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  • 1.
    Blomberg, Barbro
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Bergbäck, Ewa
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Organisering av pedagogiskt stöd i högre utbildning: En studie om studenter med funktionsnedsättningar och deras erfarenheter av högre utbildning i Sverige, Tjeckien och USA2013Report (Other academic)
    Abstract [en]

    Access to higher education is an issue of human rights, since higher education often is a pre-requisite for obtaining paid work for persons with disabilities. This study examines higher education and accommodations aimed at promoting an accessible education from the view of students with disabilities, arising out of a comparative analysis of interviews with students in Sweden, The Czech Republic and the US. The aim of the study was to explore students´ perspectives on their participation in higher education, the supporting system and the meaning of the concept of an accessible education. The study was conducted at two universities in Sweden and the CzechRepublic and one university in the USA. Overall 48 students were interviewed about their experiences. Interviews were also conducted with six coordinators at the five universities. Major differences appeared in the organization of and eligibility for support in the different countries. One example is to what extent support relies on individualized accommodations or on general accessibility.  Although differences are obvious in policy as well as practice, the findings also show that students share some experiences of being in higher education. A shared experience among student is the decisive relationship with the teacher. Teachers are viewed as the core of the academic education which can either take a supportive and facilitating role or preclude all possibilities of an education. Furthermore, the findings indicate a gap between policy and practice that opens for a discussion on the meaning of accessibility in higher education.

  • 2.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Building on users' knowledge as a basis for professional expertise? An example from Swedish social care services2015In: European Journal of Social Work, ISSN 1369-1457, E-ISSN 1468-2664, Vol. 18, no 5, p. 718-730Article in journal (Refereed)
    Abstract [en]

    Implementing new occupations in social care services as a solution to social problems challenges the knowledge base for social care. This has been particularly evident in services for persons with disabilities. Social policy has emphasized influence over services for persons with disabilities and hence has implemented personal assistance and case management services. Using these as examples, this article explores the professional logic developed, and the ways it relate to existing social professions. The results are presented in a typology defining two occupations as examples of a professional logic based on users’ knowledge. This logic, here called ‘user-mandated professionalism’, is denoted by wide discretion, relationships with users built on trust, and legitimacy mainly stemming from user organizations. The analysis then raises the challenge for social professionals in social care occupations based on users’ knowledge to be explicit about the knowledge base they build on in their arguments and in decision-making.

  • 3.
    Järkestig Berggren, Ulrika
    University of Kalmar, School of Human Sciences.
    Case Manager in a Swedish Context -2005Conference paper (Refereed)
  • 4.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Framväxten av ett nytt yrke och dess påverkan på professionellas handlingsutrymme2011In: Arbetsmarknad & Arbetsliv, ISSN 1400-9692, no 4, p. 109-120Article in journal (Refereed)
  • 5.
    Järkestig Berggren, Ulrika
    University of Kalmar, School of Human Sciences.
    "Jag har förlorat den jag var"2000Other (Other academic)
  • 6.
    Järkestig Berggren, Ulrika
    University of Kalmar, School of Human Sciences.
    Personligt ombud - på klientens uppdrag förhandlare och gränsöverskridare2005In: SocialstyrelsenArticle, review/survey (Other academic)
  • 7.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Personligt ombud och förändringsprocesser på det socialpsykiatriska fältet2010Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    In a new reform in 2001, Swedish authorities emphasized the need for support for persons with psychiatric disabilities living in the community. This reform included the establishment of a new occupation: the Swedish case manager, personligt ombud (PO). In examining this new occupation, the overall aim of this thesis is to analyze how the Swedish case manager, PO, as an evolving occupation, affects and is affected by the organisational and professional field in which it enters. More specifically, the aim is to describe and analyse, using organisational and professional theories, the changing processes that the PO con-tributes to in the welfare system and the practice of social policy, the field of social psychiatry focusing on the discretion for professionals and in the under-standing of the professional role to help as described by clients.

    Three studies have been carried out. The first study, for the licentiate´s degree, focused on the PO occupational role and functions for the welfare system as well as for mental health service users. In the second study, the results from the first study were analyzed together with the results of another reform, namely, the Swedish care manager reform, in order to investigate their joint implications for social policy and its practice. The third study focused on what meaning the PO has for the clients and particularly what features of the service the clients find to be helpful.

