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  • 51.
    Dalteg, Tomas
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences. Jönköping University.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Fridlund, Bengt
    Jönköping University.
    Malm, Dan
    Jönköping University.
    Cardiac Disease and its Consequences on the Partner Relationship: A Systematic Review2011In: European Journal of Cardiovascular Nursing, ISSN 1474-5151, E-ISSN 1873-1953, Vol. 10, no 3, p. 140-149Article in journal (Refereed)
    Abstract [en]

    INTRODUCTION: Cardiac disease is a chronic illness that has extensive impact on patients and their partners. No previous review has been made on how the partner relationship is affected following cardiac disease. The review limited itself to the main cardiac disease of myocardial ischemia, arrhythmia and heart failure. AIM: The aim of this review was to identify how the partner relationship is affected following cardiac disease after hospital discharge.

    METHOD: CINAHL, PubMed and PsycINFO were searched from 1999 to 2009. Quality assessment of included articles was made using the Joanna Briggs Institute Reviewers' Manual. A total of 20 articles were included.

    RESULTS: Five themes identified how the partner relationship is affected following cardiac disease, namely: overprotection, communication deficiency, sexual concerns, changes in domestic roles, and adjustment to illness. Patients reported feeling overprotected by their spouses which occasionally served as a fertile ground for arguments or conflicts. Most couples experienced some implications concerning their sexual life following cardiac disease, though in various degrees. Both patients and partners seemed to experience communication deficiency concerning emotions within their relationship following the event. Most couples experienced a shift in roles and responsibilities within their partner relationship. Even though most couples experienced great distress following being afflicted with cardiac disease they reported that the disease had brought them closer together.

    CONCLUSION: The review found that though couples found the cardiac event distressful they conformed and adjusted their relationship to the new situation.

  • 52.
    Dalteg, Tomas
    et al.
    Jönköping University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Jönköping University.
    Fridlund, Bengt
    Jönköping University.
    Malm, Dan
    Jönköping University.
    Managing uncertainty in couples living with atrial fibrillation2014In: Journal of Cardiovascular Nursing, ISSN 0889-4655, E-ISSN 1550-5049, Vol. 29, no 3, p. E1-E10Article in journal (Refereed)
    Abstract [en]

    Background: Living with a chronic disease such as atrial fibrillation (AF) not only affects the patient but also has implications for the partner. There is a lack of research on couples living with AF and, in particular, how they experience and deal with the disease.

    Objective: The aim of this study was to explore couples’ main concerns when one of the spouses is afflicted with AF and how they continually handle it within their partner relationship.

    Methods: Classical grounded theory was used throughout the study for data collection and analysis. Interviews were conducted with 12 couples (patient and partner together). There were follow-up interviews with 2 patients and 2 partners separately.

    Results: Couples living with AF experience uncertainty as a common main concern. This uncertainty was fundamentally rooted in not knowing the cause of AF and apprehension about AF episodes. Couples managed this uncertainty by either explicitly sharing concerns related to AF or through implicitly sharing their concerns. Explicit sharing incorporated strategies of mutual collaboration and finding resemblance, whereas implicit sharing incorporated strategies of keeping distance and tacit understanding. Time since diagnosis and time being symptom-free were factors influencing afflicted couples’ shifting between implicit and explicit sharing.

    Conclusions: Atrial fibrillation affects the partner relationship by bringing uncertainty into couples’ daily lives. Even though this study shares similarities with previous studies on couples living with chronic disease, it contributes to the existing knowledge by presenting a set of strategies used by couples in managing uncertainty when living with AF.

