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  • 1.
    Golsäter, Marie
    et al.
    Högskolan i Jönköping, HHJ, Avd. för omvårdnad.
    Enskär, Karin
    Högskolan i Jönköping, HHJ, Avd. för omvårdnad.
    Knutsson, Susanne
    Högskolan i Jönköping, HHJ, Avd. för omvårdnad.
    Contributing to making the school a safe place for the child: School nurses’ perceptions of their assignment when caring for children having parents with serious physical illness2017In: Nursing Open, E-ISSN 2054-1058, Vol. 4, no 4, p. 267-273Article in journal (Refereed)
    Abstract [en]

    Aim: To explore how school nurses perceive their assignment when caring for children having parents with serious physical illness.

    Design: An explorative inductive qualitative design.

    Method: The study is based on interviews with 16 school nurses. The interviews were subjected to qualitative content analysis.

    Results: The main category, “Contribute in making the school a safe place for the child”, reveals how the school nurses try to contribute to making the school a safe place for a child when his/her parent has a serious physical illness. They support children through individual support, as well as at an overall level in the school health team to make the school, as an organization, a safe place. Routines and collaboration to recognize the child when his/her parent has become ill is described as crucial to accomplishing this assignment

  • 2.
    Golsäter, Marie
    et al.
    Jönköping University, Sweden;Region Jönköping County, Sweden.
    Enskär, Karin
    Jönköping University, Sweden.
    Knutsson, Susanne
    Jönköping University, Sweden.
    Parents’ perceptions of how nurses care for children as relatives of an ill patient: Experiences from an oncological outpatient department2019In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 39, p. 35-40Article in journal (Refereed)
    Abstract [en]

    Purpose:

    Research has shown that a child's knowledge about what is happening to a parent when he/she has a cancer disease is crucial to the child's health and wellbeing. Therefore the purpose of this study was to explore parents’ perceptions of how nurses in clinical practice care for children as relatives when one parent in the family has a cancer disease.

    Method:

    A qualitative explorative design with interviews was used. Altogether 28 parents (17 patients and 11 partners) were interviewed. The transcripts from the interviews were subjected to qualitative content analysis.

    Results:

    The parents perceive that the nurses make efforts to support the child as well as them as parents, but feel that the care needs to be more tailored to the specific child and his/her situation. The children are initially invited, generally informed and seen by the nurses, but the parents perceive that they themselves need repeated support and advice over time to uphold their parental responsibility for caring for their children during the illness trajectory.

    Conclusion:

    The parents argue for the importance of receiving repeated advice and support for how to talk to their children about the disease and treatment. The parents describe how the nurses were helpful by asking after the children and explaining the value of their visiting the hospital.

  • 3.
    Golsäter, Marie
    et al.
    Jönköping University, Sweden;Region Jönköping County, Sweden.
    Henricson, Maria
    Jönköping University, Sweden.
    Enskär, Karin
    Jönköping University, Sweden.
    Knutsson, Susanne
    Jönköping University, Sweden.
    Are children as relatives our responsibility?: How nurses perceive their role in caring for children as relatives of seriously ill patients2016In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 25, p. 33-39Article in journal (Refereed)
    Abstract [en]

    Purpose: The purpose of this study was to elucidate how nurses perceive their role in caring for children as relatives to a parent with a serious physical illness.

    Method: A qualitative explorative design with focus group interviews was used. In total, 22 nurses working at one neurological, one haematological and two oncological wards were interviewed. The transcripts from the interviews were analysed in steps in accordance with inductive qualitative content analysis.

    Results: This study revealed six variations in how nurses perceived their role in the encounter with child relatives, ranging from being convinced that it is not their responsibility to being aware of the children's situation and working systematically to support them.

    Conclusion: Nurses should consider whether their patients have children who might be affected by their parent's illness. The nurses' self-confidence when meeting these children must be increased by education in order to strengthen their professional role. Furthermore, guidelines on how to encounter child relatives are required.

  • 4.
    Knutsson, Susanne
    et al.
    Jönköping University, Sweden.
    Enskär, Karin
    Jönköping University, Sweden.
    Andersson-Gäre, Boel
    Region Jönköping County, Sweden;Jönköping University, Sweden.
    Golsäter, Marie
    Jönköping University, Sweden;Region Jönköping County, Sweden.
    Children as relatives to a sick parent: Healthcare professionals’ approaches2017In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 37, no 2, p. 61-69Article in journal (Refereed)
    Abstract [en]

    An illness or injury sustained by a family member affects all family members. It is consequently important that a child’s need to be involved in a family member’s care is clearly recognized by healthcare professionals. The aim of this study was to describe healthcare professionals’ approaches to children as relatives of a parent being cared for in a clinical setting. A web-based study-specific questionnaire was sent and responded to by 1052 healthcare professionals in Sweden. Data were analysed using descriptive statistics and qualitative analysis. The results show that guidelines and routines are often lacking regarding involving children in the care of a parent. Compared to other areas, psychiatric units seem to have enacted routines and guidelines to a greater extent than other units. The results indicate that structured approaches based on an awareness of the children’s needs as well as a child-friendly environment are vital in family-focused care. These aspects need to be prioritized by managers in order to support children’s needs and promote health and wellbeing for the whole family.

  • 5.
    Knutsson, Susanne
    et al.
    Jönköping University, Sweden.
    Enskär, Karin
    Jönköping University, Sweden.
    Golsäter, Marie
    Jönköping University, Sweden;Jönköping Region, Sweden.
    Nurses' experiences of what constitutes the encounter with children visiting a sick parent at an adult ICU2017In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 39, p. 9-17Article in journal (Refereed)
    Abstract [en]

    BACKGROUND:

    Despite a cultural change in visitation policies for children (0-17 years) in the intensive care unit (ICU) to a more open approach, children are still restricted from visiting for various reasons. To overcome these obstacles, it is vital to determine what is needed while encountering a child.

    AIM:

    To elucidate nurses' experiences of what constitutes the encounter with children visiting a sick parent in an adult ICU.

    METHOD:

    An explorative inductive qualitative design was used, entailing focus group interviews with 23 nurses working at a general ICU. The interviews were analysed according to inductive content analysis.

    RESULTS:

    The findings show components that constitute the encounter with children as relatives at the ICU, as experienced by ICU nurses: nurses need to be engaged and motivated; parents need to be motivated; the child needs individual guidance; and a structured follow-up is needed. This reflects a child-focused encounter.

    CONCLUSIONS:

    Nurses need to adopt a holistic view, learn to see and care for the child individually, and be able to engage parents in supporting their children. To accomplish this the nurses need engagement and motivation, and must have knowledge about what constitutes a caring encounter, in order to achieve a caring child-focused encounter.

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