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  • 1. Andersson, Gunnel
    et al.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Livskvalitet hos anhöriga som vårdar en äldre närstående med inkontinens: En svensk delrapport av ett EU-projekt initierad av SCA och Eurocarers2012Report (Other academic)
    Abstract [sv]

    Att vara anhörigvårdare till en äldre närstående med inkontinens kan innebära ett tjugofyratimmars arbete och ansvar, som inte delas med någon annan. En emotionell och fysisk börda, där den egna hälsan får stå tillbaka till förmån för den närståendes väl. Dessutom innebär det för en del anhörigvårdare en instängdhet och ett minskat socialt liv. Samtidigt betraktade flera omsorgen om sin anhörige som en naturlig del och uttryckte önskan att göra det möjligt för denne att bo hemma så länge som möjligt. Det är viktigt att anhörigvårdarens situation uppmärksammas i ett tidigt skede av sjukvården och speciellt av landstinget, för att kunna möjliggöra information och stöd om problemet inkontinens, såväl som om övrig vård samt hjälp som finns att tillgå i samhället.

  • 2.
    Andersson, Stefan
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Erlingsson, Christen
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. University of Sheffield, UK.
    The experiences of working carers of older people regarding access to a web-based family care support network offered by a municipality2017In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712Article in journal (Refereed)
    Abstract [en]

    Policy makers in Sweden and other European Member States pay increasing attention as to how best support working carers; carers juggling providing unpaid family care for older family members while performing paid work. Exploring perceived benefits and challenges with web-based information and communication technologies as a means of supporting working carers' in their caregiving role, this paper draws on findings from a qualitative study. The study aimed to describe working carers' experiences of having access to the web-based family care support network 'A good place' (AGP) provided by the municipality to support those caring for an older family member. Content analysis of interviews with nine working carers revealed three themes: A support hub, connections to peers, personnel and knowledge; Experiencing ICT support as relevant in changing life circumstances; and Upholding one's personal firewall. Findings indicate that the web-based family care support network AGP is an accessible, complementary means of support. Utilising support while balancing caregiving, work obligations and responsibilities was made easier with access to AGP; enabling working carers to access information, psychosocial support and learning opportunities. In particular, it provided channels for carers to share experiences with others, to be informed, and to gain insights into medical and care issues. This reinforced working carers' sense of competence, helping them meet caregiving demands and see positive aspects in their situation. Carers' low levels of digital skills and anxieties about using computer-based support were barriers to utilising web-based support and could lead to deprioritising of this support. However, to help carers overcome these barriers and to better match web-based support to working carers' preferences and situations, web-based support must be introduced in a timely manner and must more accurately meet each working carer's unique caregiving needs.

  • 3. Andersson, Stefan
    et al.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Teknikstöd för yrkesverksamma anhöriga: resultat från utvärdering av tre projekt inom programmet Teknik för äldre II2012Report (Other academic)
    Abstract [sv]

    Nationellt kompetenscentrum anhöriga fick i uppdrag av Hjälpmedelsinstitutet att under 2012 utvärdera tre projekt inom programmet, "Teknik för äldre II" som fokuserar på tekniskt stöd till anhöriga "Mitt i livet" som kombinerar förvärvsarbete med anhörigomsorg. Det första projektet, "Teknikstöd – ökad social interaktion mellan anhöriga mitt i livet", i Alingsås kommun implementerade det internetbaserade IT systemet "Gapet" för yrkesverksamma anhöriga. Det andra projektet, "Modell för virtuellt anhörigstöd" i Gävle kommun, utvecklade en modell och struktur för ett enhetligt virtuellt anhörigstöd som riktade sig till yrkesverksamma anhöriga vilket inkluderade den IT-baserade stödtjänsten "Anhörigstödsportalen". Det tredje projektet, "Teknikstöd för yrkesverksamma anhöriga – en behovsstudie, fokuserade på att utföra en inventering av yrkesverksamma anhörigas behov av ny teknik, utveckla en modell för teknikstöd riktat till yrkesverksamma anhöriga samt hitta vägar för att sprida kunskap för att öka målgruppens möjlighet att nås av teknikstöd. Detta område är särskilt viktigt därför att det i nuläget finns få stödtjänster, i Sverige men även internationellt, som är speciellt anpassade till yrkesverksamma anhöriga som hjälper, stödjer och/eller vårdar en äldre närstående. Många yrkesverksamma anhöriga uttrycker att de vill hjälpa sin förälder/sina föräldrar, men att det är svårt att uppnå en balansgång mellan arbetsliv och familjeliv samtidigt som man hjälper, stödjer och/eller vårdar en äldre närstående. Det är inte ovanligt att egen tid för avkoppling och välbefinnande blir alltmer sällan och prioriteras bort. Som en följd av detta upplever de yrkesverksamma anhöriga ofta stress för att de inte räcker till och ständigt behöver bolla mellan olika sfärer av sina liv. Den senaste statistiken från Socialstyrelsen visar att närmare 100 000 anhöriga har behövt minska sin arbetstid eller sluta arbeta pååtta procent män. Yrkesverksamma anhörigas behov kan sammanfattas med information, rådgivning och/eller utbildning/ träning, praktiskt samt känslomässigt stöd som är flexibelt och passar de egna rutinerna och den egna situationen. Mot denna bakgrund, utvecklades och diskuterades en utvärderingsplan med projektledarna tillsammans med den övergripande koordinatorn för initiativet "Teknik för Äldre II" vid det första gemensamma projektmötet och utvärderingen var en återkommande nyckelfråga vid efterföljande gemensamma projektmöten som hölls under året. Utvärderingen av projekt 1 och 2 genomfördes under hösten 2012 med en liknande utformning för båda projekten där en kvalitativ utvärdering genomfördes med hjälp av fokusgruppsintervjuer och individuella intervjuer och en kvantitativ utvärdering utfördes med hjälp av ett standardiserat frågeformulär om användbarhet. Utvärderingen av projekt 3 genomfördes kontinuerligt från starten till slutet av projektet. Detta berodde på att projektet var en behovsstudie som omfattade anhörigvårdare i en kontinuerlig utvecklingsprocess vilket betyder att det var olämpligt att genomföra en utvärdering under en specifik period vilket var fallet i de två första projekten. Resultaten från utvärderingarna av de första två projekten visar att teknikstöd har en stor potential avseende yrkesverksamma anhöriga då det erbjuder ett flexibelt sätt för anhöriga att få tillgång till information och en möjlighet för anhöriga att kunna utbyta erfarenheter med andra i samma situation och själva skapa stödnätverk. På samma gång erbjuder teknikstöd personalen att arbeta på ett systematiskt sätt med stöd till anhöriga. Men, för att teknikstöd ska användas av fler anhörigvårdare och för att det ska bli mer allmänt accepterat av personalen behövs det grundläggande datorutbildning för både anhöriga och vård- och omsorgspersonal samt kontinuerlig tillgång till handledning och stöd i användningen. Resultat som härrör från en utvärdering från behovsstudien (projekt 3) visar att utbudet av kreativa och sekventiella metoder som användes under utvecklingsprocessen möjliggjorde en genuin brukarmedverkan av yrkesverksamma anhöriga så att deras röster blev hörda gällande teknikstöd. Samtidigt kan dessa innovativa metoder bilda en användbar modell för vård- och omsorgs personal gällande hur anhöriga kan nås av stöd genom produkter, tjänster och ny teknik

  • 4.
    Andersson, Stefan
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. University of Sheffield, UK.
    The use of information and communication technologies to support working carers of older people: a qualitative secondary analysis2016In: International Journal of Older People Nursing, ISSN 1748-3735, E-ISSN 1748-3743, Vol. 11, no 1, 32-43 p.Article in journal (Refereed)
    Abstract [en]

    BACKGROUND:

    Family care support services have mainly focused on older spousal carers of older people and have largely overlooked working carers, whom combine paid work with informal/family care responsibilities. Recently, however, information and communication technology (ICT) systems have been identified as a potentially flexible way of supporting working carers.

