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Feelings of guilt due to self-inflicted disease: A grounded theory of suffering from chronic obstructive pulmonary disease
Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
2010 (English)In: Journal of Health Psychology, ISSN 1359-1053, E-ISSN 1461-7277, Vol. 15, no 3, 456-466 p.Article in journal (Refereed) Published
Abstract [en]

The aim of this grounded theory studywas to illuminate the main concern ofpeople suffering from chronicobstructive pulmonary disease(COPD) and how they handle theireveryday life. Data were collectedthrough interviews with 23 peoplewith COPD at different stages, frommild to severe. A substantive theorywas generated showing that the mainconcern was feelings of guilt due toself-inflicted disease associated withsmoking habits. This core categorywas related to five managingstrategies termed making sense ofexistence, adjusting to bodilyrestrictions, surrendering to fate,making excuses for the smokingrelatedcause and creating compliancewith daily medication.

Place, publisher, year, edition, pages
2010. Vol. 15, no 3, 456-466 p.
Keyword [en]
chronic obstructive pulmonary disease, daily life, feelings of guilt, grounded theory, main concerns
National Category
Medical and Health Sciences
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-23119DOI: 10.1177/1359105309353646OAI: oai:DiVA.org:lnu-23119DiVA: diva2:580033
Available from: 2013-01-07 Created: 2012-12-20 Last updated: 2013-01-10Bibliographically approved
In thesis
1. Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease
Open this publication in new window or tab >>Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern.

The study design was explorative, comparative and descriptive. The thesis included a literature review of 45 scientific articles and semi-structured interviews with 23 patients suffering from COPD, and 21 women and 19 men living with a spouse suffering from COPD. Data were analysed using content analysis, grounded theory, and phenomenography.

Main findings: Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The thesis shows that there are differences in informal caregiving between males and females.

Conclusion: This thesis shows that there are differences in male and female caregiving for a spouse suffering from COPD. The caregivers conceive and handle the caregiving situation in different ways. It is central that health professionals and municipality consider this along with the individual needs that are related to the development of the COPD. There is a need to identify the person who suffers from COPD and their spouses from the first contact onwards, to regularly follow the development of their situation and need of support.

Place, publisher, year, edition, pages
Växjö, Kalmar: Linnaeus University Press, 2013. 83 p.
Series
Linnaeus University Dissertations, 112/2013
Keyword
Informal caregivers, gender, literature review, Chronic Obstructive Pulmonary Disease, daily life, feelings of guilt, grounded theory, main concerns, male spouses, female spouses, everyday life, phenomenography
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-23308 (URN)978-91-86983-99-4 (ISBN)
Public defence
2013-02-01, Myrdal, Hus K, Växjö, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2013-01-10 Created: 2013-01-07 Last updated: 2016-03-10Bibliographically approved

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CiteExportLink to record
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Citation style
  • apa
  • harvard1
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  • vancouver
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Language
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  • Other locale
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Output format
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