    In summary, the results indicate that the PO contributes to the development of a negotiated rights model, by taking on the assignment of advocacy as a client representative, and then defining the social worker as a representative for the organisation with the assignment of needs assessment. In the field of social psychiatry, the PO fills a vacancy by supporting the legitimacy of the professionals as well as their organisations. Furthermore, the PO has a function of providing organised transparency through restricting the discretion of other professionals. The discretion of the PO itself has weak boundaries allowing for great liberty of action. Finally, the PO service has led to a new understanding of the professional role, as built on reciprocity with the client, using knowledge evolving from the interaction between the professional PO and the client. These findings suggest that the PO could be understood as a new occupation evolving from weak professional traits to, as suggested, a new model for professionalism, called user-mandated professionalism. This emphasizes the reciprocative foundation of knowledge between the service user and the professional.

  • 8.
    Järkestig Berggren, Ulrika
    Växjö University, Faculty of Humanities and Social Sciences, School of Health Sciences and Social Work.
    Personligt ombud: Social praktik i medicinsk diskurs2006Licentiate thesis, monograph (Other academic)
    Abstract [en]

    The objective of this licentiate’s dissertation is the developing occupational role of ‘personligt ombud’ (PO), a case manager for persons with severe psychiatric disabilities. The purpose of PO, put forward by a government’s commission (Psykiatriutredningen) 1992, was to implement a new way of providing support and to coordinate interventions with an aim to improve the life conditions of persons with severe psychiatric disabilities.

    The aim of this licentiate’s dissertation is to characterize PO as a phenomenon within disability politics.

    The empirical data were collected in three counties, viz the counties of Blekinge, Kalmar and Kronoberg. All POs within these counties were inter-viewed as well as influential managers. Clients of the POs were also interviewed.

    The results imply that POs construct their understanding of their clients’ problems within a medical discourse, individualizing the problems as a result of illness. However, in their actions to solve problems they take social measures relating to a citizen discourse, focusing on citizen rights and living conditions. The occupational role of the PO develops within these discourses in conflict.

    The POs’ courses of action were analyzed as four stylized patterns that can be identified with methods and theory in Social Work: rehabilitation, paternalism, empowerment and advocacy. Empowerment and advocacy can be seen as new courses of action used by POs as professionals within the public sector for sup-porting this target group.

    Conclusions indicate that while formulating medical explanations to their cli-ents’ problems, the lack of language to formulate and analyze the structural and social problems is creating a risk of POs strengthening the exclusionary proc-esses. Nevertheless, the occupational role of the PO has developed a new ex-pected function as society integrated support, built on empowerment, advocacy and user control.

  • 9.
    Järkestig Berggren, Ulrika
    University of Kalmar, School of Human Sciences.
    Voice in Needs Assessment2007Conference paper (Refereed)
  • 10.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Bergman, Ann-Sofie
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Barn är anhöriga: när en förälder är svårt sjuk eller dör2015In: Utsatt barndom, sårbara familjer och samhällets insatser, 18-20 mars, 2015, Göteborg, Göteborg: Göteborgs universitet, 2015Conference paper (Refereed)
  • 11.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Blomberg, Staffan
    Lund University.
    Petersson, Jan
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Traits of a representative welfare state: the Swedish example2010In: International Journal of Social Welfare, ISSN 1369-6866, E-ISSN 1468-2397, Vol. 19, no 4, p. 402-411Article in journal (Refereed)
    Abstract [en]

    The care manager reform and the case manager reform are new reforms in the social care services in Sweden, which are evolving during the 2000s. Together they shape the social care services introducing a new way of decision-making where representatives for the organisation (care manager) and the users (case manager) negotiate. The reforms have been analysed in two studies with results presented in this article. Using the concepts of role, orientation, function and assignments, it is argued that the managers come to the negotiations on rights from different positions that are both conflicting and complementary. They further mediate the development towards a welfare mix, where the market, social networks and users interact to obtain the public welfare provision. Through this negotiated rights model, it is argued that traits of a representative welfare state emerge, with the distinction of moving the focus to the administrative practices and their differences away from political ideologies.

  • 12.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Social Work.
    Gunnarsson, Evy
    Stockholms universitet, Institutionen för socialt arbete.
    User-oriented mental health reform in Sweden: featuring "professional friendship"2010In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 25, no 5, p. 565-577Article in journal (Refereed)
  • 13.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Barn som är anhöriga till föräldrar med allvarlig fysisk sjukdom eller skada: En kunskapsöversikt om metoder för att ge stöd till barn2013Report (Other academic)
  • 14.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Children as next of kin: a scoping review of support interventions for children who have a parent with a serious physical illness2016In: Child Care in Practice, ISSN 1357-5279, E-ISSN 1476-489X, Vol. 22, no 3, p. 277-295Article in journal (Refereed)
    Abstract [en]