  • 53.
    Dalteg, Tomas
    et al.
    Jönköping University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Malm, Dan
    Jönköping University;County Hospital Ryhov.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linköping University.
    Associations of Emotional Distress and Perceived Health in Persons With Atrial Fibrillation and Their Partners Using the Actor–Partner Interdependence Model2016In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 22, no 3, p. 368-391Article in journal (Refereed)
    Abstract [en]

    Individual behavior affects and is affected by other people. The aim of this study was to examine if emotional distress in patients with atrial fibrillation (AF) and their spouses was associated with their own and their partner’s perceived health. Participants included 91 dyads of patients and their spouses. Emotional distress was measured using the Hospital Anxiety and Depression Scale and perceived health was measured with the Short Form 36 Health Survey. The Actor–Partner Interdependence Model was used for dyad-level analyses of associations, using structural equation modeling. Higher levels of anxiety and depression were associated with lower levels of perceived health in patients and spouses. Higher levels of depression in patients were associated with lower levels of vitality in spouses and vice versa. As AF patients and their spouses influence each other, health-care interventions should consider the dyad to address dyadic dynamics. This may benefit the health of the individual patient and of the couple.

  • 54.
    Dalteg, Tomas
    et al.
    Jönköping University.
    Sandberg, Jonas
    Jönköping University.
    Malm, Dan
    Jönköping University;County Hospital Ryhov.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    The heart is a representation of life: an exploration of illness beliefs in couples living with atrial fibrillation2017In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 26, no 21-22, p. 3699-3709Article in journal (Refereed)
    Abstract [en]

    Aims and objectives. To explore illness beliefs in couples where one spouse has atrial fibrillation.& para;& para;Background. Beliefs are the lenses through which we view the world, guiding our behaviour and constructing our lives. Couples evolve an ecology of beliefs from their interaction whereby their actions and choices arise from their beliefs. Atrial fibrillation is a common cardiac arrhythmia that has implications for both patients and partners. A couple's illness beliefs play an important role in convalescence and illness management, and no previous studies have explored illness beliefs in couples living with atrial fibrillation.& para;& para;Design. A qualitative hermeneutic design.& para;& para;Methods. Data collection constituted in-depth interviews with nine couples (patient and partner together). Hermeneutic philosophy as described by Gadamer was used to interpret and to understand illness beliefs in couples living with atrial fibrillation.& para;& para;Results. The findings revealed both core illness beliefs and secondary illness beliefs. From the core illness belief 'The heart is a representation of life', two secondary illness beliefs were derived: atrial fibrillation is a threat to life and atrial fibrillation can and must be explained. From the core illness belief 'Change is an integral part of life', two secondary illness beliefs were derived: atrial fibrillation is a disruption in our lives and atrial fibrillation will not interfere with our lives. Finally, from the core illness belief 'Adaptation is fundamental in life', two secondary illness beliefs were derived: atrial fibrillation entails adjustment in daily life and atrial fibrillation entails confidence in and adherence to professional care.& para;& para;Conclusion. Couples' interaction has developed mutual illness beliefs regarding atrial fibrillation that guide them in their daily lives and influence their decisions. The adoption of a family-centred perspective in cardiovascular care settings is warranted.

  • 55.
    Edback, Maria Palmetun
    et al.
    University Hospital Örebro ; Örebro University ; Örebro County Council.
    Lindberg, Magnus
    University Hospital Örebro ; Örebro University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Örebro University.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linköping University ; Ersta Sköndal University College ; Ersta Hospital.
    Social support: an important factor for quality of life in women with hirsutism2014In: Health and Quality of Life Outcomes, ISSN 1477-7525, E-ISSN 1477-7525, Vol. 12, article id 183Article in journal (Refereed)
    Abstract [en]

    Background: Women with hirsutism have reported imparied health and health-related quality of life (HRQoL). Social support is a factor that might increase HRQoL in chronic diseases, but little is known about this association among women with hirsutism. Aim: The aim of the study was to describe social support and explore its association with HRQoL among women with hirsutism. A further aim was to compare HRQoL in women with hirsutism with a Swedish normal population. Methods: A questionnaire including socio-demographic questions, Short-Form Health Survey (SF-36), the Multidimensional Scale of Perceived Social Support (MSPSS), and a self-estimation of hairiness using the Ferriman-Gallway scale (F-G scale) was answered by 127 women with hirsutism. Results: Multiple regression analyses showed significant associations between social support and all health dimensions in the SF-36, also after the model was adjusted for age, hairiness and body mass index. Compared to the normal Swedish population, women with hirsutism reported significantly lower HRQoL in all dimensions of the SF-36 (p < 0.01). Conclusions: There is a significant positive association between social support and HRQoL, demonstrating its importance for the ability to adapt to problems associated with hirsutism. As women with hirsutism reported poorer HRQoL compared to the normal population, social support may be a factor to consider in clinical practice.

