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  • 1.
    Grimheden, Sofia
    et al.
    Region Kronoberg.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Bylund Grenklo, Tove
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Karolinska Institutet.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    An obligation to care for seriously ill children in their homes: a qualitative study of community nurses' perceptions2017In: Nordic journal of nursing research, ISSN 2057-1585, E-ISSN 2057-1593, Vol. 37, no 4, p. 201-208Article in journal (Refereed)
    Abstract [en]

    When children are seriously ill, being able to be cared for at home with the family is valuable, but community nurses are often not trained to care for children. The aim of this study was therefore to describe community nurses´perceptions of caring for serioulsy ill children at home. A content analysis was conducted of 11 semi-structed interviews with nurses. One theme, obligation to care, was found, followed by three categories: making an impact, feeling confident, and emotional processing. In conclusion, we found collaboration with paediatric staff in the hospital is important for community nurses in order to gain confidence, which would optimise care at home for seriously ill children and their families.

  • 2.
    Khoshaba, Samir
    et al.
    Växjö University, Faculty of Mathematics/Science/Technology, School of Technology and Design.
    Grönlund, Eva
    Växjö University, Faculty of Humanities and Social Sciences, School of Health Sciences and Social Work.
    Lindqvist, Gunilla
    Växjö University, Faculty of Humanities and Social Sciences, School of Health Sciences and Social Work.
    Olbers-Croall, Ann
    Växjö University, Faculty of Humanities and Social Sciences, School of Education.
    Teori och praktik i professionsutbildningar2007In: Teori och praktik: - tankar från forskningscirklar / [ed] Lars Holmstrand, Växjö: Repro, Växjö universitet , 2007Chapter in book (Other (popular science, discussion, etc.))
  • 3.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Chronic obstructive pulmonary disease: a study of the relationship between patients’ feeling of guilt due to their belief of the disease being self inflicted2016In: 3rd International Conference on Chronic Obstructive Pulmonary Disease, July 11-12, 2016, Brisbane, Australia: scientific tracks & abstracts (day 2), OMICS International , 2016, Vol. 6, p. 43-43, article id 3Conference paper (Refereed)
    Abstract [en]

    Introduction

    Chronic obstructive pulmonary disease (COPD) is an increasing health problem that affects about 600 million people globally, and it is expected to be the third most common cause of death worldwide by 2020. COPD is a chronic long-term condition that is irrevocable. Cigarette smoking is the most commonly encountered risk factor for COPD, and it has also been shown that passive smoking impairs lung function. When the disease progresses, not only is the lung fiction impaired, but there are also other consequences as physical, psychological and social.

    Aim

    The aim of the study was to generate a theory, grounded in empirical data, to reveal the main concerns of people who suffer from COPD and how they handle everyday life.

    Method

    The constant comparative method of grounded theory, developed by Glaser and Strauss (1967), was used. Data was collected by interviewing 23 people with COPD all having different grades of the disease, from mild to severe. 

    Findings

    A substantive theory was generated showing that the main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. This includes feelings of living in the shadow of death. This core category was linked to five categories termed making sense of existence, adjusting to bodily restrictions, surrendering to faith, making excuses for the smoking related cause, and creating compliance with daily medication. These categories form a pattern of behavior that explains how feelings of guilt were handled by people living with COPD.    

  • 4.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Female informal caregivers' daily life with a spouse having chronic obstructive pulmonary disease2015In: 6th International Carers Conference in Gothenburg, Sweden from 3-6 september 2015, 2015Conference paper (Refereed)
  • 5.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    In the shadow of chronic obstructive pulmonary disease2013Book (Refereed)
    Abstract [en]

    The overall aim of this work was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern. Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The work shows that there are differences in informal caregiving between males and females.

  • 6.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Informal caregivers' conceptions of daily life with a spouse having chronic obstructive pulmonary disease2013Doctoral thesis, comprehensive summary (Other academic)
    Abstract [en]

    The overall aim of this thesis was to explore informal caregivers’ daily life with particular focus on those living with a spouse who has Chronic Obstructive Pulmonary Disease (COPD) in different grades, mild to severe, based on the ill person’s main concern.