    AIM:

    The aim of this study was to describe nursing and support staff's experiences of using ICT for information, e-learning and support of working carers of older people.

    DESIGN:

    The study employed a descriptive, qualitative approach conducting a qualitative secondary analysis of two original data sets. In total, seventeen professional staff members from two municipal family carer support units in Sweden that had implemented ICTs were interviewed using a semi-structured interview guide consisting of open-ended questions.

    METHOD:

    Two data sets were merged using latent qualitative content analysis.

    FINDINGS:

    Secondary analysis produced three subthemes and an overall theme, a virtual road as a carriageway for the support of working carers, consisting of both enabling and hindering aspects in family support. This theme provides access points in both directions and is based on caring instruments that enable nursing staff's support role. The staff's sustainability and ability to support is influenced by caring opportunities and barriers.

    CONCLUSIONS:

    The findings suggest the ICTs to be flexible structures that provided nursing staff with a means and method to support working carers of older people. To overcome barriers to its use, measures to optimise support for working carers and the older person are needed.

    IMPLICATIONS FOR PRACTICE:

    The use of ICTs provides nurses with a means to offer support to working carers of older people and enables carers to be informed, to learn and to share their burdens with others when caring for an older family member.

  • 5. Andreasson, Frida
    et al.
    Andreasson, Jesper
    Linnaeus University, Faculty of Social Sciences, Department of Sport Science.
    Hanson, Elizabeth
    Developing a Carer Identity and Negotiating Everyday Life Through Social Networking Sites2017In: 21st IAGG World Congress of Gerontology and Geriatrics, July 23-27, San Fransisco, California, USA., 2017Conference paper (Refereed)
  • 6.
    Andréasson, Frida
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Andreasson, Jesper
    Linnaeus University, Faculty of Social Sciences, Department of Sport Science.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Developing a carer identity and negotiating everyday life through social networking sites: An explorative study on identity constructions in an online Swedish carer community2017In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779Article in journal (Refereed)
    Abstract [en]

    An overarching reason why carers do not utilise support services is that many people who perform care-giving do not necessarily self-identify as a carer. Understanding the development of carer identities is therefore crucial for the utilisation of different carer-focused health services. This study arose from the European Union-funded INNOVAGE project and aimed to describe how older carers conceptualise and understand their identity as carers on a Swedish online social forum. Theoretically the study adopts a constructionist approach and the method of netnography was applied. The findings reveal that a change in self-perception occurs in the process through which a carer role is acquired. The presence or absence of recognition for the older carers’ capacity, knowledge and life situation is seen as filtered through the needs of the care recipient, making the carer identity into an invisible self. This is not least the case when the identity is constructed in alliance with conceptual and moral obligations found within a marital discourse. Nevertheless, the opportunity for online communication may help to create a virtual space of social recognition through which different experiences attached to caring can be discussed. The significance of online communication is here understood as the possibility it presents for carers to be recognised by other carers. It is a process through which an invisible self can become visible.

  • 7.
    Andréasson, Frida
    et al.
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Swedish Family Care Competence Centre (NKA).
    Dissemination event Sweden2015Conference paper (Other (popular science, discussion, etc.))
  • 8.
    Andréasson, Frida
    et al.
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Swedish Family Care Competence Centre (NKA).
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Barbabella, Francesco
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Lancioni, Cristina
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Papa, Roberta
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Poli, Arianna
    Italian National Institute of Health and Science on Aging (INRCA) ; Linköping University.
    Salzmann, Benjamin
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Döhner, Hanneli
    Eurocarers, Belgium.
    Efthymiou, Areti
    Eurocarers, Belgium.
    Anhörigstöd via internet: InformCare2015Conference paper (Other (popular science, discussion, etc.))
  • 9.
    Andréasson, Frida
    et al.
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Swedish Family Care Competence Centre (NKA).
    Lancioni, Cristina
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Papa, Roberta
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Barbabella, Francesco
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Online support for carers: using a social forum and social network as a means of developing the role of informal caregiving2015Conference paper (Refereed)
  • 10.
    Andréasson, Frida
    et al.
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Eurocarers, Belgium.
    Lancioni, Cristina
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Papa, Roberta
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Barbabella, Francesco
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    The INNOVAGE-Eurocarers platform and current ICT-based services for informal carers of older people in Sweden2015In: Irish Ageing Studies Review, ISSN 1649-9972, Vol. 6, no 1, 88-88 p.Article in journal (Refereed)
    Abstract [en]

    Background: Different support services for family carers are available in Sweden through information and communication technologies (ICTs) since late 1990s, like ACTION, My Joice, IPPI, ‘The Gap’, and Carer Sweden’s online ‘Carer’s Book’. The INNOVAGE-Eurocarers platform aimed to complement the offer of web services to carers through the provision of a new tailored package.

    Methods: The Swedish pilot test enrolled around 50 carers through contacts with professionals working with carers in different municipalities. They could access the following web-based services: information resources; individual support via e-mail and private messages; group support via social network and forum. Periodical writing activities were asked to active users in the forum, alternating expressive writing (EW) and time management (TM) writing tasks. Periodical reminders were sent in order to increase user involvement.

    Results: Users were predominantly older, female carers, of which two thirds were over 65 years old. The web platform was perceived as a flexible tool, potentially accessible at any time, which gave users the possibility to exploit their experience as carers with others in similar situations. This peer exchange seemed to improve self empowerment, sense of solidarity and mutual learning. However, usage of the web platform was limited due to the low level of digital skills of some carers.

    Conclusions: Although results confirmed usefulness and appropriateness of implemented web services, it is fundamental to address the issue of usability and accessibility in order to ensure a wider accessibility. An option might be to offer initial digital skill training and continuous technical support for computer novices.

  • 11.
    Andréasson, Frida
    et al.
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Eurocarers, Belgium.
    Lancioni, Cristina
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Papa, Roberta
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Barbabella, Francesco
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    The INNOVAGE-Eurocarers platform and current ICT-based services for informal carers of older people in Sweden2015Conference paper (Refereed)
    Abstract [en]

    Background: Different support services for family carersare available in Sweden through information andcommunication technologies (ICTs) since late 1990s, likeACTION, My Joice, IPPI, ‘The Gap’, and Carer Sweden’son-line ‘Carer’s Book’. The INNOVAGE-Eurocarersplatform aimed to complement the offer of web services tocarers through the provision of a new tailored package.

    Methods: The Swedish pilot test enrolled around 50carers through contacts with professionals working withcarers in different municipalities. They could access thefollowing web-based services: information resources;individual support via e-mail and private messages; groupsupport via social network and forum. Periodical writingactivities were asked to active users in the forum,alternating expressive writing (EW) and time management(TM) writing tasks. Periodical reminders were sent in orderto increase user involvement.

    Results: Users were predominantly older, female carers,of which two thirds were over 65 years old. The webplatform was perceived as a flexible tool, potentiallyaccessible at any time, which gave users the possibility toexploit their experience as carers with others in similarsituations. This peer exchange seemed to improve selfempowerment,sense of solidarity and mutual learning.However, usage of the web platform was limited due to thelow level of digital skills of some carers.

    Conclusions: Although results confirmed usefulness andappropriateness of implemented web services, it isfundamental to address the issue of usability andaccessibility in order to ensure a wider accessibility. Anoption might be to offer initial digital skill training andcontinuous technical support for computer novices.