    Young children and adolescents who have a parent with a serious physical illness require information and support to cope with their everyday lives. The purpose of this scoping review was to summarise and disseminate the research findings of interventions that support children in families with a serious physically ill parent. The review also aimed to identify research gaps in the existing literature. Following a comprehensive search, only nine support interventions from 12 studies were identified, indicating that a dearth of intervention research has been conducted in the area. Although positive results were reported from all interventions at some stage, many of the studies were small pilot studies that did not show robust proof of the effectiveness of the interventions. However, the scoping review revealed that the main aim of most interventions is to enhance family functioning for all afflicted families by helping parents to communicate with their children. Further, some interventions offer a comprehensive support for identified “at risk” families. Few interventions examined the improvement within the everyday lives of families facing a serious physical illness other than cancer or HIV. The measures of effectiveness for children were limited to internal psychological symptoms of stress and depression, behavioural problems and issues regarding communication within the family. Few studies evaluated external measures; for example, effects on children's care burden, improved support from social network or school achievements. Implications for practitioners include gaining inspiration from the programmes to enhance communication between parents and children and also, wherever possible, to ask children themselves to evaluate the effectiveness of the support offered to them.

  • 15.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Stöd till barn när en förälder är allvarligt fysiskt sjuk2015In: Att se barn som anhöriga-om beroende i relationer, interventioner och omsorgsansvar: Antologi / [ed] Ulrika Järkestig Berggren, Lennart Magnusson & Elizabeth Hanson, Kalmar: Nka, Linnéuniversitetet , 2015, p. 179-198Chapter in book (Other academic)
    Abstract [sv]

    Barn föds anhöriga och växer upp som anhöriga till föräldrar och syskon och andra viktiga personer i familjen. I dessa relationer har minderåriga barn sin trygghet och tillitsbas att bygga sitt liv på. Omvänt får de svårigheter som drabbar föräldrar eller syskon konsekvenser också för barn. Vilka är dessa konsekvenser och hur kan vi förstå barns anhörigskap? Vilka roller kan barnet ha i sin familj? När behöver barn och föräldrar stöd och hur?

  • 16.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Stödprogram riktade till barn och/eller föräldrar när en förälder missbrukar alkohol eller andra droger - en kunskapsöversikt2016Report (Other academic)
    Abstract [sv]

    Syftet med denna kunskapsöversikt är att systematiskt kartlägga, granska och sammanställa kunskap om vilka utvärderade metoder och program som finns för att ge stöd till barn och/eller förälder när en förälder är beroende av alkohol eller andra droger. Kunskapsöversikten syftar också till att ge underlag för slutsatser om behov och riktning för vidare kunskapsutveckling och forskning.

  • 17.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Support for children and their families when a parent is serously ill: a review of research2015In: NNDR - Nordic Network on Disability Research, May 6-8, 2015, Bergen, 2015Conference paper (Refereed)
    Abstract [en]

    Young children and adolescents whose parents face a serious physical illness or a physical disability require information and support to cope with their everyday lives. Since 2010 health care professionals in Sweden are responsible according to the Swedish Health Care Act §2g to consider the need children under 18 years have for information, advice and support when a parent has a mental disorder or psychiatric disability, has a serious physical illness or injury, abuses alcohol or other drugs or has unexpectedly died. The paragraph is one initiative to incorporate the UN Convention of  the Rights of the Child with Swedish law. Therefore a review of published research on methods used to support children and their parents was undertaken.

    Using a narrative approach, the scoping review first aims to summarise and disseminate the research findings of interventions that support children in families with a seriously ill parent. The second goal is to identify research gaps in the existing literature. In a comprehensive search, only thirteen studies were identified, indicating that little research has been conducted on improving interventions for children. Although positive results were reported from all interventions at some stage, many of the studies were small pilot studies that did not show robust proof of the effectiveness of the interventions. Overall, however, the scoping review identified promising interventions for further evaluation and underscored the need for further intervention studies. For example, our review found that few interventions examined the improvements of everyday lives of families facing serious physical illness or disability other than cancer or HIV. The measures of effectiveness for children were also limited to internal psychological symptoms of stress and depression, behavioural problems and issues regarding communication within the family. Few studies evaluated external measures, for example effects on children’s care burden, improved support from social network or school achievements.

  • 18.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Magnusson, LennartLinnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.Hanson, ElizabethLinnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Att se barn som anhöriga - om beroende i relationer, interventioner och omsorgsansvar: Antologi2015Collection (editor) (Other academic)
    Abstract [sv]

    Barn föds anhöriga och växer upp som anhöriga till föräldrar och syskon och andra viktiga personer i familjen. I dessa relationer har minderåriga barn sin trygghet och tillitsbas att bygga sitt liv på. Omvänt får de svårigheter som drabbar föräldrar och syskon konsekvenser också för barn. Vilka är dessa konsekvenser och hur kan vi förstå barns anhörigskap? Vilka roller kan barnet ha i sin familj? När behöver barn och föräldrar stöd och hur?