  • 56.
    Ekback, Maria
    et al.
    University Hospital Örebro ; Örebro University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Lindberg, Magnus
    University Hospital Örebro ; Örebro University.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linköping University ; Ersta Sköndal University College ; Ersta hospital.
    The Swedish version of the multidimensional scale of perceived social support (MSPSS): a psychometric evaluation study in women with hirsutism and nursing students2013In: Health and Quality of Life Outcomes, ISSN 1477-7525, E-ISSN 1477-7525, Vol. 11, article id 168Article in journal (Refereed)
    Abstract [en]

    Background: The Multidimensional Scale of Perceived Social Support (MSPSS) is a short instrument, developed to assess perceived social support. The original English version has been widely used. The original scale has demonstrated satisfactory psychometric properties in different settings, but no validated Swedish version has been available. The aim was therefore to translate, adapt and psychometrically evaluate the Multidimensional Scale of Perceived Social Support for use in a Swedish context. Method: In total 281 participants accepted to join the study, a main sample of 127 women with hirsutism and a reference sample of 154 nursing students. The MSPSS was translated and culturally adapted according to the rigorous official process approved by WHO. The psychometric evaluation included item analysis, evaluation of factor structure, known-group validity, internal consistency and reproducibility. Results: The original three-factor structure was reproduced in the main sample of women with hirsutism. An equivalent factor structure was demonstrated in a cross-validation, based on the reference sample of nursing students. Known-group validity was supported and internal consistency was good for all scales (alpha = 0.91-0.95). The test-retest showed acceptable to very good reproducibility for the items (kappa(w) = 0.58-0.85) and the scales (ICC = 0.89-0.92; CCC = 0.89-0.92). Conclusion: The Swedish version of the MSPSS is a multidimensional scale with sound psychometric properties in the present study sample. The simple and short format makes it a useful tool for measuring perceived social support.

  • 57.
    Ekbäck, Maria
    et al.
    Örebro universitet.
    Wijma, Klas
    Linköpings universitet.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    It is always on my mind: Women’s experiences of their body when living with hirsutism2009In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 30, no 5, p. 358-372Article in journal (Refereed)
    Abstract [en]

    Many women suffer from excessive hair growth, often in combination with polycystic ovarian syndrome (PCOS). It is unclear how hirsutism influences such women's experiences of their bodies. Our aim is to describe and interpret women's experiences of their bodies when living with hirsutism. Interviews were conducted with 10 women with hirsutism. We used a qualitative latent content analysis. Four closely intertwined themes were disclosed: the body was experienced as a yoke, a freak, a disgrace, and as a prison. Hirsutism deeply affects women's experiences of their bodies in a negative way.

  • 58. Henriksson, A.
    et al.
    Andershed, B.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Adaptation and psychometric evaluation of the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in a sample of Swedish family members of patients with life-threatening illness2012In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 26, no 7, p. 930-938Article in journal (Refereed)
    Abstract [en]

