISBN: 978-91-86491-07-9. Written in Swedish with a summary in English.

Aim: The overall aim of the thesis was to describe the lived experience of being in the world with long term psychotic illness. This is described from three perspectives; the perspective of persons diagnosed with long term psychotic disorder; the perspective of their relatives; and a family perspective. Method: Three studies were conducted guided by a reflective lifeworld approach grounded in phenomenology. The data were generated through individual, group, and family interviews. Data were analyzed for essential meanings of being in the world. Results: Persons with long term psychotic illness live in a borderland of paradoxes between the usual and unusual. For the ill persons the existence is incomprehensible and defenceless with feelings of not being at home in the body and in the world. They search for themselves in a care context that is contradictory, simultaneously good and hostile. These experiences are mostly unspoken, a struggle with doubts about having health or illness, what is good or evil, and about being usual or unusual. The relatives exist in a dilemma of the possible and impossible, a continual infinite struggle. Co-existing with their ill family member is a communion and a longing for togetherness is prominent. Relatives struggle with responsibilities for themselves and for their ill family member. In these unheard struggles the relatives yearn for participation in the formal care context. Family interviews with persons with long term psychotic illness and their relatives revealed a co-existence hovering between chaos and boredom while striving for a peaceful and quiet life. Thefamilies search for constancy and predictability in the presence of incomprehensible and threatening dangers. The experience of being a We balances the unshared meanings of being in the world and the loss of being able to experience and do things together. The experience of being a We keeps their individual existence and co- existence from falling apart.Conclusion: Persons with long term psychotic illness and their relatives have to withstand extensive existential suffering, which is unspoken and unheard. Formal caring should be existential caring, supporting the ill person’s comprehensibility and understanding of life, and feelings and experiences of being at home. Further, relatives should be acknowledged both as persons and carers and invited to participate in formal care. These results also point to the importance of strengthening feelings of togetherness and of being a We through systemic oriented existential conversations, where the ill person, their relative and a formal carer converse together.

Place, publisher, year, edition, pages
Linnaeus University Dissertation , 2010. , 157 p.
Series
Linnaeus University Dissertations, 6/2010
Keyword [en]
Long term psychotic illness; family perspective, reflective lifeworld research, existential suffering and existential care.
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:vxu:diva-7360ISBN: 978-91-86491-07-9 (print)OAI: oai:DiVA.org:vxu-7360DiVA: diva2:300505
Public defence
2010-03-18, Myrdal, hus K, Linnéuniversitetet, Växjö, 10:30 (Swedish)
Opponent
Supervisors
Available from: 2010-03-04 Created: 2010-02-26 Last updated: 2017-05-09Bibliographically approved

Open Access in DiVA

fulltext(1665 kB)4848 downloads
File information
File name FULLTEXT01.pdfFile size 1665 kBChecksum SHA-512
e7439aa1ec1333b5c92c20b35acef5d78a87a9f1ac2b3c19416ee1c6fa6eeb75cf3613e36077e98fd7d7e8fe4c9e42241a820bd19fbd12ba4d7bf5503fd83c4e
Type fulltextMimetype application/pdf

Search in DiVA

By author/editor
Syrén, Susanne
By organisation
School of Health and Caring Sciences
Nursing

Search outside of DiVA

GoogleGoogle Scholar
Total: 4848 downloads
The number of downloads is the sum of all downloads of full texts. It may include eg previous versions that are now no longer available

Total: 2805 hits
CiteExportLink to record
Permanent link

Direct link
Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf