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Living as a family in the midst of chronic illness
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Familefokuserad omvårdnad)
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Familjefokuserad omvårdnad)ORCID iD: 0000-0002-1876-213X
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Familjefokuserad omvårdnad)ORCID iD: 0000-0002-9714-4056
2014 (English)In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 28, no 1, 29-37 p.Article in journal (Refereed) Published
Abstract [en]

Aims and objectives

The aim of the study was to illuminate the meaning of lived experience of living as a family in the midst of chronic illness.

Background

Chronic illness implies a change for both the individual and the family. In this changed situation, all family members seem to benefit from sharing experiences and receiving support. Current research highlights the individual patient's or family member's perspectives on chronic illness, but family systems nursing (FSN) studies are warranted.

Design

A qualitative design with a FSN approach was chosen.

Method

Repeated qualitative narrative interviews with seven families living with chronic illness were performed. A phenomenological hermeneutic analysis, inspired by Ricoeur, was used to interpret the data.

Results

The phenomenon can be described as an ongoing movement towards well-being. The results included two themes and five sub-themes. The first theme was ‘Co-creating a context for living with illness’ with the subthemes; ‘learning to live with the expressions of illness’ and ‘communicating the illness within and outside the family’. The second theme was ‘Co-creating alternative ways for everyday life’ with the subthemes; ‘adapting to a new life rhythm’, ‘altering relationships’ and ‘changing roles and tasks in the family’.

Conclusions

Living as a family in the midst of chronic illness can be described as an ongoing process where the family members co-create a context for living with illness. They also co-create a context for alternative ways of everyday life.

Relevance to clinical practice

Knowledge about lived experience of living as a family in the midst of chronic illness can help nurses to adopt a FSN care perspective. This can increase the chances of taking advantage of the ways family members manage situations

Place, publisher, year, edition, pages
Wiley-Blackwell, 2014. Vol. 28, no 1, 29-37 p.
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-23010DOI: 10.1111/scs.12023ISI: 000329925600004PubMedID: 3317153OAI: oai:DiVA.org:lnu-23010DiVA: diva2:577713
Available from: 2012-12-16 Created: 2012-12-16 Last updated: 2017-03-16Bibliographically approved
In thesis
1. Den ombokade resan: att leva som familj med kronisk sjukdom
Open this publication in new window or tab >>Den ombokade resan: att leva som familj med kronisk sjukdom
2017 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aim was to generate deepened knowledge and understanding about families’ experiences of living as a family with chronic illness. The four studies aimed to: illuminate the meaning of living as a family in the midst of chronic illness (I), illuminate illness beliefs in those families (II), illuminate the meaning of place for family well-being (III) and describe the experiences of encounters with health care in families living with chronic illness (IV).

Methods: All studies had qualitative designs and a Family Systems Nursing perspective. Data was collected through family interviews with families where an adult family member had lived with chronic illness for more than two years. The used analyses were phenomenological hermeneutic (I,III), hermeneutic (II) and content analysis (IV).

Results: Living as a family with chronic illness was a continuously ongoing process where families co-created a context for living with illness and alternative ways for everyday life (I). Core and secondary beliefs within and across families about illness, family, and health care were revealed and showed for how families responded to and managed situations due to illness (II). Further, the meaning of place for family well-being was described as “a shared respite”, i.e. a place for relief, reflection and re-creation. It seemed to be important for families to be in secure places to enhance well-being (III). Living with chronic illness also includes frequent encounters with health care professionals and having an accompanying member constituted a great power. It helped families to get opportunities to collaborate, and receiving confirmation in the encounters (IV).

Conclusions: Living as a family with chronic illness is a continuously ongoing process where family members constitute support for each other. Families have a common desire to handle challenges and changes due to illness and to co-create new patterns for everyday living. Therefore, if nurses adopt a Family Nursing Perspective and involve families in health care, families’ strengths and resources can be facilitated. Then, family well-being can be strengthened.

Place, publisher, year, edition, pages
Växjö: Linnaeus University Press, 2017. 171 p.
Series
Linnaeus University Dissertations, 278/2017
Keyword
Family systems nursing, Family, Chronic illness, Hermeneutics, Familjecentrerad omvårdnad, kronisk sjukdom, hermeneutik
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-61333 (URN)978-91-88357-61-8 (ISBN)
Public defence
2017-03-03, V159 Storken, Kalmar, 11:21
Opponent
Supervisors
Available from: 2017-03-16 Created: 2017-03-14 Last updated: 2017-03-16Bibliographically approved

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Citation style
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