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I skuggan av lungcancer - närståendes erfarenheter
Neurobiologi, vårdvetenskap och samhälle.ORCID iD: 0000-0002-1876-213X
2008 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Place, publisher, year, edition, pages
Stockholm: Universitetsservice US-AB , 2008.
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
URN: urn:nbn:se:lnu:diva-19964ISBN: 978-91-7357-518-8 (print)OAI: oai:DiVA.org:lnu-19964DiVA: diva2:533817
Public defence
2008-03-14, H01 Röd Zanderska huset, Alfred Nobels Allé 23, Huddinge, 09:00 (Swedish)
Opponent
Supervisors
Available from: 2012-10-09 Created: 2012-06-14 Last updated: 2016-04-18Bibliographically approved
List of papers
1. Health-related quality of life in significant others of patients dying from lung cancer.
Open this publication in new window or tab >>Health-related quality of life in significant others of patients dying from lung cancer.
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2008 (English)In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 22, no 3, 239-47 p.Article in journal (Refereed) Published
Abstract [en]

This study compares health-related quality of life (HRQOL) in significant others of patients dying from lung cancer, with a general population sample. Further, it explores the course of HRQOL from diagnosis (T1), at a time point close to the patient's death (T2), and six months after the patient's death (T3). The group comparisons at T1 showed that the significant others scored significantly lower on the scales in the mental domain compared with a general population sample. These results were the same at T3, when the significant others also scored lower on most of the scales in the physical and social domains. In the longitudinal analyses, there were significant changes in four scales, and three patterns of change were identified: a decrease-increase pattern for 'self-rated health' and 'positive affect'; a constant decrease pattern for 'family functioning'; and a decrease-stable pattern for 'satisfaction with family functioning'. Thus, living with inoperable lung cancer in the family and then facing the death of a family member affects most of the HRQOL dimensions.

National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-16839 (URN)10.1177/0269216307085339 (DOI)18477718 (PubMedID)
Available from: 2012-06-14 Created: 2012-01-16 Last updated: 2017-12-07Bibliographically approved
2. Being in the situation of a significant other to a person with inoperable lung cancer.
Open this publication in new window or tab >>Being in the situation of a significant other to a person with inoperable lung cancer.
2008 (English)In: Cancer Nursing, ISSN 0162-220X, E-ISSN 1538-9804, Vol. 31, no 5, 380-8 p.Article in journal (Refereed) Published
Abstract [en]

Little is known about how significant others experience their own situation when a family member becomes seriously ill. To illuminate the meanings of significant others' experiences of their situation after a family member had been diagnosed with inoperable lung cancer, we analyzed narratives from 12 significant others, using a phenomenological hermeneutic approach. Findings revealed 4 themes: feeling dislocated in life, being in an altered relationship, being in a struggle, and feeling secure. When reflecting on these findings, we considered the transition theories and works of Ricoeur and Lögstrup. The significant others' experiences indicated a transition process because of the changes brought about by the diagnosis of lung cancer and a struggle to endure and overcome difficulties and distress on the way to regaining a smooth functioning life. Furthermore, the diagnosis of lung cancer had altered the relationship toward the next of kin and meant not only feelings of increased closeness but also loss of intimacy and reciprocity. The significant others suffered in this process of transition, and healthcare professionals, who recognize the World Health Organization's definition of palliative care, may consider the findings of this study useful when reflecting on their care of families.

National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-16838 (URN)10.1097/01.NCC.0000305763.89109.60 (DOI)18772663 (PubMedID)
Available from: 2012-06-14 Created: 2012-01-16 Last updated: 2017-12-07Bibliographically approved
3. Development in quality of relationship between the significant other and the lung cancer patient as perceived by the significant other.
Open this publication in new window or tab >>Development in quality of relationship between the significant other and the lung cancer patient as perceived by the significant other.
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2008 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 12, no 5, 430-5 p.Article in journal (Refereed) Published
Abstract [en]

AIM: To prospectively explore the quality of the relationship between significant others and patients during lung cancer, based on the perceptions of the significant others.

METHOD: In a sample of 91 significant others, longitudinal data were collected during the first year after diagnosis, and explored on group level and as individual patterns over time.

RESULTS: Relational quality was skewed towards high quality, although 30% of the significant others reported low levels close to diagnosis. Forty-eight percent reported stability in the quality of their relationship during the disease trajectory. Within this group, 36% reported low levels of relational quality. Fifty-two percent reported change in quality of relationship and four typical patterns of change were identified. Two showed approximate linear changes in either a positive direction (15%) or a negative direction (49%), and two showed non-linear changes with a temporary ascending curve (11%) or a descending curve (26%). This implies that a change towards low levels of relational quality was most common.

CONCLUSION: The present results show that illness may be a trigger for change in relational quality, which may have implications for future family-centred practice and research, since previously high relational quality has been linked to improved emotional well-being.

National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-16837 (URN)10.1016/j.ejon.2008.07.004 (DOI)18845476 (PubMedID)
Available from: 2012-06-14 Created: 2012-01-16 Last updated: 2017-12-07Bibliographically approved
4. Assessing informal caregivers' experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale.
Open this publication in new window or tab >>Assessing informal caregivers' experiences: a qualitative and psychometric evaluation of the Caregiver Reaction Assessment Scale.
2008 (English)In: European Journal of Cancer Care, ISSN 0961-5423, E-ISSN 1365-2354, Vol. 17, no 2, 189-99 p.Article in journal (Refereed) Published
Abstract [en]

With the aim to evaluate the Swedish version of the Caregiver Reaction Assessment Scale (CRA), informal caregivers (n = 209) to individuals with a malignant disease, dementia or a physical impairment were recruited. The CRA was developed in the USA and is a self-rating questionnaire consisting of five subscales, measuring family members' reactions to the experience of caring for a relative with mental or physical illnesses. Data were analysed using psychometric and qualitative methods. Findings indicated good internal consistency, and a factor analysis confirmed the structure with five subscales; however, an overlap of items between the subscales was found. A content analysis of respondents' comments indicated that there were problems due to presuppositions inherent in the questions and with the meaning of words. Problems regarding inclusion/exclusion aspects in some concepts were also found. Two aspects of caregiver reactions were found to be missing or only partly covered: worrying and positive experiences. Results from this study suggest that the Swedish version is useful for assessment of caregiver reactions but needs further refinement.

National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-16840 (URN)10.1111/j.1365-2354.2007.00833.x (DOI)18302657 (PubMedID)
Available from: 2012-06-14 Created: 2012-01-16 Last updated: 2017-12-07Bibliographically approved

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