    Background: Family members often take on many caring responsibilities, with complex issues and challenges to consider. Feelings of preparedness, competence and reward are identified as concepts that may protect caregiver wellbeing and decrease negative outcomes related to caregiving. Aim: This study aimed to translate, adapt and psychometrically evaluate the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale in Swedish family members of patients with life threatening illness. Design: Correlational. Setting/participants: The study took place in four settings including advanced palliative care. The scales were tested in a sample of 125 family members of persons with life-threatening illness. All three scales were tested in relation to distribution of item and scale scores, missing data patterns, dimensionality, convergent validity and reliability. Results: The results in this study indicate that the Swedish versions of The Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale are valid, reliable and user-friendly scales. Confirmatory factor analysis showed that the scales were unidimensional and all demonstrated Cronbach's alpha values of ≥0.9. Conclusions: As a result of this study it is anticipated that the Preparedness for Caregiving Scale, Caregiver Competence Scale and Rewards of Caregiving Scale could provide a basis for collaborative research between different countries and make international studies more comparable and generalizable despite differences in language and culture. © 2011 The Author(s).

  • 59.
    Henriksson, Anette
    et al.
    Ersta Sköndal Högskola.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Ternestedt, Britt-Marie
    Andershed, Birgitta
    Högskolan i Gjörvik.
    Meeting needs of family members of persons with life-threatening illness: A support group program during ongoing palliative care2011In: Palliative & Supportive Care, ISSN 1478-9515, E-ISSN 1478-9523, Vol. 9, no 3, p. 263-271Article in journal (Refereed)
    Abstract [en]

    Objective: The aim of the study was to describe family members' experiences of content, structure, and approach of a potential intervention including a support group program for family members of persons with life-threatening illness.  Method: The study was a pilot project in a developmental phase in which a potential intervention, a support group program, was investigated. The design of the study was qualitative descriptive. Twenty-nine family members were interviewed by telephone after taking part in the program. The interviews were analyzed using qualitative content analysis.  Results: The results indicate that the support group program could work as an acceptable and useful intervention for family members. The program was experienced to cover topics of immediate interest reflecting life close to severely ill persons. The structure of the program was found to be inviting, offering an opportunity to establish relationships with other participants and the caring team in a warm atmosphere.  Significance of results: The study indicates the importance of health professionals inviting and interacting with family members during ongoing palliative care. The results could inspire nursing staff to initiate, develop, and deliver similar interventions

  • 60. Henriksson, Anette
    et al.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Ternestedt, Britt-Marie
    Andershed, Birgitta
    Effects of a support group programme for patients with life-threatening illness during ongoing palliative care2013In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 27, no 3, p. 257-264Article in journal (Refereed)
    Abstract [en]

    Background: Health care systems in many countries are moving towards outpatient care in which family members are central in providing care for patients with life-threatening illness. Several studies show that family members report a lack of preparation, knowledge and the ability to handle the caregiver role, and a need for information and psychosocial support. Aim: The aim was to investigate the effects of a support group programme for family members of patients with life-threatening illness during ongoing palliative care. Design: A prospective quasi-experimental design, including an intervention group and a comparison group, was used. Settings/participants: A support group programme was offered to family members during ongoing palliative care at three intervention settings: two specialist palliative care units and one haematology unit. A fourth setting, a specialist palliative care unit, was used for comparisons. Results: Family members taking part in the support group programme significantly increased their perceptions of preparedness for caregiving, competence for caregiving, and rewards of caregiving. Hope, anxiety, depression symptoms and health showed no significant changes. Conclusions: The intervention, including a support group programme delivered to family members of patients with life-threatening illness during ongoing palliative care, proved to be effective in certain domains of caregiving. No negative outcomes were detected. The results indicate that this intervention could be implemented and delivered to family members during ongoing palliative care.

  • 61.
    Hommerberg, Charlotte
    et al.
    Linnaeus University, Faculty of Arts and Humanities, Department of Languages.
    Gustafsson, Anna W.
    Lund University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Metaforer i palliativ cancervård2016In: Palliativ vård: tidskriften för palliativ vård i Sverige, ISSN 2001-841X, no 4, p. 36-37Article in journal (Other (popular science, discussion, etc.))
    Abstract [sv]

    Metaforer är våra språkliga ”redskap” när vi talar om okända eller känsliga ämnen. Att reflektera över hur dessa används kan ge vårdpersonal ökad förståelse för hur patienter och närstående ser på och hanterar sin situation.