    The study design was explorative, comparative and descriptive. The thesis included a literature review of 45 scientific articles and semi-structured interviews with 23 patients suffering from COPD, and 21 women and 19 men living with a spouse suffering from COPD. Data were analysed using content analysis, grounded theory, and phenomenography.

    Main findings: Men and women living with a spouse suffering from mild COPD did not experience changes in their daily life, and were not in need of support. It was when the COPD gradually escalated that their daily life was affected and they needed support. The caregiving women conceived that their daily life was socially restricted, they had changed roles, changes in health and changes in the couple’s relationship. The caregiving men’s daily life was conceived as burdened, restricted and the partner relationship was affected. The men’s attitude was to continue with their own life and own activities, and their approach to their caregiving situation was to view themselves as “Me and my spouse”. The main concern for people suffering from COPD was feelings of guilt due to self-inflicted disease associated with smoking habits. The thesis shows that there are differences in informal caregiving between males and females.

    Conclusion: This thesis shows that there are differences in male and female caregiving for a spouse suffering from COPD. The caregivers conceive and handle the caregiving situation in different ways. It is central that health professionals and municipality consider this along with the individual needs that are related to the development of the COPD. There is a need to identify the person who suffers from COPD and their spouses from the first contact onwards, to regularly follow the development of their situation and need of support.

  • 7.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Albin, Björn
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Heikkilä, Kristiina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hjelm, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease2013In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 14, no 01, p. 40-51Article in journal (Refereed)
    Abstract [en]

    Aim To describe conceptions of daily life in women living with a man suffering from chronic obstructive pulmonary disease (COPD) in different stages.

    Background The spouse is often the primary caregiver to someone with COPD, and thus also affected by the consequences of the disease. No previous studies have been found focusing on conceptions of daily life in women living with a man suffering from COPD in different stages.

    Methods A phenomenographic study was conducted. Data were collected in 2008–2009 through semi-structured interviews with 21 women living with men suffering from COPD in different stages.

    Findings Four main descriptive categories were found: unchanged life situation where no support was needed; socially restricted life and changed roles; changes in health; and changes in the couple's relationship where support was needed. The categories are described in relation to the woman herself, in relation to the man, and in relation to others. No support was needed from society or health care when the men had mild COPD and the women experienced no change in their daily life. As the disease progressed, the women's responsibilities increased and their role changed from being a spouse to being an informal carer. Social contacts became limited, and they began to feel isolated. The women prioritized their spouse's health and well-being and compromised their own health. They experienced lack of support from health professionals and from the municipality.

  • 8.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. School of Nursing & Midwifery, UK.
    Conceptions of everyday life among people living alone with chronic obstructive pulmonary disease2016In: Clinical Nursing Studies, ISSN 2324-7940, E-ISSN 2324-7959, Vol. 4, no 2, p. 8-20Article in journal (Refereed)
    Abstract [en]

    Objective: The aim of the study was to describe conceptions of everyday life among people living alone with chronic obstructivepulmonary disease (COPD).

    Background: COPD is a long-standing, chronic condition. As COPD progresses, it commonly affects all aspects of life. The disease creates a complex life situation for the person living alone, as they experience a wide range of difficulties and must adapt to the demands of their brittle body. They report more psychiatric distress than do those with other chronic diseases and appear to have an increased risk of depression. No previous studies have been conducted focusing on people’s conceptions of everyday life when living alone with chronic obstructive pulmonary disease.

    Methods: A phenomenographic study was conducted in the south of Sweden with 15 women and 9 men who were living alone and suffering from different grades of COPD, ranging from mild to very severe. Data were collected through semi-structured interviews.

    Results: An overall descriptive category was found, when life changes direction, with three subcategories: COPD creates obstacles in daily life, when the body refuses and loneliness. The disease changed their lives dramatically and both physical and psychological strains appeared.

    Conclusions: The present study highlights the particular challenges facing people living alone with COPD. To live alone and manage a chronic disease such as COPD is more problematic, than living with a spouse, as they have the option to ask for help when needed and someone to talk to. New technology can reduce social isolation among older people and may act as a potential solution for people living alone with COPD. Through e-health, these people may have the opportunity to be more involved in their own care. To ensure greater security, information, participation, self-care and independence, person-centred care must be systematically implemented within health and social care systems in Sweden.

