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  • 1.
    Albinsson, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Carlsson Blomster, Monica
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    In search of a caring relationship: nursing students' notions of interactions in the nurse-patient relationship2021In: Nurse Education in Practice, ISSN 1471-5953, E-ISSN 1873-5223, Vol. 50, no January, p. 1-6, article id 102954Article in journal (Refereed)
    Abstract [en]

    The aim of the study is to explore how nursing students talks about their notions on interactions in the relationship between nurse and patient. Empirical data has been obtained from 22 students in their first semester of the Swedish undergraduate nursing programme, applying thematic, individual interviews and using qualitative content analyses. The most significant finding is that although the students had none or limited pre-understanding of caring and the interaction between nurse and patient they were aware of the pre-supposes for establishing such an interplay, articulated in a desire to find out how to build an authentic and trustful caring relationship. Empirical data also show that the students, in the stage of beginners, were trying to identify and relate to basic concepts within caring science. The restricted understanding could then be understood as a matter of the students not being able to express more than they had words for. The results provide new insights into the interactions in the nurse-patient relationship, seen from the perspective of beginner students. These insights could be useful, for lecturers and clinical supervisors, who play a paramount role in the development of each student's acquisition of theoretical and practical knowledge.

  • 2.
    Carlsson Blomster, Monica
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Rask, Mikael
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    First Semester Nursing Student Perceptions of Their Knowledge of and Difficulties in Performing Supportive Caring Actions2023In: Quality Advancement in Nursing Education - Avancées en formation infirmière, E-ISSN 2368-6669, Vol. 9, no 2, article id 7Article in journal (Refereed)
    Abstract [en]

    Students in nursing education do not need to have any experience of having worked in healthcare prior to entering the programme. A total of 123 students rated their perceived knowledge and degree of difficulty in performing supportive caring actions during the first semester of their nursing education. The study, which has a descriptive approach, has been carried out using the Verbal and Social Interaction for Nursing Students (VSI-NS) questionnaire that contains four factors: Inviting to talk about feeling and thoughts, Building a caring relationship, Encouraging social and practical aspects in daily life and Caring towards health and well-being. The results of the study showed that the nursing students rated a high level of knowledge about supportive caring actions, but that these could be difficult to perform. The only significant difference was between male and female nursing students, where the male nursing students considered that it was more difficult to create a caring relationship than their female counterparts.

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  • 3.
    Ekstedt, Mirjam
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Karolinska Institutet, Sweden.
    Kirsebom, Marie
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Kneck, Åsa
    Ersta Sköndal Bräcke University College, Sweden.
    Frykholm, Oscar
    Karolinska Institutet, Sweden.
    Flink, Maria
    Karolinska Institutet, Sweden;Karolinska University Hospital, Sweden.
    Wannheden, Carolina
    Karolinska Institutet, Sweden.
    Design and Development of an eHealth Service for Collaborative Self-Management among Older Adults with Chronic Diseases: A Theory-Driven User-Centered Approach2022In: International Journal of Environmental Research and Public Health, ISSN 1661-7827, E-ISSN 1660-4601, Vol. 19, no 1, article id 391Article in journal (Refereed)
    Abstract [en]

    The increasing prevalence of chronic conditions and multimorbidity poses great challenges to healthcare systems. As patients' engagement in self-managing their chronic conditions becomes increasingly important, eHealth interventions are a promising resource for the provision of adequate and timely support. However, there is inconclusive evidence about how to design eHealth services to meet the complex needs of patients. This study applied an evidence-based and theory-informed user-centered design approach in three phases to identify the needs of older adults and healthcare professionals in the collaborative management of multimorbidity (phase 1), develop an eHealth service to address these needs (phase 2), and test the feasibility and acceptance of the eHealth service in a clinical setting (phase 3). Twenty-two user needs were identified and a web-based application-ePATH (electronic Patient Activation in Treatment at Home)-with separate user interfaces for patients and healthcare professionals was developed. The feasibility study with two nurses and five patients led to a redesign and highlighted the importance of adequately addressing not only varying user needs but also the complex nature of healthcare organizations when implementing new services and processes in chronic care management.