  • 62.
    Hommerberg, Charlotte
    et al.
    Linnaeus University, Faculty of Arts and Humanities, Department of Languages.
    Gustafsson, Anna W.
    Lund University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Semino, Elena
    Lancaster University.
    Koller, Veronika
    Lancaster University.
    Rendering the ungraspable graspable: the use of metaphors in Swedish palliative cancer care2016In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 30, no 6, p. NP364-NP364Article in journal (Other academic)
    Abstract [en]

    Good communication is of utmost importance in all forms of cancer care and especially so in the palliative context. To render the ungraspable graspable, metaphors are frequently used drawing on their capacity to capture the intangible in terms of more familiar experiences. For instance, to die from cancer can be described as ’coming to the end of a life journey’ or ’losing a battle’. Metaphors are largely language and culture specific. Today’s increasingly multicultural societies require particular awareness in order to achieve dignified, individualized palliative cancer care. This project aims to strengthen the scientific foundation for the use of metaphors in Swedish palliative cancer care. A secondary aim is to compare the use of metaphors in Sweden and the UK in order to reveal differences and similarities. Textual data are collected from

    1. a) internet-based blogs, where patients write about their illness-related emotions and experiences while being in palliative care, and from

    2. b) interviews with patients, family and health care professionals, where the focus is to investigate what it means to live a dignified life in palliative care.

    The two sets of data are analyzed using both qualitative and quantitative linguistic methods. First, the Pragglejaz procedure, a well-established linguistic method for metaphor identification, is used in order to manually identify metaphorical expressions in the material, develop analytic categories adapted to the Swedish language data and ensure inter-rater reliability. Second, the material is approached by means of corpus linguistic methods. The combination of research methods is inspired by the UK-based MELC project. The data are currently being processed and the first results will be presented at the conference. The project is funded by The Kamprad Family Foundation, Sweden.

  • 63.
    Hörberg, Ulrica
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Erlingsson, Christen
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Syrén, Susanne
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Engaging with Families Is a Challenge: Beliefs among Healthcare Professionals in Forensic Psychiatric Care2015In: Nursing Research and Practice, ISSN 2090-1429, E-ISSN 2090-1437, p. 1-10, article id 843717Article in journal (Refereed)
    Abstract [en]

    Being healthcare professionals in the complex field of forensic psychiatry care (FPC) seems particularly challenging. Historically, families have almost been invisible in FPC. The aim of this study was to uncover beliefs among healthcare professionals concerning families of patients admitted for FPC. Using a hermeneutical approach inspired by Gadamer’s philosophy, group interviews with healthcare professionals in four Swedish forensic psychiatric clinics were analyzed. Analysis resulted in seven key beliefs. There were three beliefs about families: family belongingness is a resource for the patient; most families are broken and not possible to trust; and most families get in the way of the patient’s care. Four beliefs concerned encounters with families: it is important to achieve a balance and control over the family; it is essential to set aside one’s own values and morals; family-oriented work is an impossible mission; and family oriented work requires welcoming the families. Despite ethical dilemmas of working with families in FPC, healthcare professionals showed a willingness and desire to work in a more family-oriented manner. More knowledge, understanding, and caring tools are needed in order to meet the needs of the family as well as support the family’s resources.

  • 64.
    Johansson, Pauline
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Kan någon annan tala om hur jag mår?: En studie med patienter, familjemedlemmar och personal om skattning och hantering av sjukdomsrelaterade symtom vid avancerad cancer.2007Report (Other academic)
    Abstract [sv]

    Människor som har en avancerad cancer drabbas ofta av multipla både fysiska, psykiska, sociala och existentiella symtom. När de sjuka inte längre orkar eller kan förmedla sina symtom är de beroende av andra personers förmåga att tolka dem istället. Samstämmigheten mellan hur patienter upplevelser sina symtom och hur familjemedlemmar och vårdpersonal uppfattar att patienterna mår är avgörande för att patienterna ska kunna hantera sin sjukdom på bästa sätt. Flera studier visar att det finns skillnader mellan hur patienter uppfattar sina symtom med hur andra uppfattar att patienten upplever dem. Tidigare studier visar en tendens till att familjemedlemmar överskattar patientens symtom medan vårdpersonal underskattar, men det finna även studier med motsägande resultat.