  • 9.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Informal caregivers who are interested and do make use of information and communication technologies2018In: Clinical Nursing Studies, ISSN 2324-7940, E-ISSN 2324-7959, Vol. 6, no 4, p. 12-22Article in journal (Refereed)
    Abstract [en]

    Objective: The aim of the study was to highlight informal caregivers’ interest in using the Information and Communication Technology (ICT)-based ACTION service (Assisting Carers using Telematics Interventions to meet Older People’s Needs) and their ideas for how to further develop and extend the service. The use of ICT is constantly increasing worldwide. Europe has the highest old age dependency ratio, but other parts of the world are also experiencing a dramatic ageing of their population. The demands for care are increasing, and resources are shrinking. One way to support informal caregivers is through ICT.

    Methods: The study employed a qualitative design. Focus group interviews were carried out with informal caregivers in Sweden. The interviews were analysed using a latent content analysis method.

    Results: The analysis yielded a major theme, striving to feel confident, with four categories: informal caregivers’ reflections and ideas about ICT; promoting their own health process; increasing their knowledge bank and informal caregivers’ rights; and striving for inclusiveness.

    Conclusions: The present study highlights the challenges that informal caregivers face in their daily life as well as their resources to devise possible solutions that could improve their situation. To preserve their health, a carer support plan including regular health checks could be helpful. ICT-based support (such as the ACTION service) could act as a way forward for supporting informal caregivers in their striving to feel confident. The study highlighted that ICT-based support has the potential to act as a direct benefit for informal caregivers.

  • 10.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Heikkilä, Kristiina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Albin, Björn
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hjelm, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Conceptions of daily life in men living with a woman suffering from chronic obstructive pulmonary disease2013In: Primary Health Care Research and Development, ISSN 1463-4236, E-ISSN 1477-1128, Vol. 14, no 02, p. 140-150Article in journal (Refereed)
    Abstract [en]

    Aim To describe conceptions of daily life in men living with a woman suffering from chronic obstructive pulmonary disease (COPD) in different stages of the disease. BACKGROUND: A chronic disease like COPD affects not only the person living with the illness, but also the spouse. Significant tasks and demands are placed on husbands. COPD has for a long time been considered more a man's disease than a woman's disease, but according to new evidence COPD is a vast problem in women, which requires support from their spouses. The literature review did not reveal any previous studies concerning conceptions of daily life in men living with women suffering from COPD in different stages. METHODS: A phenomenographic study was conducted. Data were collected from October 2008 to October 2009 through semi-structured interviews with 19 men living with a woman suffering from COPD. Findings Two main descriptive categories were found: (1) unchanged life situation where no support was needed; (2) changed life situation related to severity of COPD, where support was needed. The categories were described from the perspective 'ME and my spouse'. Even in their caregiving situation, the men continued with their own life and activities and did not put themselves in second place. No support was needed from healthcare or municipality when the women had mild COPD, but this changed when the COPD progressed. The men felt that daily life was burdened, restricted and the partner relationship was affected, even if the disease had not reached the final stage. The COPD forced them gradually into a caregiving role, and their daily life changed. They become more of a caregiver than a spouse. The men experienced lack of knowledge and support, and they felt that health professionals and municipality did not care about them.

  • 11.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Håkansson, Anders
    Petersson, Kerstin
    Informal home caregiving in a gender perspective: A selected literature review2004In: Vård i Norden, ISSN 0107-4083, E-ISSN 1890-4238, Vol. 24, no 4, p. 26-30Article in journal (Refereed)
    Abstract [en]

    An informal home caregiver is a person (family member or friends) who takes care of or participates to some degree in the care of a person in the home. This study provides a selected review of literature published 1982-2003 of the informal home caregiving from a gender perspective. A computer-aided search using MEDLINE and CINAHL was carried out. The final number of articles was 45. The main findings were that there are differences in informal caregiving due to gender. Gender differences were found in categories such as affected lifeworld, health problems, managing ability and caregivers experience from caring for a care receiver with different diseases. It is of importance that the informal caregiver is involved in the planning and that a planning act takes place. If society involves the informal home caregiver we can avoid the caregiver being the hidden victim of illness and disability. It is known that burdensome caregiving can result in encroachment due to exhaustion.