  • 12.
    Andréasson, Frida
    et al.
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Swedish Family Care Competence Centre (NKA) ; Eurocarers, Belgium.
    Poli, Arianna
    Italian National Institute of Health and Science on Aging (INRCA) ; Linköping University.
    Barbabella, Francesco
    Italian National Institute of Health and Science on Aging (INRCA).
    Lancioni, Cristina
    Italian National Institute of Health and Science on Aging (INRCA).
    Papa, Roberta
    Italian National Institute of Health and Science on Aging (INRCA).
    Lamura, Giovanni
    Italian National Institute of Health and Science on Aging (INRCA).
    The use of on-line social network and services by family carers with high digital skills: The case of the Swedish sample2016Conference paper (Refereed)
    Abstract [en]

    AIMS. The InformCare platform aimed to complement the offer of already available web services to carers through the provision of a new comprehensive package.

    METHODS. 36 family carers were enrolled in Sweden and used the platform during the intervention. They could access the following web-based services: information resources; individual support via e-mail and private messages; group support via social network and forum. Periodical writing activities were asked to active users in the forum, alternating expressive writing (EW) and time management (TM) writing tasks.

    FINDINGS. Users were predominantly older, female carers, who considered the web platform as a flexible tool, potentially accessible at anytime, which could empower users and improve their sense of solidarity and mutual learning.

    CONCLUSIONS. Although results confirmed usefulness and appropriateness of implemented web services, some carers experienced problems in accessing and navigation, which required continuous technical support by web developers.

  • 13. Barbabella, Francesco
    et al.
    Efthymiou, A.
    Lancioni, C.
    Döhner, H.
    Goodwin, F.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Andréasson, F.
    Salzman, D.
    Poli, A.
    Papa, R.
    Mackay, M.
    Lamura, G.
    Deliverable D3.1 Report on the web-based support specification2013Report (Other academic)
  • 14. Barbabella, Francesco
    et al.
    Efthymiou, A.
    Poli, A.
    Döhner, H.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lancioni, C.
    Annibali, M.
    Andréasson, F.
    Salzman, D.
    Papa, R.
    Yghemonos, S.
    Centola, F.
    Lamura, G.
    Deliverable D3.2 Publication of the final implementation of the web platform2015Report (Other academic)
  • 15.
    Barbabella, Francesco
    et al.
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Efthymiou, Areti
    Eurocarers, Belgium.
    Poli, Arianna
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Lancioni, Cristina
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Andréasson, Frida
    Swedish Family Care Competence Centre (NKA).
    Salzmann, Benjamin
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Hanson, Elizabeth
    Swedish Family Care Competence Centre (NKA).
    Döhner, Hanneli
    Eurocarers, Belgium.
    Goodwin, Frank
    Eurocarers, Belgium.
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    A multilingual web platform supporting informal carers in 27 EU member states2015In: Broader, bigger, better: AAL solutions for Europe. Proceedings of the 6th AAL Forum 2014 / [ed] Adrian Curaj & Ioana Trif, Bucharest: UEFISCDI , 2015, 169-172 p.Conference paper (Refereed)
    Abstract [en]

    Informal care is a hot topic in research and policy agendas at European and national level, since it greatly contributes to the sustainability and efficiency of national health care systems. A specific intervention – part of the wider INNOVAGE project funded by FP7 – was planned for developing and testing a new multilingual web platform for informal carers of dependent older people in the EU-27. Preliminary results of the pilot study, conducted in Italy, Germany and Sweden will be discussed. The final platform will be accessible in all official languages of the EU-27 and publicly available in spring 2015.

  • 16.
    Barbabella, Francesco
    et al.
    European Centre for Social Welfare Policy and Research, Austria ; Italian National Institute of Health and Science on Aging (INRCA), Italy .
    Hoffmann, Frédérique
    European Centre for Social Welfare Policy and Research, Austria.
    Rodrigues, Ricardo
    European Centre for Social Welfare Policy and Research, Austria.
    Schmidt, Andrea
    European Centre for Social Welfare Policy and Research, Austria.
    Chiatti, Carlos
    Italian National Institute of Health and Science on Aging (INRCA), Italy.
    Fry, Gary
    University of Leeds, UK.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences. Swedish National Family Care Competence Centre (SNFCCC), Sweden.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences. Swedish National Family Care Competence Centre (SNFCCC), Sweden.
    Socci, Marco
    Polytechnic University of Marche, Italy ; Italian National Institute of Health and Science on Aging (INRCA), Italy.
    Stückler, Andreas
    European Centre for Social Welfare Policy and Research, Austria.
    Széman, Zsuzsa
    Hungarian Academy of Science, Hungary.
    Widéhn, Nadja
    Swedish National Family Care Competence Centre (SNFCCC), Sweden.
    Lamura, Giovanni
    Italian National Institute of Health and Science on Aging (INRCA), Italy ; European Centre for Social Welfare Policy and Research, Austria.
    Deliverable 3.6: Final report on the “Methodological Framework”2011Report (Other academic)
    Abstract [en]

    This report proposes a framework for Impact Assessment of ICT-enabled services to support informal carers, at family, organisational and national levels, and applies this framework to assess the evidence for impact in 12 cases from Europe and North America.

  • 17.
    Barbabella, Francesco
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. National Institute of Health and Science on Ageing (INRCA), Italy.
    Poli, Arianna
    National Institute of Health and Science on Ageing (INRCA), Italy ; Linköping University.
    Andréasson, Frida
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
    Salzmann, Benjamin
    National Institute of Health and Science on Ageing (INRCA), Italy ; wir pflegen e.V., Germany.
    Papa, Roberta
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden ; Eurocarers, Belgium.
    Efthymiou, Areti
    Eurocarers, Belgium ; Cyprus University of Technology, Cyprus.
    Döhner, Hanneli
    wir pflegen e.V., Germany ; Eurocarers, Belgium.
    Lancioni, Christina
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Civerchia, Patrizia
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Lamura, Giovani
    National Institute of Health and Science on Ageing (INRCA), Italy.
    A web-based psychosocial intervention for family caregivers of older people: results from a mixed-methods study in three European countries2016In: JMIR Research Protocols, ISSN 1929-0748, E-ISSN 1929-0748, Vol. 5, no 4, 1-16 p., e196Article in journal (Refereed)
    Abstract [en]

    Background: Informal caregiving is the main source of care for older people in Europe. An enormous amount of responsibility and care activity is on the shoulders of family caregivers, who might experience problems in their psychological well-being and in reconciling caregiving and their personal sphere. In order to alleviate such burden, there is increasing interest and growing research in Europe on Web-based support addressing family caregivers and their needs. However, the level of development and penetration of innovative Web-based services for caregivers is still quite low and the access to traditional face-to-face services can be problematic for logistic, availability, and quality reasons.

    Objective: As part of the European project INNOVAGE, a pilot study was conducted for developing and testing a Web-based psychosocial intervention aimed at empowering family caregivers of older people in Italy, Sweden, and Germany. The program offered information resources and interactive services to enable both professional and peer support.

    Methods: A mixed-methods, sequential explanatory design was adopted. Caregivers’ psychological well-being, perceived negative and positive aspects of caregiving, and social support received were assessed before and after the 3-month intervention. Poststudy, a subsample of users participated in focus groups to assist in the interpretation of the quantitative results.