    Syftet med denna studie är att beskriva skattningar av cancerrelaterade symtom och hantering av sin situation hos patienter med avancerad cancer. Studien syftar vidare till att belysa patienters, familjemedlemmars och primäransvarig personals (läkare och/eller sjuksköterska) skattningar av patienters symtom.

    Det var sju patienter, sju familjemedlemmar och tolv personal (sjuksköterskor/ läkare) som deltog i studien. Totalt genomfördes 45 intervjuer varav 15 intervjuer med respektive patienter, familjemedlemmar och personal, och totalt genomfördes 75 skattningar med the Edmonton Symptoms Assessment Scale (ESAS), 25 med respektive patienter, familjemedlemmar och personal.

    Första analysen av intervjuerna mynnade ut i en kärnberättelse om hur det kan se ut över tid för en patient, familjemedlem och primäransvarig personal, dvs. en triad. Därefter delades texterna in i kategorier utifrån skattnings-skalans symtom. Tre huvudkategorier, fysisk domän och psykisk, existentiell domän, hantering av sin sjukdom och 13 subkategorier bildades. En korrelationsanalys med Pearsons korrelations koefficient och en signifikansnivå på p<0.05 användes för att hantera data från ESAS.

    Resultatet visade att det råder en bättre samstämmighet inom den fysiska domänen än inom den psykisk existentiella domänen. Mellan patienterna och familjemedlemmarna ses svaga korrelationer i skattningar av andfåddhet, oro/ångest och välbefinnande, och mellan patienterna och personalen råder lägst samstämmighet för smärta och oro/ångest. Både familjemedlemmarna och personalen tenderar att överskatta patientens symtom. För att hantera situationen var familjemedlemmarna det största stödet, men även vårdpersonal och tron på Gud angavs som stöd i sjukdomssituationen.

    Jämförs skattningar mellan patienter och familjemedlemmar och mellan patienter och personal, kan det konstateras att samstämmigheten trots allt var ganska god. Detta ger stöd för att främst familjemedlemmar, men även vårdpersonal kan vara ett gott alternativ för att agera som patientens proxy.

  • 65.
    Johansson, Pauline
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Sjuksköterskors inställning till familjers betydelse i omvårdnaden2006Report (Other academic)
    Abstract [sv]

    Sjuksköterskor kommer ofta i kontakt med familjemedlemmar i sitt arbete och familjer intar en allt större roll i omvårdnaden. Det är viktigt i sjuksköterskans omvårdnadsarbete att se den sjuke som en del av sin familj, eftersom alla i familjen påverkas när någon av dess medlemmar blir sjuk. Till dags datum är kunskapen om svenska sjuksköterskors inställning i denna fråga begränsad. Denna studie är därför baserad på ett generellt urval av landets sjuksköterskor.

    Syftet med denna studie var att beskriva sjuksköterskors inställningar till familjers betydelse i omvårdnaden och att relatera dessa till personliga och organisatoriska bakgrundsdata.

    Enkäten, Familjers betydelse i omvårdnaden (FAMBO), som utvecklats för studien, består av 26 påståenden och avser att mäta sjuksköterskors inställning till familjers betydelse i omvårdnaden utifrån deras professionella perspektiv. Enkätens fyra delskalor handlar om Familjen som en resurs i omvårdnaden (Fam-RO), Familjen som en samtalspartner (Fam-SP), Familjen som en börda (Fam-B) och Familjen som sin egen resurs (Fam-ER). Enkäten skickades ut till ett slumpmässigt urval av 1000 sjuksköterskor från Vårdförbundets medlemsregister. Sjuksköterskorna skulle vara klinisk verksamma inom den direkta patientvården. Urval och utskick administrerades helt av Vårdförbundets personal, deltagarna blev därigenom anonyma för forskarna. Responsen var 65 % (n=634) och de som svarade kan anses som representativa för landets sjuksköterskor eftersom flera bakgrundsvariabler var jämförbara med medlemsregistrets data.

