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A shared respite: The meaning of place for family well-being in families living with chronic illness
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.ORCID iD: 0000-0002-9714-4056
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.ORCID iD: 0000-0002-1876-213X
Malmö University.
2016 (English)In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 11, 30308Article in journal (Refereed) Published
Resource type
Text
Abstract [en]

Living with chronic illness is a family affair that involves ongoing changes and challenges in everyday life. When life changes, the environment is important for family health and well-being. The relation between a place and a family is rarely described, and therefore the aim of this study was to explore the meaning of place for family well-being in families living with chronic illness. A qualitative design was chosen. Data were collected by photovoice combined with narrative family research interviews with 10 families living with chronic illness. A phenomenological hermeneutic analysis was used to interpret the data. The results showed that the meaning of place for family well-being in families living with chronic illness can be described as "a shared respite.'' This main theme included three subthemes: "a place for relief,'' "a place for reflection,'' and "a place for re-creation.'' These results were further understood by means of the concept place security. Feeling well means having place security in these families. Through knowledge about the meaning of place for family well-being, health care personnel can stimulate families living with chronic illness to find respite in places that contribute to well-being, both in familiar and new places.

Place, publisher, year, edition, pages
2016. Vol. 11, 30308
Keyword [en]
Family systems nursing, place security, sense of place, family well-being, chronic illness, phenomenological hermeneutics
National Category
Nursing
Research subject
Health and Caring Sciences
Identifiers
URN: urn:nbn:se:lnu:diva-52125DOI: 10.3402/qhw.v11.30308ISI: 000372205500001PubMedID: 26956097Scopus ID: 2-s2.0-84962218353OAI: oai:DiVA.org:lnu-52125DiVA: diva2:920528
Available from: 2016-04-18 Created: 2016-04-18 Last updated: 2017-03-16Bibliographically approved
In thesis
1. Den ombokade resan: att leva som familj med kronisk sjukdom
Open this publication in new window or tab >>Den ombokade resan: att leva som familj med kronisk sjukdom
2017 (Swedish)Doctoral thesis, comprehensive summary (Other academic)
Abstract [en]

Aim: The overall aim was to generate deepened knowledge and understanding about families’ experiences of living as a family with chronic illness. The four studies aimed to: illuminate the meaning of living as a family in the midst of chronic illness (I), illuminate illness beliefs in those families (II), illuminate the meaning of place for family well-being (III) and describe the experiences of encounters with health care in families living with chronic illness (IV).

Methods: All studies had qualitative designs and a Family Systems Nursing perspective. Data was collected through family interviews with families where an adult family member had lived with chronic illness for more than two years. The used analyses were phenomenological hermeneutic (I,III), hermeneutic (II) and content analysis (IV).

Results: Living as a family with chronic illness was a continuously ongoing process where families co-created a context for living with illness and alternative ways for everyday life (I). Core and secondary beliefs within and across families about illness, family, and health care were revealed and showed for how families responded to and managed situations due to illness (II). Further, the meaning of place for family well-being was described as “a shared respite”, i.e. a place for relief, reflection and re-creation. It seemed to be important for families to be in secure places to enhance well-being (III). Living with chronic illness also includes frequent encounters with health care professionals and having an accompanying member constituted a great power. It helped families to get opportunities to collaborate, and receiving confirmation in the encounters (IV).

Conclusions: Living as a family with chronic illness is a continuously ongoing process where family members constitute support for each other. Families have a common desire to handle challenges and changes due to illness and to co-create new patterns for everyday living. Therefore, if nurses adopt a Family Nursing Perspective and involve families in health care, families’ strengths and resources can be facilitated. Then, family well-being can be strengthened.

Place, publisher, year, edition, pages
Växjö: Linnaeus University Press, 2017. 171 p.
Series
Linnaeus University Dissertations, 278/2017
Keyword
Family systems nursing, Family, Chronic illness, Hermeneutics, Familjecentrerad omvårdnad, kronisk sjukdom, hermeneutik
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-61333 (URN)978-91-88357-61-8 (ISBN)
Public defence
2017-03-03, V159 Storken, Kalmar, 11:21
Opponent
Supervisors
Available from: 2017-03-16 Created: 2017-03-14 Last updated: 2017-03-16Bibliographically approved

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Citation style
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