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Families Living With Chronic Illness: Beliefs About Illness, Family, and Health Care
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Familjefokuserad omvårdnad)
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Familjefokuserad omvårdnad ; Center for Collaborative Palliative Care)ORCID iD: 0000-0002-1876-213X
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (Familjefokuserad omvårdnad ; Center for Collaborative Palliative Care)ORCID iD: 0000-0002-9714-4056
2015 (English)In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 21, no 2, 206-231 p.Article in journal (Refereed) Published
Abstract [en]

Beliefs can be described as the lenses through which we view the world. With emerging illness, beliefs about the illness experience become important for nurses to understand to enhance well-being and healing. The aim of this study was to illuminate illness beliefs of families living with chronic illness. A qualitative design was chosen, including repeated narrative research interviews with seven Swedish families living with chronic illness. Hermeneutic analysis was used to interpret the transcribed family interviews. The result described beliefs in families, both within and across families. Both core beliefs and secondary beliefs about illness, family, and health care were revealed. Illness beliefs have importance for how families respond to and manage situations that arise from their encounters with illness. Nurses have to make space for and listen to families’ stories of illness to become aware of what beliefs may support and encourage family well-being and healing. The Illness Beliefs Model provides a touchstone whereby nurses can distinguish both individual and shared beliefs within families living with chronic illness and provide ideas for family intervention if needed.

Place, publisher, year, edition, pages
Sage Publications, 2015. Vol. 21, no 2, 206-231 p.
Keyword [en]
chronic illness, families, beliefs about illness, beliefs about families, beliefs about health care, Illness Beliefs Model, hermeneutic inquiry, Sweden
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-42623DOI: 10.1177/1074840715576794ISI: 000354871600003OAI: oai:DiVA.org:lnu-42623DiVA: diva2:805642
Available from: 2015-04-15 Created: 2015-04-15 Last updated: 2017-03-16Bibliographically approved
In thesis
1. Den ombokade resan: att leva som familj med kronisk sjukdom
Open this publication in new window or tab >>Den ombokade resan: att leva som familj med kronisk sjukdom
2017 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aim was to generate deepened knowledge and understanding about families’ experiences of living as a family with chronic illness. The four studies aimed to: illuminate the meaning of living as a family in the midst of chronic illness (I), illuminate illness beliefs in those families (II), illuminate the meaning of place for family well-being (III) and describe the experiences of encounters with health care in families living with chronic illness (IV).

Methods: All studies had qualitative designs and a Family Systems Nursing perspective. Data was collected through family interviews with families where an adult family member had lived with chronic illness for more than two years. The used analyses were phenomenological hermeneutic (I,III), hermeneutic (II) and content analysis (IV).

Results: Living as a family with chronic illness was a continuously ongoing process where families co-created a context for living with illness and alternative ways for everyday life (I). Core and secondary beliefs within and across families about illness, family, and health care were revealed and showed for how families responded to and managed situations due to illness (II). Further, the meaning of place for family well-being was described as “a shared respite”, i.e. a place for relief, reflection and re-creation. It seemed to be important for families to be in secure places to enhance well-being (III). Living with chronic illness also includes frequent encounters with health care professionals and having an accompanying member constituted a great power. It helped families to get opportunities to collaborate, and receiving confirmation in the encounters (IV).

Conclusions: Living as a family with chronic illness is a continuously ongoing process where family members constitute support for each other. Families have a common desire to handle challenges and changes due to illness and to co-create new patterns for everyday living. Therefore, if nurses adopt a Family Nursing Perspective and involve families in health care, families’ strengths and resources can be facilitated. Then, family well-being can be strengthened.

Place, publisher, year, edition, pages
Växjö: Linnaeus University Press, 2017. 171 p.
Series
Linnaeus University Dissertations, 278/2017
Keyword
Family systems nursing, Family, Chronic illness, Hermeneutics, Familjecentrerad omvårdnad, kronisk sjukdom, hermeneutik
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-61333 (URN)978-91-88357-61-8 (ISBN)
Public defence
2017-03-03, V159 Storken, Kalmar, 11:21
Opponent
Supervisors
Available from: 2017-03-16 Created: 2017-03-14 Last updated: 2017-03-16Bibliographically approved

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