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Conceptions of daily life in men living with a woman suffering from chronic obstructive pulmonary disease
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (-)
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
2013 (English)In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 14, no 02, 140-150 p.Article in journal (Refereed) Published
Abstract [en]

Aim To describe conceptions of daily life in men living with a woman suffering from chronic obstructive pulmonary disease (COPD) in different stages of the disease. BACKGROUND: A chronic disease like COPD affects not only the person living with the illness, but also the spouse. Significant tasks and demands are placed on husbands. COPD has for a long time been considered more a man's disease than a woman's disease, but according to new evidence COPD is a vast problem in women, which requires support from their spouses. The literature review did not reveal any previous studies concerning conceptions of daily life in men living with women suffering from COPD in different stages. METHODS: A phenomenographic study was conducted. Data were collected from October 2008 to October 2009 through semi-structured interviews with 19 men living with a woman suffering from COPD. Findings Two main descriptive categories were found: (1) unchanged life situation where no support was needed; (2) changed life situation related to severity of COPD, where support was needed. The categories were described from the perspective 'ME and my spouse'. Even in their caregiving situation, the men continued with their own life and activities and did not put themselves in second place. No support was needed from healthcare or municipality when the women had mild COPD, but this changed when the COPD progressed. The men felt that daily life was burdened, restricted and the partner relationship was affected, even if the disease had not reached the final stage. The COPD forced them gradually into a caregiving role, and their daily life changed. They become more of a caregiver than a spouse. The men experienced lack of knowledge and support, and they felt that health professionals and municipality did not care about them.

Place, publisher, year, edition, pages
2013. Vol. 14, no 02, 140-150 p.
Keyword [en]
COPD, everyday life, male spouses, nursing, phenomenography
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-23123DOI: 10.1017/S1463423612000394ISI: 000209618900005PubMedID: 23026500Scopus ID: 2-s2.0-84883161471OAI: oai:DiVA.org:lnu-23123DiVA: diva2:580086
Available from: 2012-12-20 Created: 2012-12-20 Last updated: 2017-12-06Bibliographically approved
In thesis
1. Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease
Open this publication in new window or tab >>Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease
2013 (English)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

The overall aim of this thesis was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern.

The study design was explorative, comparative and descriptive. The thesis included a literature review of 45 scientific articles and semi-structured interviews with 23 patients suffering from COPD, and 21 women and 19 men living with a spouse suffering from COPD. Data were analysed using content analysis, grounded theory, and phenomenography.

Main findings: Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The thesis shows that there are differences in informal caregiving between males and females.

Conclusion: This thesis shows that there are differences in male and female caregiving for a spouse suffering from COPD. The caregivers conceive and handle the caregiving situation in different ways. It is central that health professionals and municipality consider this along with the individual needs that are related to the development of the COPD. There is a need to identify the person who suffers from COPD and their spouses from the first contact onwards, to regularly follow the development of their situation and need of support.

Place, publisher, year, edition, pages
Växjö, Kalmar: Linnaeus University Press, 2013. 83 p.
Series
Linnaeus University Dissertations, 112/2013
Keyword
Informal caregivers, gender, literature review, Chronic Obstructive Pulmonary Disease, daily life, feelings of guilt, grounded theory, main concerns, male spouses, female spouses, everyday life, phenomenography
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-23308 (URN)978-91-86983-99-4 (ISBN)
Public defence
2013-02-01, Myrdal, Hus K, Växjö, 10:00 (Swedish)
Opponent
Supervisors
Available from: 2013-01-10 Created: 2013-01-07 Last updated: 2016-03-10Bibliographically approved

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Lindqvist, GunillaHeikkilä, KristiinaAlbin, BjörnHjelm, Katarina

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