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Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (-)
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
2013 (English)In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 14, no 01, 40-51 p.Article in journal (Refereed) Published
Abstract [en]

Aim To describe conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease (COPD) in different stages.

Background The spouse is often the primary caregiver to someone with COPD, and thus also affected by the consequences of the disease. No previous studies have been found focusing on conceptions of daily life in women living with a man suffering from COPD in different stages.

Methods A phenomenographic study was conducted. Data were collected in 2008–2009 through semi-structured interviews with 21 women living with men suffering from COPD in different stages.

Findings Four main descriptive categories were found: unchanged life situation where no support was needed; socially restricted life and changed roles; changes in health; and changes in the couple's relationship where support was needed. The categories are described in relation to the woman herself, in relation to the man, and in relation to others. No support was needed from society or health care when the men had mild COPD and the women experienced no change in their daily life. As the disease progressed, the women's responsibilities increased and their role changed from being a spouse to being an informal carer. Social contacts became limited, and they began to feel isolated. The women prioritized their spouse's health and well-being and compromised their own health. They experienced lack of support from health professionals and from the municipality.

Place, publisher, year, edition, pages
2013. Vol. 14, no 01, 40-51 p.
Keyword [en]
COPD, everday life, female spouses, nursing, phenomenography
National Category
Nursing Sociology
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-23122DOI: 10.1017/S146342361200031XISI: 000209618700005PubMedID: 22785223Scopus ID: 2-s2.0-84879778419OAI: oai:DiVA.org:lnu-23122DiVA: diva2:580039
Available from: 2013-01-07 Created: 2012-12-20 Last updated: 2017-12-06Bibliographically approved
In thesis
1. Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease
Open this publication in new window or tab >>Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern.

The study design was explorative, comparative and descriptive. The thesis included a literature review of 45 scientific articles and semi-structured interviews with 23 patients suffering from COPD, and 21 women and 19 men living with a spouse suffering from COPD. Data were analysed using content analysis, grounded theory, and phenomenography.

Main findings: Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The thesis shows that there are differences in informal caregiving between males and females.

Conclusion: This thesis shows that there are differences in male and female caregiving for a spouse suffering from COPD. The caregivers conceive and handle the caregiving situation in different ways. It is central that health professionals and municipality consider this along with the individual needs that are related to the development of the COPD. There is a need to identify the person who suffers from COPD and their spouses from the first contact onwards, to regularly follow the development of their situation and need of support.

Place, publisher, year, edition, pages
Växjö, Kalmar: Linnaeus University Press, 2013. 83 p.
Series
Linnaeus University Dissertations, 112/2013
Keyword
Informal caregivers, gender, literature review, Chronic Obstructive Pulmonary Disease, daily life, feelings of guilt, grounded theory, main concerns, male spouses, female spouses, everyday life, phenomenography
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-23308 (URN)978-91-86983-99-4 (ISBN)
Public defence
2013-02-01, Myrdal, Hus K, Växjö, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2013-01-10 Created: 2013-01-07 Last updated: 2016-03-10Bibliographically approved

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Lindqvist, GunillaAlbin, BjörnHeikkilä, KristiinaHjelm, Katarina

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