  • 4.
    Grimheden, Sofia
    et al.
    Region Kronoberg.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Bylund Grenklo, Tove
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Karolinska Institutet.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    An obligation to care for seriously ill children in their homes: a qualitative study of community nurses' perceptions2017In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 37, no 4, p. 201-208Article in journal (Refereed)
    Abstract [en]

    When children are seriously ill, being able to be cared for at home with the family is valuable, but community nurses are often not trained to care for children. The aim of this study was therefore to describe community nurses´perceptions of caring for serioulsy ill children at home. A content analysis was conducted of 11 semi-structed interviews with nurses. One theme, obligation to care, was found, followed by three categories: making an impact, feeling confident, and emotional processing. In conclusion, we found collaboration with paediatric staff in the hospital is important for community nurses in order to gain confidence, which would optimise care at home for seriously ill children and their families.

  • 5.
    Gunnarsson, Helena E. M.
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Psychology.
    Safipour, Jalal
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Elmqvist, Carina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kronoberg, Sweden.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Different pain variables could independently predict anxiety and depression in subjects with chronic musculoskeletal pain2021In: Scandinavian Journal of Pain, ISSN 1877-8860, E-ISSN 1877-8879, Vol. 21, no 2, p. 274-282Article in journal (Refereed)
    Abstract [en]

    Objectives: Chronic, clinical pain states are often accompanied by distress such as anxiety and depression. The aim of this study was to determine if certain clinical pain variables could predict the level of anxiety and depression in subjects with musculoskeletal pain.Methods: Two multiple linear regression analyses were conducted on a sample consisting of 189 subjects with clinical pain with the independent pain variables of pain intensity, the influence of pain on daily activities, pain persistence, pain duration, and the number of pain locations. The dependent variables measured anxiety and depression, respectively.Result: Two statistically significant models were found, where the predicted variables accounted for 37.0% of the variability in the anxiety levels and 43.7% of the variability in the depression levels. The independent variable, the influence of pain on daily activities, significantly predicted the level of anxiety. The variables, the influence of pain on daily activities and the number of pain locations, significantly predicted the levels of anxiety and depression.Conclusions: This study showed that two different independent variables, the influence of pain on daily activities and the number of pain locations, significantly predicted the levels of depression. The predictor, the influence of pain on daily activities, significantly predicted the levels of anxiety. The knowledge gained about which specific pain variables are more likely to coexist with anxiety and depression in clinical pain states could be important in implementing holistic treatment plans for chronic pain.

  • 6.
    Holmberg, Pär
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Nilsson, Johanna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Elmqvist, Carina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Nurses' encounters with children as next of kin to parents with a cancer diagnosis on oncology wards2020In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 40, no 1, p. 33-40Article in journal (Refereed)
    Abstract [en]

    It is a challenge for registered nurses (RNs) to meet children and young people who have a parent diagnosed with cancer. These children often suffer from shock, anxiety, outrage, fear and stress. Recent studies indicate that when next of kin have a professional person to talk to, their wellbeing increases. Moreover, when these children are involved in their parent’s care they also begin to trust the nurse caring for their parent. However, there is little known of how nurses respond to a child’s needs. Thus, aim of this study was to describe RNs’ experiences of encounters with children as next of kin to a parent diagnosed with cancer. A qualitative descriptive study based on semi-structured group interviews, with a latent content analysis was carried out. One theme, ‘sense of security’ including three categories ‘balanced meeting’, ‘de-dramatize healthcare’ and ‘learn from one another’ was identified. Beyond the categories, there are six sub-categories: ‘sense of insecurity’, ‘caring approach’, ‘providing information’, ‘participation’, ‘processing and follow-up’ and ‘increased knowledge’. The findings of this study highlight the importance of strengthening the RN's ability to create a caring relationship with children as next of kin.

  • 7.
    Khoshaba, Samir
    et al.
    Växjö University, Faculty of Mathematics/Science/Technology, School of Technology and Design.
    Grönlund, Eva
    Växjö University, Faculty of Humanities and Social Sciences, School of Health Sciences and Social Work.
    Lindqvist, Gunilla
    Växjö University, Faculty of Humanities and Social Sciences, School of Health Sciences and Social Work.
    Olbers-Croall, Ann
    Växjö University, Faculty of Humanities and Social Sciences, School of Education.
    Teori och praktik i professionsutbildningar2007In: Teori och praktik: - tankar från forskningscirklar / [ed] Lars Holmstrand, Växjö: Repro, Växjö universitet , 2007Chapter in book (Other (popular science, discussion, etc.))
  • 8.
    Knutsson, Susanne
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Green Sustainable Development.
    Axelsson, Johanna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    An application of the caritative caring approach - nursing students' experiences of practising caring and uncaring encounters by simulation at a clinical training centre2022In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 17, no 1, article id 2100610Article in journal (Refereed)
    Abstract [en]

