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Development and evaluation of the EOL-ICDQ as a measure of experiences, attitudes and knowledge in end-of-life in patients living with an implantable cardioverter defibrillator
Linköping Univ Hosp / Cty Council Östergötland.
Linköping Univ.
Cty Council Östergötland.
Linköping Univ Hosp / Cty Council Östergötland.
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2014 (English)In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 13, no 2, p. 142-151Article in journal (Refereed) Published
Abstract [en]

Background: Due to extended indications and resynchronization therapy, many implantable cardioverter defibrillator (ICD) recipients will experience progressive co-morbid conditions and will be more likely to die of causes other than cardiac death. It is therefore important to elucidate the ICD patients' preferences when nearing end-of-life. Instead of avoiding the subject of end-of-life, a validated questionnaire may be helpful to explore patients' experiences and attitudes about end-of-life concerns and to assess knowledge of the function of the ICD in end-of-life. Validated instruments assessing patients' perspective concerning end-of-life issues are scarce. Aim: The purpose of this study was to develop and evaluate respondent satisfaction and measurement properties of the Experiences, Attitudes and Knowledge of End-of-Life Issues in Implantable Cardioverter Defibrillator Patients' Questionnaire' (EOL-ICDQ). Methods: The instrument was tested for validity, respondent satisfaction, and for homogeneity and stability in the Swedish language. An English version of the EOL-ICDQ was validated, but has not yet been pilot tested. Results: The final instrument contained three domains, which were clustered into 39 items measuring: experiences (10 items), attitudes (18 items), and knowledge (11 items) of end-of-life concerns in ICD patients. In addition, the questionnaire also contained items on socio-demographic background (six items) and ICD-specific background (eight items). The validity and reliability properties were considered sufficient. Conclusions: The EOL-ICDQ has the potential to be used in clinical practice and future research. Further studies are needed using this instrument in an Anglo-Saxon context with a sample of English-speaking ICD recipients.

Place, publisher, year, edition, pages
2014. Vol. 13, no 2, p. 142-151
Keywords [en]
Cognitive interviewing, end-of-life questionnaire, implantable cardioverter defibrillator, proactive communication, psychometric testing, respondent satisfaction
National Category
Health Sciences
Research subject
Health and Caring Sciences
Identifiers
URN: urn:nbn:se:lnu:diva-33571DOI: 10.1177/1474515113515563ISI: 000332104200007Scopus ID: 2-s2.0-84896751617OAI: oai:DiVA.org:lnu-33571DiVA, id: diva2:709828
Available from: 2014-04-03 Created: 2014-04-03 Last updated: 2017-12-05Bibliographically approved

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Årestedt, Kristofer

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