    Results: A total of 94 out of 118 family caregivers (79.7%) from the three countries used the Web platform at least once. The information resources were used to different extents in each country, with Italian users having the lowest median number of visits (5, interquartile range [IQR] 2-8), whereas German users had the highest number (17, IQR 7-66) (P<.001). The interactive services most frequently accessed (more than 12 times) in all countries were the social network (29/73, 40%) and private messages (27/73, 37%). The pretest-posttest analysis revealed some changes, particularly the slight worsening of perceived positive values of caregiving (Carers of Older People in Europe [COPE] positive value subscale: P=.02) and social support received (COPE quality-of-support subscale: P=.02; Multidimensional Scale of Perceived Social Support subscale: P=.04), in all cases with small effect size (r range -.15 to -.18). Focus groups were conducted with 20 family caregivers and the content analysis of discussions identified five main themes: online social support, role awareness, caregiving activities, psychological well-being, and technical concerns. The analysis suggested the intervention was useful and appropriate, also stimulating a better self-efficacy and reappraisal of the caregivers’ role.

    Conclusions: The intervention seemed to contribute to the improvement of family caregivers’ awareness, efficacy, and empowerment, which in turn may lead to a better self-recognition of their own needs and improved efforts for developing and accessing coping resources. A major implication of the study was the finalization and implementation of the InformCare Web platform in 27 European countries, now publicly accessible (www.eurocarers.org/informcare).

  • 18.
    Bergman, Ann-Sofie
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Axberg, Ulf
    University of Gothenburg.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. University of Sheffield, UK.
    When a parent dies: a systematic review of the effects of support programs for parentally bereaved children and their caregivers2017In: BMC Palliative Care, ISSN 1472-684X, E-ISSN 1472-684X, Vol. 16, 1-15 p., 39Article in journal (Refereed)
    Abstract [en]

    Background: The death of a parent is a highly stressful life event for bereaved children. Several studies have shown an increased risk of mental ill-health and psychosocial problems among affected children. The aims of this study were to systematically review studies about effective support interventions for parentally bereaved children and to identify gaps in the research.

    Methods: The review’s inclusion criteria were comparative studies with samples of parentally bereaved children. The focus of these studies were assessments of the effects on children of a bereavement support intervention. The intervention was directed towards children 0–18 years;but it could also target the children’s remaining parent/caregiver. The study included an outcome measure that dealt with effects of the intervention on children. The following electronic databases were searched up to and including November 2015: PubMed, PsycINFO, Cinahl, PILOTS, ProQuest Sociology (Sociological Abstracts and Social Services Abstracts). The included studies were analysed and summarized based on the following categories: type of intervention, reference and grade of evidence, study population, evaluation design, measure, outcome variable and findings as effect size within and between groups.

    Results: One thousand, seven hundred and six abstracts were examined. Following the selection process, 17 studies were included. The included studies consisted of 15 randomized controlled studies, while one study employed a quasi-experimental and one study a pre-post-test design. Thirteen studies provided strong evidence with regards to the quality of the studies due to the grade criteria; three studies provided fairly strong evidence and one study provided weaker evidence. The included studies were published between 1985 and 2015, with the majority published 2000 onwards. The studies were published within several disciplines such as psychology, social work, medicine and psychiatry, which illustrates that support for bereaved children is relevant for different professions. The interventions were based on various forms of support: group interventions for the children, family interventions, guidance for parents and camp activities for children. In fourteen studies, the interventions were directed at both children and their remaining parents. These studies revealed that when parents are supported, they can demonstrate an enhanced capacity to support their children. In three studies, the interventions were primarily directed at the bereaved children. The results showed positive between group effects both for children and caregivers in several areas, namely large effects for children’s traumatic grief and parent’s feelings of being supported; medium effects for parental warmth, positive parenting, parent’s mental health, grief discussions in the family, and children’s health. There were small effects on several outcomes, for example children’s post-traumatic stress disorder (PTSD) symptoms, anxiety, depression, self-esteem and behaviour problems. There were studies that did not show effects on some measures, namely depression, present grief, and for the subgroup boys on anxiety, depression, internalizing and externalizing.

    Conclusions: The results indicate that relatively brief interventions can prevent children from developing more severe problems after the loss of a parent, such as traumatic grief and mental health problems. Studies have shown positive effects for both children’s and remaining caregiver’s health. Further research is required including how best to support younger bereaved children. There is also a need for more empirically rigorous effect studies in this area.

  • 19.
    Bergman, Ann-Sofie
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Barn som är anhöriga när en förälder avlider: en kunskapsöversikt om effekt av metoder för stöd till barn2014Report (Other academic)
    Abstract [sv]

    Denna kunskapsöversikt handlar om stöd till barn när en förälder avlider. En utgångspunkt är tilläggen i Hälso- och sjukvårdslagen (SFS 2009:979) § 2g och Patientsäkerhetslagen (SFS 2010:659) kap. 6 § 5 om att samhällets hälso- och sjukvård ska beakta barns behov av information, råd och stöd om barnets förälder eller någon annan vuxen som barnet varaktigt bor tillsammans med har en psykisk störning eller en psykisk funktionsnedsättning; har en allvarlig fysisk sjukdom eller skada; är missbrukare av alkohol eller annat beroendeframkallande medel; eller om barnets förälder eller någon annan vuxen som barnet varaktigt bor tillsammans med oväntat avlider.

    Syftet med kunskapsöversikten är att systematiskt söka, granska och sammanställa kunskap om verksamma metoder för att ge stöd till barn vars förälder eller omsorgsperson avlider. Ett syfte är vidare att identifiera fortsatt kunskapsbehov. Följande frågeställningar är i fokus för översikten:

    • Hur ser kunskapsläget ut om effekter av interventioner för att ge stöd till barn vars förälder avlider?
    • Vilka metoder har prövats och utvärderats med fokus på effekter för barnen?
    • Vilket behov av ny kunskap kan identifieras utifrån resultaten i kunskapsöversikten?

    I arbetet med kunskapsöversikten har drygt 1700 referenser granskats för att finna relevanta effektstudier. Vid urvalet har Socialstyrelsens metodbeskrivning för genomförande av systematiska översikter varit vägledande, vilken vilar på The Cochrane Handbook for Systematic Review of Interventions (http://handbook.cochrane.org/). Studiedesignen kan vara randomiserad kontrollerad studie (RCT) eller kvasiexperimentell studie. Då effektutvärderingar av denna typ är relativt få inom området har även studier med design som bygger på pre-test och post-test inkluderats.

    Urvalskriterier i processen har varit att interventionen riktas till barn i åldern 0-18 år. Interventionen kan förutom att riktas till barnen också riktas till de kvarlevande föräldrarna. För att inkluderas i översikten ska något utfallsmått handla om interventionens effekt för barnen. Efter selektion har slutligen 16 vetenskapliga referenser inkluderats. Dessa har publicerats under perioden 1985-2014, de flesta under 2000-talet. Inkluderade studier har publicerats inom flera ämnen såsom psykologi, socialt arbete, medicin, psykiatri, vilket illustrerar att frågan om stöd till barn vars förälder avlider är relevant för flera yrkesgrupper.

    De utvärderade interventionerna beskrivs relativt ingående i kunskapsöversikten, för att ge inspiration till utvecklingsarbete. De beskrivna interventionerna bygger på olika stödformer: gruppinterventioner, familjeinterventioner, föräldrastöd, lägerverksamhet. I tre av 16 studier har interventionen i första hand riktats till barnen, men det vanligaste är att den har riktats till både barnen och deras kvarlevande föräldrar. Avsikten med att inkludera föräldrar har varit att ge stöd till föräldrarna för att de i sin tur ska få bättre förmåga att stödja sina barn.

    De flesta inkluderade studier har randomiserad kontrollerad studiedesign. En studie bygger på kvasiexperimentell design och en på pre-post-design, där mätning av symtom har gjorts före och efter intervention, för att mäta effekter. En intervention utmärker sig i översikten, The Family Bereavement Program, då den ingår med tio artiklar. Programmet har utvärderats utifrån olika sätt att mäta utfall och med en uppföljningstid på upp till sex år. I de inkluderade studierna används en mängd olika utfallsmått för att mäta interventionernas effekter, flest relaterar till barnens hälsa, framför allt den psykiska hälsan, och till den kvarlevande förälderns föräldraförmåga.