    Purpose Nurses' lack of competence to be caring affects patients' health and patients describe a desire for more individual and compassionate care. Nursing education tends, however, to focus less on the caring approach in nursing practice and more on developing knowledge in psychomotor skills. The aim of this study was to describe nursing students' experiences of simulating caring and uncaring encounters founded on the caritative perspective at a Clinical Training Centre (CTC). Method A qualitative, inductive approach using a qualitative latent content analysis. Written reflections of 49 students were analysed. Findings By intertwining reflection with acting and observation, the students experienced that they achieved an open mind and gained an understanding of how important it was to treat the patient based on a caring approach. To act, first uncaring and thereafter caring, gave them an awakening. The students were touched and an overwhelming feeling of suddenly understanding human uniqueness and vulnerability appeared. Conclusions To simulate caritative caring and uncaring encounters at the CTC enhanced students' knowledge and understanding about caring and strengthened their prerequisites to acquire a caritative ontological basic view and attitude which in the long run may lead to an increased feeling of patient well-being in the encounter.

  • 9.
    Koldestam, Maria
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Jönköping county, Sweden;Linköping University, Sweden.
    Rolander, Bo
    Region Jönköping county, Sweden;Jönköping University, Sweden.
    Broström, Anders
    Jönköping University, Sweden;Linköping University Hospital, Sweden;Western Norway University of Applied Sciences, Norway.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Knutsson, Susanne
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Jönköping University, Sweden.
    Undergraduate nursing student's attitudes to learning during clinical practice in different semesters when using a conceptual learning model grounded in a caritative caring perspective – A cross-sectional study2023In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed)
    Abstract [en]

    Aim:To describe undergraduate nursing students' attitudes to learning during clinical practice in different semesters when using the conceptual learning model, Model for Improvements in Learning Outcomes (MILO) grounded in a caritative caring perspective.

    Background: With the intention to support interlinking between theory and praxis and offer understanding and structure to facilitate learning, MILO, theoretically grounded in hermeneutics and a caritative caring perspective based on ethical values, was implemented. MILO consists of four contextual concepts (peer learning, co-clinical teachers, student-centred and student-active supervision) and four intrapersonal concepts (nursing, a reflective approach, a critical approach, quality and safety).

    Methods: A descriptive comparative quantitative study design was applied at a Swedish university, 3 hospitals and 13 municipalities in one county. Cross-sectional data collected via a questionnaire developed to assess attitudes to learning related to MILO's contextual and intrapersonal concepts and their applications were used.

    Results: 209 students in semester 3, 4 and 6 participated in 6 different clinical practice courses. In comparison, intrapersonal concepts, that is, the student's own characteristics and abilities were viewed to be of greater value for learning than contextual, that is, organisational-related concepts in all semesters. Understanding the needs of others and reflective learning were rated to be of major importance. Students in semester 3 valued the use of the applications the highest. To be supervised in pairs was rated the lowest in semester 6. Some of the concepts and their applications were to great extent not applied.

    Conclusions: In all semesters, fundamentals in caritative caring and characteristics and abilities related to the individual student were rated to be of greater importance for learning than environmental support. Providing students opportunities to develop independency seems essential. Use of a learning model such as MILO is dependent on a bearing of a caritative caring culture and a shared understanding between all involved in student learning during clinical practice.

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  • 10.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Chronic obstructive pulmonary disease: a study of the relationship between patients’ feeling of guilt due to their belief of the disease being self inflicted2016In: 3rd International Conference on Chronic Obstructive Pulmonary Disease, July 11-12, 2016, Brisbane, Australia: scientific tracks & abstracts (day 2), OMICS International , 2016, Vol. 6, p. 43-43, article id 3Conference paper (Refereed)
    Abstract [en]

    Introduction

    Chronic obstructive pulmonary disease (COPD) is an increasing health problem that affects about 600 million people globally, and it is expected to be the third most common cause of death worldwide by 2020. COPD is a chronic long-term condition that is irrevocable. Cigarette smoking is the most commonly encountered risk factor for COPD, and it has also been shown that passive smoking impairs lung function. When the disease progresses, not only is the lung fiction impaired, but there are also other consequences as physical, psychological and social.

