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Family members´caregiving situation in palliative home care when sitting service is received: the understanding of multiple realities
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Palliativt centrum)
Högskolan i Gjörvik, Norge ; Ersta Sköndal Univ Coll, Stockholm.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Palliativt centrum, Familjefokuserad omvårdnad)ORCID iD: 0000-0002-9714-4056
2014 (English)In: BMJ Supportive & Palliative Care, ISSN 2045-435X, E-ISSN 2045-4368, Vol. 12, no 6, p. 425-437Article in journal (Refereed) Published
Abstract [en]

Objective: To deepen the understanding of the variation of complexity in family members' caregiving situations, when the private home is the place for care, dying, and sitting service.

Methods: Seven relatives to a deceased family member from four different families were interviewed twice. Data were analyzed by direct interpretation and categorical aggregation

Results: Various patterns of becoming a caregiver were showed, but family members' willingness to become family caregivers was strongly related to fulfilling the dying persons' wishes to be cared for in their own homes. Important factors for coping with the caregiving situation were their needs of support, the possibility to prepare for death related to a need of communication and planning, the length and predictability of the illness trajectory, and experiences of losses and grief. Sitting service was experienced as supportive for family caregivers when they had possibility to hand over care responsibilities, but as non-supportive when expected help not was received.

Significance of the research: Family members' experiences of caregiving and their degree of vulnerability must be different, depending on whether it is a self-selected position or an imposed task. In general, family members in this study were willing to participate in caregiving for end-of life care, but subject to their own conditions. One way to decrease vulnerability is to assess the resources and competence in relation to the responsibility the person is expected to assume. The support and other efforts to help family caregivers must be related to their specific needs and reality, not only to what the care organization can offer as a standard solution.

Place, publisher, year, edition, pages
Cambridge University Press, 2014. Vol. 12, no 6, p. 425-437
Keywords [en]
Family members, Caregiving situations, Multiple realities, Sitting service, Palliative home care
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-33089DOI: 10.1017/S1478951513000333ISI: 000346801000002PubMedID: 23782917Scopus ID: 2-s2.0-84964260998OAI: oai:DiVA.org:lnu-33089DiVA, id: diva2:706459
Available from: 2014-03-20 Created: 2014-03-20 Last updated: 2017-12-05Bibliographically approved

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Wallerstedt, BirgittaBenzein, Eva

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