    Översikten visar att interventioner har gett signifikanta effekter för barn och föräldrar inom flera områden. Studierna visar sammantaget att förhållandevis begränsade insatser kan förebygga att barn utvecklar svårare problem. Utifrån aktuellt kunskapsläge ger översikten stöd för att interventioner till barn vars förälder avlider behöver riktas till både barnet och barnets kvarlevande förälder/omsorgsgivare.

  • 20.
    Bergman, Ann-Sofie
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Effekt av metoder för stöd till barn när en förälder avlider: Kortversion av Kunskapsöversikt 2014:12015Report (Other academic)
  • 21.
    Bergman, Ann-Sofie
    et al.
    Linnaeus University, Faculty of Social Sciences, Department of Social Work.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Stöd till barn när en förälder avlider2015In: Att se barn som anhöriga - om beroende i relationer, interventioner och omsorgsansvar: Antologi / [ed] Ulrika Järkestig Bergren, Lennart Magnusson, Elizabeth Hanson, Kalmar/Växjö: Nationellt kompetenscentrum anhöriga, Linnéuniversitetet , 2015, 201-227 p.Chapter in book (Other academic)
    Abstract [sv]

    Att förlora en förälder i dödsfall är mycket påfrestande för barn under uppväxten. När en förälder avlider innebär det en kris och omvälvande förändring. Förlusten får stora konsekvenser, då det rör sig om att förlora en person som står för kärlek, trygghet och daglig omsorg. Förutsägbarhet och stabilitet i tillvaron påverkas negativt.  Förlusten av en eller båda föräldrarna har samband med en större utsatthet och sårbarhet för barn. I kapitlet behandlas konsekvenser för barnen vid en förälders dödsfall, riskfaktorer och skyddande faktorer för barnen, aktuellt forskningsläge om effekter av stödinterventioner riktade till barnen, samt forskning om barns upplevelser av sina behov och av vad som har varit till stöd för dem efter förlusten.

    De utvärderade interventionerna bygger på olika former av stöd till barn och föräldrar, såsom stödgrupper och lägerverksamhet för barn, familjestöd samt föräldrastöd. Forskningsgenomgången om effekter av stöd ger indikation på att stödinterventioner kan förebygga att barn utvecklar allvarligare problem efter förlusten av en förälder. Utifrån aktuellt kunskapsläge finns det stöd för att interventioner till barn vars förälder avlider behöver riktas till både barnet och till barnets kvarvarande förälder/omsorgsgivare. Stöd till kvarvarande föräldrar kan förbättra deras egen hälsa och främja deras föräldraförmåga, så att de kan ge bättre stöd till sina barn. Samtidigt behöver stöd riktas direkt till barnen. Därutöver har gemensamt stöd till barn och föräldrar med fokus på familjeinteraktion och familjekommunikation visats ge positiv effekt.

    Kvalitativa studier visar att barnen har uppskattat att delta i stödinterventioner då det har hjälpt dem att se att de inte är ensamma i sin situation. Vidare beskriver barn att det har varit till hjälp för dem att få ge uttryck för känslor, sorg, förlust, att känna sig förstådd, att få kunskap och förståelse, samt att även få göra roliga saker/aktiviteter trots sorgen.

  • 22.
    Carlsund, Åsa
    et al.
    Swedish Family Care Competence Centre (NKA) ; Mid Sweden University.
    Johansson, Pauline
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA).
    Hammare, Ulf
    Swedish Family Care Competence Centre (NKA) ; Ersta Sköndal Bräcke University College.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA).
    Support for children as next of kin and systematic follow up: group leaders’ and managers’ perspectives within non-profit organizations in Sweden2017In: Open Family Studies Journal, ISSN 1874-9224, Vol. 9, 49-59 p., TOFAMSJ-9-49Article in journal (Refereed)
    Abstract [en]

    Method: The aim of this study was to explore the systematic follow up of supportive activities in non-profit organizations targeted at childrenas next of kin. Managers and group leaders were interviewed, and findings were content analysed.

    Result: The findings indicated that a child focus, education, safety and trust were important. These factors were observed as the primarytasks and the key reason for being involved in supportive activities. Managers expressed concern about not retaining funding, if the organization was unable to demonstrate the effects of their activities. Namely, to enhance the health and wellbeing of children. In order to continuously develop their work most organisations explained that they used some form of system for follow up. However,there was a wide variation in how non-profit organizations worked with follow ups.

    Conclusion: Overall, it was evident that there was a major need for education and support in this area.

  • 23. Chiatti, Carlos
    et al.
    Fry, Gary
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Socci, Marco
    Stückler, Andreas
    Széman, Zsuzsa
    Widéhn, Nadja
    Barbabella, Francesco
    Lamura, Giovanni
    Deliverable 4.3: Final report containing case-by case detailed description and analysis of 12 good practices2011Report (Other academic)
  • 24. Christensen, Carina
    et al.
    Sennemark, Eva
    Moberg, Anette
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Hanson, Elizabeth
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Införande av systematisk planering och uppföljning av anhörigstöd med hjälp av COAT: Delrapport till Länsstyrelsen i Skåne län för perioden 060118 - 0701182007Report (Other academic)
  • 25. De Bie Widéhn, Nadja
    et al.
    Nichlasson, Malin
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Svensson, Paul
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    BLANDADE LÄRANDE NÄTVERK - arbete i partnerskap för att förbättra vård- och omsorgstjänster till äldre och deras anhörigvårdare via informations- och kommunikationsteknologi2009Report (Other (popular science, discussion, etc.))
  • 26.
    Ducharme, Francine
    et al.
    Université de Montréal.
    Lévesque, Louise
    Caron, Chantal
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Nolan, Janet
    Nolan, Mike
    [A useful test for evaluating the needs for support of family members--help for an aged parent at home: a tool with potential application in French-speaking Europe]2010In: Recherche en soins infirmiers, ISSN 0297-2964, Vol. 101, 67-68 p.Article in journal (Refereed)
    Abstract [en]

    The Family Caregivers Support Agreement (FCSA) tool, based on a caregiver-service provider partnership approach to assess the support needs of family caregivers of a home-living aging relative, was field-tested to document its relevance for use in Quebec (Canada) practice settings. The FCSA tool is a modified version of the Carers Outcome Assessment Tool, initially developed as the result of an Anglo-Swedish Study. The field test was conducted with 17 French- and English-speaking caregivers and revealed numerous unmet caregiver needs, especially of a psycho-educational nature. The use of the FCSA tool lead to an identification of homecare support services which corresponded to caregiver needs and expectations. According to the homecare services providers interviewed, the FCSA tool offers a structured and flexible approach that facilitates the identification of services sensitive to caregiver needs. The instrument allows concretizing the partnership process, in particular, by bringing to light the unique needs of individual caregivers, empowering caregivers by considering them active participants in decision making, and fostering a proper fit between services and needs. Results are in line with those of other studies, suggesting that the caregiver role entails common core needs and that the impact of the FCSA tool is comparable regardless of practice setting. All told, the FCSA tool could potentially be applied in the French-speaking Europe.