    Aim

    The aim of the study was to generate a theory, grounded in empirical data, to reveal the main concerns of people who suffer from COPD and how they handle everyday life.

    Method

    The constant comparative method of grounded theory, developed by Glaser and Strauss (1967), was used. Data was collected by interviewing 23 people with COPD all having different grades of the disease, from mild to severe. 

    Findings

    A substantive theory was generated showing that the main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. This includes feelings of living in the shadow of death. This core category was linked to five categories termed making sense of existence, adjusting to bodily restrictions, surrendering to faith, making excuses for the smoking related cause, and creating compliance with daily medication. These categories form a pattern of behavior that explains how feelings of guilt were handled by people living with COPD.    

  • 11.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Female informal caregivers' daily life with a spouse having chronic obstructive pulmonary disease2015In: Presented at the 6th International Carers Conference - Care and caring: future proofing the new demographics, Gothenburg, Sweden, September 3-6, 2015, 2015Conference paper (Refereed)
  • 12.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    In the shadow of chronic obstructive pulmonary disease2013Book (Refereed)
    Abstract [en]

    The overall aim of this work was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern. Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The work shows that there are differences in informal caregiving between males and females.

  • 13.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease2013Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern.

    The study design was explorative, comparative and descriptive. The thesis included a literature review of 45 scientific articles and semi-structured interviews with 23 patients suffering from COPD, and 21 women and 19 men living with a spouse suffering from COPD. Data were analysed using content analysis, grounded theory, and phenomenography.

    Main findings: Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The thesis shows that there are differences in informal caregiving between males and females.

    Conclusion: This thesis shows that there are differences in male and female caregiving for a spouse suffering from COPD. The caregivers conceive and handle the caregiving situation in different ways. It is central that health professionals and municipality consider this along with the individual needs that are related to the development of the COPD. There is a need to identify the person who suffers from COPD and their spouses from the first contact onwards, to regularly follow the development of their situation and need of support.

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  • 14.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Albin, Björn
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Heikkilä, Kristiina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hjelm, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease2013In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 14, no 01, p. 40-51Article in journal (Refereed)
    Abstract [en]

    Aim To describe conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease (COPD) in different stages.

    Background The spouse is often the primary caregiver to someone with COPD, and thus also affected by the consequences of the disease. No previous studies have been found focusing on conceptions of daily life in women living with a man suffering from COPD in different stages.

    Methods A phenomenographic study was conducted. Data were collected in 2008–2009 through semi-structured interviews with 21 women living with men suffering from COPD in different stages.

    Findings Four main descriptive categories were found: unchanged life situation where no support was needed; socially restricted life and changed roles; changes in health; and changes in the couple's relationship where support was needed. The categories are described in relation to the woman herself, in relation to the man, and in relation to others. No support was needed from society or health care when the men had mild COPD and the women experienced no change in their daily life. As the disease progressed, the women's responsibilities increased and their role changed from being a spouse to being an informal carer. Social contacts became limited, and they began to feel isolated. The women prioritized their spouse's health and well-being and compromised their own health. They experienced lack of support from health professionals and from the municipality.

  • 15.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Ge, Li
    Fujian University of Traditional Chinese Medicine, China.
    Borg, Christel
    Blekinge Institute of Technology, Sweden.
    Xiaoling, Zhu
    Wenzhou Medical University, China.
    Hongbo, Xu
    Wenzhou Medical University, China.
    Safipour, Jalal
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Rask, Mikael
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Nursing students' perceptions of their verbal and social interaction skills in Sweden and China during their first semester2022In: Quality Advancement in Nursing Education QANEAFI, E-ISSN 2368-6669, Vol. 8, no 1, p. 1-20Article in journal (Refereed)
    Abstract [en]

    Aim: This study aimed to investigate the similarities and differences related to verbal and social interaction skills between nursing students attending universities in Sweden and China, two countries with different educational systems, during the students’ first semester.

    Background: Nurses need a high level of interaction skills in order to interact effectively with patients and their families. Thus, practical nursing education focusing on clinical skills is essential.

