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Patients' views of surgery and surveillance for familial adenomatous polyposis.
Karolinska Inst, Div Nursing, Dept Neurobiol Care Sci & Soc, S-14183 Huddinge, Sweden.ORCID iD: 0000-0002-1876-213X
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2010 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 33, no 2, E17-23 p.Article in journal (Refereed) Published
Abstract [en]

BACKGROUND: Familial adenomatous polyposis (FAP) is an inherited condition that requires prophylactic surgery (colectomy) followed by a lifetime program of endoscopic surveillance to prevent colorectal cancer. Patients are normally free of symptoms before surgery but a majority report problems related to bowel function postoperatively.

OBJECTIVE: The aim of the study was to gain a deeper understanding of how FAP affects life by exploring patients' view of what it is like living with the illness and being committed to a lifelong screening program.

METHODS: Three focus group interviews were conducted, and data were analyzed using descriptive qualitative content analysis.

RESULTS: The analysis resulted in two categories related to the participants' view of living with FAP. The first category was associated with concerns related to the hereditary and lifelong nature of the disease as well as to the prophylactic surgery and the second category was related to patients' ways of managing life.

CONCLUSION: Most participants expressed unmet needs, such as lack of healthcare providers with good knowledge about FAP, practical and psychosocial support, FAP educational programs, and organized meetings with other persons with the condition.

IMPLICATIONS FOR PRACTICE: One important aspect of living with FAP shared by the participants concerned ways of managing life concerns, something that healthcare providers caring for patients with FAP should identify and support. Furthermore, continuity of care by health care providers with good knowledge about FAP can be an important way of reducing patient concerns.

Place, publisher, year, edition, pages
2010. Vol. 33, no 2, E17-23 p.
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-16835DOI: 10.1097/NCC.0b013e3181bb0cf1PubMedID: 20142744OAI: oai:DiVA.org:lnu-16835DiVA: diva2:533796
Available from: 2012-06-14 Created: 2012-01-16 Last updated: 2017-12-07Bibliographically approved

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Persson, Carina

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CiteExportLink to record
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Cite
Citation style
  • apa
  • harvard1
  • ieee
  • modern-language-association-8th-edition
  • vancouver
  • Other style
More styles
Language
  • de-DE
  • en-GB
  • en-US
  • fi-FI
  • nn-NO
  • nn-NB
  • sv-SE
  • Other locale
More languages
Output format
  • html
  • text
  • asciidoc
  • rtf