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The meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting: a reflective lifeworld approach
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
2014 (English)In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 23, no 11-12, p. 1583-1592Article in journal (Refereed) Published
Abstract [en]

Aims and objectives. This study describes the meaning of the lived experiences of adults with intellectual disabilities in a Swedish institutional care setting. Background. Despite the general intention of the Swedish law to give care and support for adults with intellectual disabilities in small settings in the community, large institutional care settings exist in Sweden. It is also known that adults with intellectual disabilities have more influence over their care and support when living in small settings than in large institutions. There is a dearth research in regard to studies that focus on how adults with intellectual disabilities experiences their everyday life in such settings. Design. A qualitative design was used to gain a deeper understanding of the lived experiences of adults with intellectual disabilities in an institutional care setting in Sweden. Methods. Fieldwork from September 2006 to June 2009 in an institutional care setting including participant observation and in-depth interviews with 12 residents was used. Verbatim-transcribed text was analysed using a phenomenological reflective lifeworld approach. Results. The essential picture of the phenomenon was experienced 'as a meaningful and meaningless existence' and was reflected in residents' descriptions of their everyday life in the setting. It was characterised by the constituents: ambiguous dependency, social interactions and everyday life in a restricted area. Conclusion. The results reveal the importance of paying close attention to what adults with intellectual disabilities have to say about their everyday life when living in an institutional care setting. For caring practices of people with intellectual disabilities, it is scarcely satisfactory that residents experience an ambivalent dependency and of having to live in a restricted area. Relevance to clinical practice. The results of this study contribute to better insight and deeper knowledge of the lived experiences of adults with intellectual disabilities, enabling the staff and management to further enhance the well-being for residents. In addition, the findings provide feedback to staff, managers and researchers working in the intellectual disabilities field.

Place, publisher, year, edition, pages
2014. Vol. 23, no 11-12, p. 1583-1592
Keywords [en]
adults with intellectual disabilities, lived experiences, institutional care setting, Sweden
National Category
Health Sciences
Research subject
Health and Caring Sciences
Identifiers
URN: urn:nbn:se:lnu:diva-34848DOI: 10.1111/j.1365-2702.2012.04208.xISI: 000335443800012Scopus ID: 2-s2.0-84899627293OAI: oai:DiVA.org:lnu-34848DiVA, id: diva2:722701
Available from: 2014-06-09 Created: 2014-06-09 Last updated: 2017-12-05Bibliographically approved

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Berlin Hallrup, Leena

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  • apa
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More languages
Output format
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  • asciidoc
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