    Method: Students at one university in Sweden and two universities in China completed the Verbal and Social Interactions for Nursing Students (VSI-NS) questionnaire.

    Results: The students perceived ‘Building a caring relationship’ and ‘Caring towards health and well-being’ as the most frequently occurring and important types of caring interactions. The students perceived that talking with a patient about his/her feelings and thoughts was the least frequently occurring and least important type of caring interaction.

    Conclusion: The students appear to understand from the initial phase of their education that the caring relationship and the patients’ health and well-being will be the major focus of their role as nurses.

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  • 16.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. School of Nursing & Midwifery, UK.
    Conceptions of everyday life among people living alone with chronic obstructive pulmonary disease2016In: Clinical Nursing Studies, ISSN 2324-7940, E-ISSN 2324-7959, Vol. 4, no 2, p. 8-20Article in journal (Refereed)
    Abstract [en]

    Objective: The aim of the study was to describe conceptions of everyday life among people living alone with chronic obstructivepulmonary disease (COPD).

    Background: COPD is a long-standing, chronic condition. As COPD progresses, it commonly affects all aspects of life. The disease creates a complex life situation for the person living alone, as they experience a wide range of difficulties and must adapt to the demands of their brittle body. They report more psychiatric distress than do those with other chronic diseases and appear to have an increased risk of depression. No previous studies have been conducted focusing on people’s conceptions of everyday life when living alone with chronic obstructive pulmonary disease.

    Methods: A phenomenographic study was conducted in the south of Sweden with 15 women and 9 men who were living alone and suffering from different grades of COPD, ranging from mild to very severe. Data were collected through semi-structured interviews.

    Results: An overall descriptive category was found, when life changes direction, with three subcategories: COPD creates obstacles in daily life, when the body refuses and loneliness. The disease changed their lives dramatically and both physical and psychological strains appeared.

    Conclusions: The present study highlights the particular challenges facing people living alone with COPD. To live alone and manage a chronic disease such as COPD is more problematic, than living with a spouse, as they have the option to ask for help when needed and someone to talk to. New technology can reduce social isolation among older people and may act as a potential solution for people living alone with COPD. Through e-health, these people may have the opportunity to be more involved in their own care. To ensure greater security, information, participation, self-care and independence, person-centred care must be systematically implemented within health and social care systems in Sweden.

  • 17.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Informal caregivers who are interested and do make use of information and communication technologies2018In: Clinical Nursing Studies, ISSN 2324-7940, E-ISSN 2324-7959, Vol. 6, no 4, p. 12-22Article in journal (Refereed)
    Abstract [en]

    Objective: The aim of the study was to highlight informal caregivers’ interest in using the Information and Communication Technology (ICT)-based ACTION service (Assisting Carers using Telematics Interventions to meet Older People’s Needs) and their ideas for how to further develop and extend the service. The use of ICT is constantly increasing worldwide. Europe has the highest old age dependency ratio, but other parts of the world are also experiencing a dramatic ageing of their population. The demands for care are increasing, and resources are shrinking. One way to support informal caregivers is through ICT.

    Methods: The study employed a qualitative design. Focus group interviews were carried out with informal caregivers in Sweden. The interviews were analysed using a latent content analysis method.

    Results: The analysis yielded a major theme, striving to feel confident, with four categories: informal caregivers’ reflections and ideas about ICT; promoting their own health process; increasing their knowledge bank and informal caregivers’ rights; and striving for inclusiveness.

    Conclusions: The present study highlights the challenges that informal caregivers face in their daily life as well as their resources to devise possible solutions that could improve their situation. To preserve their health, a carer support plan including regular health checks could be helpful. ICT-based support (such as the ACTION service) could act as a way forward for supporting informal caregivers in their striving to feel confident. The study highlighted that ICT-based support has the potential to act as a direct benefit for informal caregivers.