  • 27.
    Ducharme, Francine
    et al.
    Centre de recherche de l’Institut universitaire de gériatrie de Montréal.
    Lévesque, Louise
    Faculté des sciences infirmières, Université de Montréal.
    Caron, Chantal
    Research Centre on Aging, Universite´ de Sherbrooke.
    Hanson, Elizabeth
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Nolan, Mike
    University of Sheffield, UK.
    Nolan, Janet
    Sheffield Hallam University, UK.
    Validation d'un outil pour les proches-aidants: Validation of a tool for family caregivers2009In: Recherche en soins infirmiers, ISSN 0297-2964, Vol. 97, 63-73 p.Article in journal (Refereed)
    Abstract [en]

    The purpose of this transcultural study was to translate and adapt for the province of Quebec (Canada) a tool for assessing the support needs of family caregivers of aging persons, as well as to validate the relevance and feasibility of its utilization in Quebec homecare services. Developed jointly in the United Kingdom and Sweden and based on a caregiver-service provider partnership process, the Carers Outcome Agreement Tool (COAT) is presently the focus of a large-scale implementation study in Sweden. Following parallel back-translation and adaptation, the tool, entitled Entente sur le Soutien aux Proches-Aidants (ESPA) in French, was validated in terms of relevance and feasibility via focus groups with service providers and interviews with family caregivers. Results show the ESPA to be a culturally sensitive tool that systematically identifies the support needs of caregivers and indicates the type of help best suited to meet these needs. As with other European studies, the results suggest that the caregiver role comprises a common core of needs and highlights the tool's potential for transfer to the cultural context of French-speaking Europe.

  • 28.
    Efthymiou, Areti
    et al.
    Eurocarers, Belgium.
    Poli, Arianna
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Döhner, Hanneli
    Eurocarers, Belgium.
    Hanson, Elizabeth
    Eurocarers, Belgium.
    Barbabella, Francesco
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Goodwin, Frank
    Eurocarers, Belgium.
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    The role of Eurocarers in promoting web-based support services for informal carers in Europe2015In: Irish Ageing Studies Review, ISSN 1649-9972, Vol. 6, no 1, 88-89 p.Article in journal (Refereed)
    Abstract [en]

    Background: Eurocarers is an European non-profit association representing informal carers. It was officially established in 2006 and includes user organisations, research institutions and individual members addressing and working on the issue of informal care. Eurocarers participates in the work package 3 (WP3) of the INNOVAGE project, aiming to develop and disseminate a multilingual web platform for informal carers in 27 Member States of the European Union (EU).

    Methods: A wide networking activity was carried out in 2013-2014 for identifying and involving at least one user organisation in each country of the EU-27, which could take over responsibility of single national versions of the platform. 29 carers organisations were involved in implementation, as well as in developing country-based contents for the information resources area.

    Results: Information resource area will be implemented in the EU-27 in all official languages and updated progressively by organisations. Each organisation will implement a set of interactive services, depending on country peculiarities and available resources. A further dissemination phase will follow, based on a multilayered approach: one EU event will take place in 2015, followed by national events and other local activities.

    Conclusions: A fundamental role in the development and dissemination of web-based support services for carers is played by the activation of a strong and comprehensive network of organisations. Characteristics of the internet have the potential to strengthen collaboration between stakeholders and converge efforts for improving level of support services in countries with less cultural, social and policy recognition of carers’ role in the society.

  • 29.
    Efthymiou, Areti
    et al.
    Athens Association of Alzheimer's Disease and Related Disorders, Greece.
    Vlachogiann, Aggeliki
    Athens Association of Alzheimer's Disease and Related Disorders, Greece.
    Nika, Aspasia
    Athens Association of Alzheimer's Disease and Related Disorders, Greece.
    Barbabella, Francesco
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Poli, Arianna
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Salzmann, Benjamin
    wir pflegen, Germany.
    Andréasson, Frida
    Swedish Family Care Competence Centre (NKA).
    Hanson, Elizabeth
    Swedish Family Care Competence Centre (NKA).
    Doehner, Hanneli
    Eurocarers, Belgium.
    Lamura, Giovanni
    National Institute of Health and Science on Ageing (INRCA), Italy.
    Web services for Greek informal carers2015In: Hellenic Journal of Nuclear Medicine, ISSN 1790-5427, Vol. 18, 51-53 p.Article in journal (Refereed)
    Abstract [en]

    The INNOVAGE project is dedicated to developing, surveying and cataloguing, social innovations for older people. Four new innovations will be developed and tested: a) social innovation for user – driven housing of older people, b) a web-platform for informal carers of older people, c) social intervention for improving obesity in old age, d) social innovation for activation of people with dementia living in long term care institutions. Italian National Institute of Health and Science on Aging (INRCA) (www.inrca.it) and Eurocarers Association (www.eurocarers.org) are the partners responsible for developing and implementing a multilingual web platform for informal carers in 27 EU Member States. An innovAge carers associations network has been established based on the Eurocarers organisations network. National organizations, members of INNOVAGE network, are responsible for developing national information and disseminating the web platform at national level. Athens Association of Alzheimer‘s Disease and Related Disorders is an official member of the INNOVAGE network and participates in the development of the Greek version of the INNOVAGE web platform. The platform will provide to end-users services such as: national information on care and support services, legal and financial information, information about the most common impairments of older people, strategies and information about coping with caregiving. Interactive services, social network, forum, chat, video conferencing tools will be also available. The Greek version of the web platform will be available in May 2015.

  • 30.
    Ericsson, Iréne
    et al.
    Jönköping University.
    Persson, Marie
    Jönköping University.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA).
    Anhöriga till äldre personer med psykisk ohälsa2016Report (Other academic)
    Abstract [sv]

    I denna kunskapsöversikt är vuxna anhöriga till en äldre person med psykisk ohälsa fokus. Eftersom psykisk ohälsa hos äldre skiljer sig från psykisk ohälsa hos yngre vuxna behöver situationen för dessa anhöriga beskrivas och deras specifika behov och stöd lyftas fram. Kunskapsöversikten inleds med en bakgrund till psykisk ohälsa hos äldre. Därefter följer en kort beskrivning av vård och omsorg för äldre med psykisk ohälsa, vilket är ett komplext område med många olika vårdaktörer. Slutligen presenteras forskning om anhöriga till vuxna med psykisk ohälsa och anhöriga till äldre.

  • 31.
    Erlingsson, Christen
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Anhörigvårdares hälsa2010Report (Other academic)
  • 32.
    Erlingsson, Christen
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Family Caregivers’ Health in connection with providing care2012In: Qualitative Health Research, ISSN 1049-7323, E-ISSN 1552-7557, Vol. 22, no 5, 640-655 p.Article in journal (Refereed)
    Abstract [en]

    Our aim was to investigate connections between Swedish family caregivers’ health and providing care for an ill relative by conducting a systematic search and synthesis of previous research. We analyzed 31 articles using first qualitative content analysis then hermeneutic analysis. Analysis resulted in three derived themes—sliding sideways into caregiving, caregiving in reciprocity, and caregiving in disintegration—and a main interpretation and conceptual model of Swedish family caregivers’ health—caregiving in a sphere of beliefs. Results indicated that Swedish family caregivers’ beliefs, experiences of reciprocity, or nonsupport, together with quality of interpersonal relationships and feelings of responsibility and guilt, have a profound impact on their health. These results point to the value and importance of nurses gaining an understanding of family caregivers’ beliefs and experiences of reciprocity or nonsupport to effectively promote family caregivers’ health.