  • 12.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Magnusson, Lennart
    Andréasson, Frida
    Swedish Family Care Competence Centre (NKA).
    Broling, Lillemor
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Slutrapport SAFE, Steg 1. Utmaningsdriven innovation: Hälso- och sjukvård: Ökad delaktighet och inflytande, trygghet och säkerhet för äldre och deras anhöriga med hälsostödjande e-tjänster.2015Report (Other academic)
  • 13.
    Lindqvist, Gunilla
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    R-M Hallberg, Lillemor
    Feelings of guilt due to self-inflicted disease: A grounded theory of suffering from chronic obstructive pulmonary disease2010In: Journal of Health Psychology, ISSN 1359-1053, E-ISSN 1461-7277, Vol. 15, no 3, p. 456-466Article in journal (Refereed)
    Abstract [en]

    The aim of this grounded theory studywas to illuminate the main concern ofpeople suffering from chronicobstructive pulmonary disease(COPD) and how they handle theireveryday life. Data were collectedthrough interviews with 23 peoplewith COPD at different stages, frommild to severe. A substantive theorywas generated showing that the mainconcern was feelings of guilt due toself-inflicted disease associated withsmoking habits. This core categorywas related to five managingstrategies termed making sense ofexistence, adjusting to bodilyrestrictions, surrendering to fate,making excuses for the smokingrelatedcause and creating compliancewith daily medication.

  • 14.
    Rask, Mikael
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Albinsson, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Safipour, Jalal
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Wenneberg, Stig
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Andersson, Lisbet
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Carlsson Blomster, Monica
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Ozolins, Lise-Lotte
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Borg, Christel
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Validation of the verbal and social interaction questionnaire for nursing students: the focus of nursing students in their relationship with patients2018In: Journal of Nursing Education and Practice, ISSN 1925-4040, E-ISSN 1925-4059, Vol. 8, no 4, p. 81-88Article in journal (Refereed)
    Abstract [en]

    The Verbal and Social Interaction Nursing Students questionnaire (VSI-NS) has been created to measure the development of verbal, social and interactional skills of nursing students with patients, from their perspective in nursing care. The aim of the present study was to determine the construct validity and internal consistency reliability of the questionnaire. The study had a methodological and developmental design and was carried out in four steps: adjustment of the items, face validity, data collection and data analysis. The number of items was reduced from 48 to 31. The factor analysis of the final 31 items resulted in four quite distinct factors: “Inviting to talk about feelings and thoughts”, “Building a caring relationship”, “Encouraging social and practical aspects in daily life” and “Caring towards health and wellbeing”. The results showed satisfactory psychometric properties in terms of content validity, construct validity and the internal consistency reliability of the questionnaire.  It could be concluded that the original conceptual model could serve as a theoretical foundation to explain and understand nurses’ caring interactions with their patients.

  • 15.
    Säll-Hansson, Karin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Elmqvist, Carina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindqvist, Gunilla
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Stening, Kent
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Meanings of chronic pain in patient interactions with health services2016In: Meanings of pain / [ed] Simon van Rysewyk, Springer, 2016, 1, , p. 295-307p. 295-307Chapter in book (Other academic)
    Abstract [en]

    Chronic pain causes suffering for patients and managing chronic pain is one of the most common assignments in the health service. Health care professionals can profoundly influence the meaning patients and their families attribute to pain experience. Patients with chronic pain may feel discredited and called into question by skeptical medical professionals. Patients may have to fight to receive entitled care and to suggest suitable treatments. To contribute to medical decision-making and improved patient outcomes, health care professionals should integrate phenomenological narratives and stories about pain into health care in parallel with consulting the medical evidence. Professional care structures should not make health care professionals feel torn between meeting patient needs for existential support and the demand of meeting high clinical work-loads. Narratives and stories can provide shared structures that allow patients and medical professionals to make decisions that feel meaningful, accurate, and clear. Many patients use psychological strategies in their everyday lives in order to live meaningfully with persistent pain; but, this is not enough. Healthcare professionals need “dare to open up and accept personal and deep conversations with patients” about their pain experiences and the lived consequences of persistent pain.

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