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  • 18.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Heikkilä, Kristiina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Albin, Björn
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hjelm, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Conceptions of daily life in men living with a woman suffering from chronic obstructive pulmonary disease2013In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 14, no 02, p. 140-150Article in journal (Refereed)
    Abstract [en]

    Aim To describe conceptions of daily life in men living with a woman suffering from chronic obstructive pulmonary disease (COPD) in different stages of the disease. BACKGROUND: A chronic disease like COPD affects not only the person living with the illness, but also the spouse. Significant tasks and demands are placed on husbands. COPD has for a long time been considered more a man's disease than a woman's disease, but according to new evidence COPD is a vast problem in women, which requires support from their spouses. The literature review did not reveal any previous studies concerning conceptions of daily life in men living with women suffering from COPD in different stages. METHODS: A phenomenographic study was conducted. Data were collected from October 2008 to October 2009 through semi-structured interviews with 19 men living with a woman suffering from COPD. Findings Two main descriptive categories were found: (1) unchanged life situation where no support was needed; (2) changed life situation related to severity of COPD, where support was needed. The categories were described from the perspective 'ME and my spouse'. Even in their caregiving situation, the men continued with their own life and activities and did not put themselves in second place. No support was needed from healthcare or municipality when the women had mild COPD, but this changed when the COPD progressed. The men felt that daily life was burdened, restricted and the partner relationship was affected, even if the disease had not reached the final stage. The COPD forced them gradually into a caregiving role, and their daily life changed. They become more of a caregiver than a spouse. The men experienced lack of knowledge and support, and they felt that health professionals and municipality did not care about them.

  • 19.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Håkansson, Anders
    Petersson, Kerstin
    Informal home caregiving in a gender perspective: A selected literature review2004In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 24, no 4, p. 26-30Article in journal (Refereed)
    Abstract [en]

    An informal home caregiver is a person (family member or friends) who takes care of or participates to some degree in the care of a person in the home. This study provides a selected review of literature published 1982-2003 of the informal home caregiving from a gender perspective. A computer-aided search using MEDLINE and CINAHL was carried out. The final number of articles was 45. The main findings were that there are differences in informal caregiving due to gender. Gender differences were found in categories such as affected lifeworld, health problems, managing ability and caregivers experience from caring for a care receiver with different diseases. It is of importance that the informal caregiver is involved in the planning and that a planning act takes place. If society involves the informal home caregiver we can avoid the caregiver being the hidden victim of illness and disability. It is known that burdensome caregiving can result in encroachment due to exhaustion.

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    Informal home caregiving
  • 20.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Magnusson, Lennart
    Andréasson, Frida
    Swedish Family Care Competence Centre (NKA), Sweden.
    Broling, Lillemor
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Slutrapport SAFE, Steg 1. Utmaningsdriven innovation: Hälso- och sjukvård: Ökad delaktighet och inflytande, trygghet och säkerhet för äldre och deras anhöriga med hälsostödjande e-tjänster2015Report (Other academic)
  • 21.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    R-M Hallberg, Lillemor
    Feelings of guilt due to self-inflicted disease: A grounded theory of suffering from chronic obstructive pulmonary disease2010In: Journal of Health Psychology, ISSN 1359-1053, E-ISSN 1461-7277, Vol. 15, no 3, p. 456-466Article in journal (Refereed)
    Abstract [en]

    The aim of this grounded theory studywas to illuminate the main concern ofpeople suffering from chronicobstructive pulmonary disease(COPD) and how they handle theireveryday life. Data were collectedthrough interviews with 23 peoplewith COPD at different stages, frommild to severe. A substantive theorywas generated showing that the mainconcern was feelings of guilt due toself-inflicted disease associated withsmoking habits. This core categorywas related to five managingstrategies termed making sense ofexistence, adjusting to bodilyrestrictions, surrendering to fate,making excuses for the smokingrelatedcause and creating compliancewith daily medication.

  • 22.
    Rask, Mikael
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Albinsson, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Safipour, Jalal
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Wenneberg, Stig
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Andersson, Lisbet
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Carlsson Blomster, Monica
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Ozolins, Lise-Lotte
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Borg, Christel
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Validation of the verbal and social interaction questionnaire for nursing students: the focus of nursing students in their relationship with patients2018In: Journal of Nursing Education and Practice, ISSN 1925-4040, E-ISSN 1925-4059, Vol. 8, no 4, p. 81-88Article in journal (Refereed)
    Abstract [en]

    The Verbal and Social Interaction Nursing Students questionnaire (VSI-NS) has been created to measure the development of verbal, social and interactional skills of nursing students with patients, from their perspective in nursing care. The aim of the present study was to determine the construct validity and internal consistency reliability of the questionnaire. The study had a methodological and developmental design and was carried out in four steps: adjustment of the items, face validity, data collection and data analysis. The number of items was reduced from 48 to 31. The factor analysis of the final 31 items resulted in four quite distinct factors: “Inviting to talk about feelings and thoughts”, “Building a caring relationship”, “Encouraging social and practical aspects in daily life” and “Caring towards health and wellbeing”. The results showed satisfactory psychometric properties in terms of content validity, construct validity and the internal consistency reliability of the questionnaire.  It could be concluded that the original conceptual model could serve as a theoretical foundation to explain and understand nurses’ caring interactions with their patients.