  • 33.
    Erlingsson, Christen
    et al.
    University of Kalmar, School of Human Sciences.
    Magnusson, Lennart
    University of Kalmar, School of Human Sciences.
    Hanson, Elizabeth
    University of Kalmar, School of Human Sciences.
    Health of informal family caregivers in Sweden2009Conference paper (Refereed)
  • 34.
    Fagerberg, Åke
    et al.
    Varbergs kommun.
    Moberg, Anette
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Hanson, Elizabeth
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Införande av en modell och instrument för att kartlägga behov och planera ett individuellt anpassat stöd för anhörigvårdare i Varbergs kommun: Delrapport till Länsstyrelsen i Hallands län för perioden 060118 - 0612312007Report (Other academic)
  • 35.
    Hagberg, Peter
    et al.
    Nationellt kompetenscentrum anhöriga.
    Johansson, Pauline
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Nationellt kompetenscentrum anhöriga.
    Nordqvist, Eva
    Nationellt kompetenscentrum anhöriga.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Nationellt kompetenscentrum anhöriga.
    Styrkor och färdigheter som möjligheter i utbildning och arbete för unga omsorgsgivare med minoritets- och utländsk bakgrund2017In: Tearing down barriers to employment & education: for young, black and minority ethnic carers: national reports / [ed] Theo Gavrielides, London: IARS Publications , 2017, 1, 105-124 p.Chapter in book (Other academic)
    Abstract [sv]

    Nationellt kompetenscentrum anhöriga (Nka), som är en del av Linnéuniversitetet, är en av aktörerna i det nationella utvecklingsuppdraget kring barn som anhöriga, som Socialstyrelsen är huvudman för (www.anhoriga.se). Nka arbetar som ett expertstöd för praktiker, beslutsfattare och andra aktörer inom området barn som anhöriga. Nka har ingått som ett av partnerländerna inom det Erasmus+ (KA2 Youth) finansierade projektet Care2Work tillsammans med the IARS International Institute (Storbritannien, projektkoordinator), the Family and ChildrenCare Centre (KMOP, Grekland) och Anziani e Non Solo (Italien). Projektet Care2Work handlar om unga omsorgsgivare med minoritets- och utländsk bakgrund inom Europa, och de hinder och möjligheter de kan uppleva inför framtida utbildning, träning och arbete (www.care2work.org). Under projekttiden har vi undersökt hur ett utbildningsstöd för unga omsorgsgivare (15-29 år) med minoritets- och utländsk bakgrund skulle kunna utformas. Utöver det har en kartläggning av befintliga verksamheter och utbildnings- eller stödfunktioner som direkt eller indirekt riktar sig till målgruppen genomförts.

    Den här rapporten är en sammanställning av de lärdomar och reflektioner som vuxit fram under projekttiden. Vi har inte funnit någon forskning i Sverige som direkt belyser den här gruppen utan har istället använt oss av forskning där målgruppen indirekt är berörd tillsammans med de studier vi själva genomfört. Det här gör det än viktigare att lärdomar från projektet används som material i utformandet av stöd till unga omsorgsgivare samt vägledning i de kunskapsluckor som finns inom området. Under projekttiden har de deltagande länderna bidragit i skapandet av en interaktiv webbplattform som innehåller utbildningsverktyg, hjälpmedel, bloggar, projektuppdateringar, events och nyheter. Webbplatsen (www.care2work.org) är speciellt designad för en bred målgrupp som inkluderar unga omsorgsgivare, ungdomsledare, forskare, akademiker, beslutsfattare och arbetsgivare. Den nya webbplattformen syftar till att öka medvetenheten om behoven hos unga omsorgsgivare och skapar en mötesplats för kreativa debatter bland olika berörda parter. Webbsidan erbjuder även en rad innovativa utbildningsverktyg, som riktar sig till både unga omsorgsgivare och professionella, och kan användas för att höja och framhäva unga omsorgsgivares kompetens och kunskap som de förvärvat genom anhörigomsorg och därmed ökat deras utbildningsmöjlighet och anställningsbarhet.

  • 36.
    Hammar, Tora
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Medicine and Optometry.
    Ohlson, Mats
    Med Prod Agcy, Uppsala.
    Hanson, Elizabeth
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Petersson, Göran
    Linnaeus University, Faculty of Health and Life Sciences, Department of Medicine and Optometry.
    Implementation of information systems at pharmacies – a case study from the re-regulated pharmacy market in Sweden2015In: Research in Social and Administrative Pharmacy, ISSN 1551-7411, E-ISSN 1934-8150, Vol. 11, no 2, E85-E99 p.Article in journal (Refereed)
    Abstract [en]

    Background

    When the Swedish pharmacy market was re-regulated in 2009, Sweden moved from one state-owned pharmacy chain to several private pharmacy companies, and four new dispensing systems emerged to replace the one system that had previously been used at all Swedish pharmacies for more than 20 years.

    Objectives

    The aim of this case study was to explore the implementation of the new information systems for dispensing at pharmacies.

    Methods

    The vendors of the four dispensing systems in Sweden were interviewed, and a questionnaire was sent to the managers of the pharmacy companies. In addition, a questionnaire was sent to 350 pharmacists who used the systems for dispensing prescriptions.

    Results

    The implementation of four new dispensing systems followed a strict time frame set by political decisions, involved actors completely new to the market, lacked clear regulation and standards for functionality and quality assurance, was complex and resulted in variations in quality. More than half of the pharmacists (58%) perceived their current dispensing system as supporting safe dispensing of medications, 26% were neutral and 15% did not perceive it to support a safe dispensing. Most pharmacists (80%) had experienced problems with their dispensing system during the previous month. The pharmacists experienced problems included reliability issues, usability issues, and missing functionality.

    Conclusion

    In this case study exploring the implementation of new information systems for dispensing prescriptions at pharmacies in Sweden, weaknesses related to reliability, functionality and usability were identified and could affect patient safety. The weaknesses of the systems seem to result from the limited time for the development and implementation, the lack of comprehensive and evidence-based requirements for dispensing systems, and the unclear distribution of quality assurance responsibilities among involved stakeholders.

  • 37.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
    Hellström, Amanda
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
    Sandvide, Åsa
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre (NKA), Sweden.
    Jackson, Graham A.
    University of the West of Scotland, UK.
    MacRae, Rhoda
    University of the West of Scotland, UK.
    Waugh, Anna
    University of the West of Scotland, UK.
    Abreu, Wilson
    Porto School of Nursing, Portugal.
    Tolson, Debbie
    University of the West of Scotland, UK.
    The extended palliative phase of dementia: an integrative literature review2017In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684Article, review/survey (Refereed)
    Abstract [en]

    This article presents an integrative literature review of the experience of dementia care associated with the extended palliative phase of dementia. The aim was to highlight how dementia is defined in the literature and describe what is known about the symptomatology and management of advanced dementia regarding the needs and preferences of the person with dementia and their family carer/s. There was no consistent definition of advanced dementia. The extended palliative phase was generally synonymous with end-of-life care. Advanced care planning is purported to enable professionals to work together with people with dementia and their families. A lack of understanding of palliative care among frontline practitioners was related to a dearth of educational opportunities in advanced dementia care. There are few robust concepts and theories that embrace living the best life possible during the later stages of dementia. These findings informed our subsequent work around the concept, ‘Dementia Palliare’.

  • 38.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    ACTION – arbete i partnerskap för ökad vård och  omsorgskvalitet: Progressrapport för VINNVÅRD2010Report (Other (popular science, discussion, etc.))
  • 39.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Anhörig och brukarrevision inom demensvård: en modell för utveckling i samverkan2012Report (Other academic)
  • 40.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre.
    Children as Next of Kin: results of research and development work and policy impact on Young Carers - focus on ‘children as next of kin’2016Conference paper (Other academic)
  • 41.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Swedish Family Care Competence Centre.
    Piloting Information and Communication Technology based services to reach out and support working carers2016Conference paper (Other academic)
  • 42.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    The role of ICT support services to promote ageing in place: The ACTION service2011In: Eurohealth, ISSN 1356-1030, Vol. 17, no 2-3, 24-26 p.Article in journal (Other academic)
    Abstract [en]

     ACTION (Assisting Carers using Telematics Interventions to meet Older

    people’s Needs) is an innovative example of an Information and Communication

    Technology (ICT) based support service that is currently running in Sweden to help

    empower older people with chronic conditions and their family carers in their daily

    lives. The service is outlined and the main evaluation findings are presented. Sirpa

    explains how ACTION has been of direct benefit in her caring situation. The main

    lessons learned over a fourteen year period of implementing ACTION in Sweden are

    highlighted, concluding with the main challenges facing researchers, policy makers

    and decision makers in the immediate future.