  • 19.
    Järkestig Berggren, Ulrika
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Rowan, Diana
    University of North Carolina, USA.
    Bergbäck, Ewa
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Blomberg, Barbro
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Disabled students' experiences of higher education in Sweden, the Czech Republic, and the United States: a comparative institutional analysis2016In: Disability & Society, ISSN 0968-7599, E-ISSN 1360-0508, Vol. 31, no 3, p. 339-356Article in journal (Refereed)
    Abstract [en]

    Students with disabilities face obstacles in their encounters with higher education. The aim of this study is to investigate how the institutional context shapes students' experiences of unequal opportunities in higher education. In comparing disabled students' experiences from universities in Sweden, the Czech Republic, and the United States, the study makes visible the kind of experiences that students share and how experiences differ between these countries within the global context of higher education. The study has shown that students' possibilities for equal participation are shaped by the institutional context that is based on medical diagnosis and compensation for an inaccessible education.

  • 20.
    Rowan, Diana
    et al.
    University of North Carolina at Charlotte, USA.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Cambridge, Innette
    University of the West Indies, Trinidad and Tobago.
    McAuliffe, Donna
    Griffith University, Australia.
    Fung, Annis
    City University of Hong Kong, China.
    Moore, Michael
    Unviersity of North Carolina at Charlotte, USA.
    The 6 Continents Project: A method for linking social work classrooms for intercultural exchange through asynchronous video sharing2015In: International Social Work, ISSN 0020-8728, E-ISSN 1461-7234, Vol. 58, no 4, p. 484-494Article in journal (Refereed)
    Abstract [en]

    To develop social work students’ understanding of the global context of social work, an asynchronous video uploading project was constructed to link social work classrooms on six continents. Students in social work classrooms around the world video-recorded their responses to prompting questions and uploaded them to a project webpage, to which all classrooms had access. Asynchronous uploading allowed students to view and then respond via video to other students without concern for time zone synchronization. This pedagogical approach was designed and implemented to broaden students’ intercultural competence, perspectives on international social work, and awareness of global social problems.

  • 21.
    Rowan, Diana
    et al.
    University of North Carolina at Charlotte, USA.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    McAuliffe, Donna
    Griffith University, Australia.
    Cambridge, Innette
    University of the West Indies, Trinidad and Tobago.
    Fung, Annis
    City University of Hong Kong, China.
    Moore, Michael
    University of North Carolina at Charlotte, USA.
    Advancing Intercultural Competence Through the Use of Technology: The 6 Continents Project2014In: Global Social Transformation and Social Action: The Role of Social Workers / [ed] Hessle, Sven, Farnham, UK: Ashgate, 2014, p. 147-153Chapter in book (Refereed)
  • 22.
    Svanevie, Kajsa
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Järkestig Berggren, Ulrika
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Perspektiv på yrkeslärande: En planerad studie av det svenska socionomprogrammets verksamhetsförlagda utbildning2014Conference paper (Refereed)
    Abstract [sv]

    Socionomprogrammet utbildar till en profession som råder över omfattande samhällsresurser, innehar långtgående definitionsmakt och som fattar beslut med betydande konsekvenser för enskilda. Socionomutbildningen är en generalistutbildning som har att svara mot förväntningar från ett diversifierat och kontextberoende yrkesfält. Yrkesfältet karaktäriseras idag av en ökande specialisering, samtidigt som det pågår riktade försök att etablera sk. evidensbaserad praktik (EBP) med förstärkta krav på vetenskaplig förankring. Ett utbildningsinslag i skärningspunkten mellan vetenskap och yrkespraktik, angeläget att studera närmare är den verksamhetsförlagda utbildningen (VFU). Syfte med paperet är att beskriva en planerad studie om huruvida VFU vid de svenska socionomprogrammen bidrar till att främja yrkeskunskap i linje dels med EBP, dels med intressenters förväntningar på yrkesspecifikt kunnande. Den planerade studien innefattar två delstudier. Den första utgör en diskursanalytiskt orienterad dokumentstudie. Avsikten är att analysera kursplaner och examinationer av VFU i landets socionomutbildningar avseende föreställningar om yrkeskunskap, med fokus på om och hur EBP integreras. Den andra delstudien utgör en intressentstudie. I denna är avsikten att genom fokusgruppintervjuer inom socialtjänstens individ- och familjeomsorg (barn och unga) respektive äldreomsorg undersöka intressenters förväntningar på yrkesrelevant kunnande. Studien förväntas bidra med ny kunskap om det lärande som främjas vid socionomprogrammets VFU och huruvida detta ligger i linje dels med EBP, dels med intressenters förväntningar på yrkesrelevant kunnande.

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