  • 23.
    Rosenburg, Marcus
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Halmstad University, Sweden.
    Fagerström, Cecilia
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health. Region Kalmar County, Sweden.
    Tuvesson, Hanna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Daily life after healing of a venous leg ulcer: A lifeworld phenomenological study2022In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 17, no 1, article id 2054080Article in journal (Refereed)
    Abstract [en]

    PURPOSE

    Venous leg ulcer is a recognized condition, affecting people globally. Ulcers mainly affect the elderly and recurrences are not uncommon. There is knowledge about life with venous leg ulcers, but the situation after healing is unexplored. This paper explores and describes meanings of experiences of daily life after healing of a hard-to-heal venous leg ulcer.

    METHODS

    Lived experiences of 15 individuals with healed hard-to-heal venous leg ulcers generated data for this study. Interviews were recorded for analysis using a reflective lifeworld research approach. An essence emerged, further described by its constituents.

    RESULTS

    Memories of a difficult time with leg ulcer were ever present, in a way becoming part of the self. A striving for control in daily life entailed a struggle to do what was best for the own body. After healing, a new normal emerged in daily life, a reality that encompassed the risk for a new ulcer. The body had changed physically, with marks alongside those from ageing, in a life that still went on.

    CONCLUSIONS

    For those who had healed from a venous leg ulcer, life had changed. Even if they referred to life as normal, it was not the same normal as before.

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  • 24.
    Rosenburg, Marcus
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Halmstad University, Sweden.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Tuvesson, Hanna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health.
    Fagerström, Cecilia
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linnaeus University, Linnaeus Knowledge Environments, Sustainable Health. Region Kalmar County, Sweden.
    Experiences of undergoing venous leg ulcer management: A reflective lifeworld research study2023In: International Wound Journal, ISSN 1742-4801, E-ISSN 1742-481X, Vol. 20, no 6, p. 1857-1865Article in journal (Refereed)
    Abstract [en]

    Venous leg ulcers have multiple consequences for the patient. Ulcer management can be lengthy and recurrence is common. As the patient is the expert on their experiences and life, the aim of the present study was to describe patients' lived experiences of undergoing management for a venous leg ulcer. The study encompassed 16 phenomenological interviews. The analysis led to a description of the phenomenon's essence, further described by three constituents. The essential meaning of the phenomenon is described as being in an oscillation between hope and despair. Ulcer management is challenging for the patient, who feels unseen and lives with doubts during the management period. This study is considered enriching as it puts words to the patients' suffering during ulcer management and shows that reliable relationships and competence can reduce patient doubts. This knowledge should enable improvement of patient care and treatment during ulcer management.

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    fulltext
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    fulltext epub-version
  • 25.
    Rosenburg, Marcus
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Halmstad University, Sweden.
    Tuvesson, Hanna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Brudin, Lars
    Region Kalmar, Sweden;Linköping University, Sweden.
    Fagerström, Cecilia
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kalmar, Sweden.
    Associations between self-care advice and healing time in patients with venous leg ulcer – a Swedish registry-based study2024In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 24, no 1, article id 124Article in journal (Refereed)
    Abstract [en]

    Background Venous leg ulcers take time to heal. It is advocated that physical activity plays a role in healing, and so does the patient’s nutritional status. Additionally, malnutrition influences the inflammatory processes, which extends the healing time. Therefore, the staff’s advising role is important for patient outcomes. Thus, this study aimed to investigate the associations between given self-care advice and healing time in patients with venous leg ulcers while controlling for demographic and ulcer-related factors.

    Methods The sample consisted of patients registered in the Registry of Ulcer Treatment (RUT) which includes patient and ulcer-related and healing variables. The data was analyzed with descriptive statistics. Logistic regression models were performed to investigate the influence of self-care advice on healing time.