  • 43.
    Hanson, Elizabeth
    et al.
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Amilon, Kajsa
    Nationellt Kompetenscentrum Anhöriga, Kalmar.
    E-tjänster öppnar nya världar2009In: Äldreomsorg, ISSN 1403-7025, no 3Article in journal (Other (popular science, discussion, etc.))
  • 44.
    Hanson, Elizabeth
    et al.
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Arvidsson, Helene
    Institutionen för Vårdvetenskap, Högskolan i Borås.
    Claesson, Anette
    Institutionen för Vårdvetenskap, Högskolan i Borås.
    Keady, John
    University of Manchester and the Bolton, Salford and Trafford Mental Health NHS Trust, UK.
    Nolan, Mike
    University of Sheffield, UK.
    Working together with persons with early stage dementia and their family members to design a user-friendly technologybased support service2007In: Dementia, ISSN 1471-3012, E-ISSN 1741-2684, Vol. 6, no 3, 411-434 p.Article in journal (Refereed)
    Abstract [en]

    This article describes how researchers, practitioners and

    technicians in West Sweden worked together with older people with

    early stage dementia and their family members to develop a

    user-friendly technology-based information, education and support

    service, based on the generic ACTION participatory design model.

    Ways of working in partnership with older people with early stage

    dementia and their family members are explored, and key lessons

    learned are highlighted. The overriding message is that elders with

    early stage dementia can be actively involved throughout the entire

    research and development process. Essential prerequisites are time and

    ongoing support by skilled practitioners and family members.

    Preliminary findings reveal that older people with early stage

    dementia can learn and benefit from user-friendly technology,

    especially when used together with others in a similar situation.

  • 45.
    Hanson, Elizabeth
    et al.
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Eriksson, Ingegerd
    Borås stad.
    Borg, Anette
    Järfälla kommun.
    Kjelleryd, Hans
    Petersson, Göran
    University of Kalmar.
    Gustavsson, Tomas
    Chalmers tekniska högskola.
    Svensson, Paul
    Borås stad.
    Arvevik, Fredrik
    Borås stad.
    Fagerberg, Åke
    Varbergs kommun.
    Bolwig, Boel
    Västerås kommun.
    Sahlstedt, Sylvia
    Huddinge kommun.
    Hägglund, Pär
    Härnösands kommun.
    Jansson, Barbro
    Härnösands kommun.
    Lindström, Berner
    Göteborgs universitet.
    ACTION - working in partnership to improve healthcare and social welfare services for older people and their family carers via ICT.: [ACTION – arbete i partnerskap för ökad vård och omsorgskvalitet.]2007Report (Other academic)
  • 46.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Hedin, Ulf
    Gunnhilstam, O
    Slutrapport för projektet ACTION - "Att leva med demens" - en modell/system för utbildning och stöd med hjälp av IKT. Dnr: 2005/02382010Report (Other (popular science, discussion, etc.))
  • 47.
    Hanson, Elizabeth
    et al.
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Magnusson, Lennart
    University of Kalmar, eHealth Institute, School of Human Sciences, University of Kalmar,.
    Nolan, Janet
    Faculty of Health and Wellbeing, University of Sheffield.
    Swedish experiences of a negotiated approach to carer assessment: the Carers Outcome Agreement Tool2008In: Journal of Research in Nursing, ISSN 1744-9871, Vol. 13, no 5, 391-407 p.Article in journal (Refereed)
    Abstract [en]

    Given that the majority of frail older people living at home are cared for

    by family members, ensuring appropriate and sensitive support services for family

    carers is a major policy priority globally. Such assessment of the needs and situation

    of individual carers is a crucial first step towards ensuring that they receive flexible,

    quality support services. However, existing assessment practice is still inadequate in

    many countries. This paper describes a negotiated approach to carer assessment, the

    Carers Outcome Agreement Tool (COAT) and briefly considers its development

    with carers and practitioners in an Anglo-Swedish development project (2003

    and subsequent implementation within five municipalities in Sweden (2006

    A participatory research design was adopted in both projects building on the

    ÄldreVäst Sjuhärad model, which is a user-focused approach to research and

    development. This paper provides a short summary of the COAT development before

    presenting the qualitative findings from the Swedish implementation project

    (2006

    and telephone follow-up interviews with carers who had a first and second COAT

    assessment. The findings clearly highlight the value of COAT in enabling partnerships

    to be developed between carers and practitioners, which recognise the expertise of

    both parties. They also challenge providers to invest sufficient time and

    –2005)–2008).–2008), which emerged from focus group interviews with COAT practitioners‘ear-marked’

    resources for family care support so that COAT becomes an integral part of a 

    comprehensive long-term carer strategy, which feeds directly into local developments

    in service delivery and organisation.

  • 48.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Nolan, Mike
    University of Sheffield.
    Using the ÄldreVäst Sjuhärad model to judge the quality of user involvement work within the COAT (Carers Outcome Agreement Tool) implementation project2011In: Brukarens roll i välfärdsforskning och utvecklingsarbete / [ed] Lars Rönnmark, Borås: Högskolan i Borås , 2011, 213-235 p.Chapter in book (Other academic)
  • 49.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Sennemark, Eva
    Blended Learning Networks Supported by Information and Communication Technology:  An Intervention for Knowledge Transformation Within Family Care of Older People2011In: The gerontologist, ISSN 0016-9013, E-ISSN 1758-5341, Vol. 51, no 4, 561-570 p.Article in journal (Refereed)
    Abstract [en]

    Purpose: This article describes an innovative practice called Blended Learning Networks (BLNs) whose aim is to enable older people, their families, and care providers to exchange knowledge, learn together, and support each other in local development work so that care is improved for older people. BLNs were established in 31 municipalities, headed up by a local facilitator. They were supported by a national themed network consisting of virtual meetings between local facilitators and national facilitators at the Swedish National Family Care Competence Centre. Design and Methods: An evaluation was conducted to explore the utility of the BLNs so that any improvements to the model could be instigated. Focus group interviews were conducted with members of 9 BLNs, and self-evaluation questions were discussed in 16 BLNs. Limitations are that not all BLN members participated in the evaluation, and local facilitators conducting self-evaluations were not trained in focus group dynamics. Virtual focus groups were carried out with 26 of the 31 local facilitators and with the national facilitators. Results: Participants reported an increased understanding of caregiver issues and of each group's roles. Of particular value were the stories shared by caregivers and the potential for change locally due to the involvement of decision makers. The practice demanded considerable skills of the local facilitators. An initial education for new local facilitators was deemed necessary. Implications: BLNs is a unique practice of community communications and knowledge transfer as it creates partnerships among all key stakeholder groups that act as a catalyst for improving care for older people.

  • 50.
    Hanson, Elizabeth
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Magnusson, Lennart
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Svensson, Paul
    Arvevik, Fredrik
    Arvidsson, Helene
    Claesson, Anette
    Nolan, Mike
    University of Sheffield.
    The ACTION service: Experiences of user involvement within research and development work within care for older people2011In: Brukarens roll i välfärdsforskning och utvecklingsarbete / [ed] Lars Rönnmark, Borås: Högskolan i Borås , 2011, 183-199 p.Chapter in book (Other academic)
12 1 - 50 of 94
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