    Results No associations between shorter healing time (less than 70 days) and the staff´s self-care advice on physical activity was identified, whilst pain (OR 1.90, CI 1.32–2.42, p < 0.001) and giving of nutrition advice (OR 1.55, CI 1.12–2.15, p = 0.009) showed an association with longer healing time.

    Conclusions Neither self-care advice on nutrition and/or physical activity indicated to have a positive association with shorter healing time. However, information and counseling might not be enough. We emphasize the importance of continuously and systematically following up given advice throughout ulcer management, not only when having complicated ulcers.

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  • 26.
    Säll-Hansson, Karin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Elmqvist, Carina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Stening, Kent
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Meanings of chronic pain in patient interactions with health services2016In: Meanings of pain / [ed] Simon van Rysewyk, Springer, 2016, 1, , p. 295-307p. 295-307Chapter in book (Other academic)
    Abstract [en]

    Chronic pain causes suffering for patients and managing chronic pain is one of the most common assignments in the health service. Health care professionals can profoundly influence the meaning patients and their families attribute to pain experience. Patients with chronic pain may feel discredited and called into question by skeptical medical professionals. Patients may have to fight to receive entitled care and to suggest suitable treatments. To contribute to medical decision-making and improved patient outcomes, health care professionals should integrate phenomenological narratives and stories about pain into health care in parallel with consulting the medical evidence. Professional care structures should not make health care professionals feel torn between meeting patient needs for existential support and the demand of meeting high clinical work-loads. Narratives and stories can provide shared structures that allow patients and medical professionals to make decisions that feel meaningful, accurate, and clear. Many patients use psychological strategies in their everyday lives in order to live meaningfully with persistent pain; but, this is not enough. Healthcare professionals need “dare to open up and accept personal and deep conversations with patients” about their pain experiences and the lived consequences of persistent pain.

  • 27.
    Säll-Hansson, Karin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Stening, Kent
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Fohlman, Jan
    Region Kronoberg, Sweden.
    Wojanowski, Anna
    Region Kronoberg, Sweden.
    Ponten, Moa
    Karolinska institutet, Sweden.
    Jensen, Karin
    Karolinska Institutet, Sweden.
    Gerdle, Björn
    Linköping University, Sweden.
    Elmqvist, Carina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Region Kronoberg, Sweden.
    Efficacy of mecobalamin (vitamin B12) in the treatment of long-term pain in women diagnosed with fibromyalgia: protocol for a randomised, placebo-controlled trial2023In: BMJ Open, E-ISSN 2044-6055, Vol. 13, no 3, article id e066987Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: Fibromyalgia causes long-term pain. It affects at least 2% of the population, the majority being women. In addition, extended symptoms corresponding to vitamin B12 deficiency occur. Findings from several studies have indicated that vitamin B12 may be a possible treatment for pain in fibromyalgia. The aim of the proposed study is to evaluate whether vitamin B12 decreases pain sensitivity and the experience of pain (ie, hyperalgesia and allodynia) in women with fibromyalgia.

    METHODS AND ANALYSIS: The study is a randomised, placebo-controlled, single-blind, clinical trial with two parallel groups which are administered mecobalamin (vitamin B12) or placebo over 12 weeks. 40 Swedish women aged 20-70 years with an earlier recorded diagnosis of fibromyalgia are randomised into the placebo group or the treatment group, each consisting of 20 participants. Outcomes consist of questionnaires measured at baseline and after 12 weeks of treatment. A final re-evaluation will then follow 12 weeks after treatment ends. The primary outcome is tolerance time, maximised to 3 min, which is assessed using the cold pressor test. In order to broaden the understanding of the lived experience of participants, qualitative interviews will be conducted using a phenomenological approach on a lifeworld theoretical basis (reflective lifeworld research approach).

    ETHICS AND DISSEMINATION: The protocol for the study is approved by the local ethical committee at Linkoping (EPM; 2018/294-31, appendices 2019-00347 and 2020-04482). The principles of the Helsinki Declaration are followed regarding oral and written consent to participate, confidentiality and the possibility to withdraw participation from the study at any time. The results will primarily be communicated through peer-reviewed journals and conferences.

    TRIAL REGISTRATION NUMBER: NCT05008042.

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