    Data har behandlats som ordinaldata och analyserats med Mann-Whitney U-test, Kruskal Wallis test samt med Post hoc test (Mann-Whitney U-test med reducerat p-värde enligt Bonferroni). För att se vilka variabler som predicerade för lägst skattning genomfördes en multipel logistisk regressionsanalys.

    Resultatet visade att sjuksköterskorna var mycket positivt inställda till familjers betydelse i omvårdnaden, men det fanns skillnader i den totala skattningen gällande all bakgrundsdata, förutom kön. De som var yngre (≤30 år) skattade lägre än de som var äldre och likvärdiga resultat visade sig för hur länge sedan det var som sjuksköterskorna tagit sin examen. De som varit legitimerade kortast tid (≤5 år) skattade lägre än sina mer erfarna kollegor. Manliga sjuksköterskor skattade lägre på vissa skalor i förhållande till sina kvinnliga kollegor, samtidigt som de som inte hade någon erarenhet av att vara familjemdlem till någon som varit svårt sjuk skattade lägre i jämförelse med dem som hade denna erfarenhet. Bland de organisatoriska bakgrundsdata som efterfrågades visade det sig bland annat att sjuksköterskorna som arbetade med barn skattade högst på samtliga skalor medan de som arbetade inom akutsjukvården skatta lägst (förutom på Fam-RO). De som hade ett gemensamt synsätt angående familjer på sin arbetsplats skattade högre än de som inte hade detta synsätt. De variabler som predicerade för en lägre inställning till familjers betydelse i omvårdnaden var att: vara man eller att ha en legitimationstid ≤5 år eller om det inte fanns ett gemensamt synsätt angående omvårdnad av familjer på arbetsplatsen.

    Skillnaderna som påvisades i förhållande till flera variabler, till exempel kön och ålder, finns mycket sparsamt beskrivet i tidigare forskning och är intressanta att studera vidare. Samtidigt som studiens resultat påvisar att sjuksköterskornas inställning till familjers betydelse i omvårdnaden är mycket positiv så vet vi inget om hur de verkligen agerar i möten med familjer.

  • 66.
    Johansson, Pauline
    et al.
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Familjers betydelse i omvårdnad (Konferens abstrakt)2005In: Vårdstämman 2005, Stockholm, Sverige, 2005Conference paper (Other academic)
  • 67.
    Möllerberg, Marie-Louise
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Swahnberg, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Familial interaction patterns during the palliative phase of a family member living with cancer2017In: European Journal of Cancer, ISSN 0959-8049, E-ISSN 1879-0852, Vol. 72, p. S162-S162Article in journal (Other academic)
  • 68.
    Möllerberg, Marie-Louise
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Swahnberg, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Familial Interaction Patterns During the Palliative Phase of a Family Member Living With Cancer2017In: Journal of Hospice and Palliative Nursing, ISSN 1522-2179, E-ISSN 1539-0705, Vol. 19, no 1, p. 67-74Article in journal (Refereed)
    Abstract [en]

    This study aimed to illuminate aspects of familial interactions when 1 member is in the palliative phase of his/her cancer course. An individual cancer diagnosis influences the entire family, often requiring daily life changes for all members. Current research has examined individual family member perspectives; family system nursing studies are warranted. Narrative family interviews were conducted on 13 families living with cancer. The interviews were transcribed and analyzed according to a hermeneutic method. Analyses revealed the following: Family interaction patterns were adjusted in response to changes in family life, which encompassed 3 different, but interrelated, patterns: (1) power dynamics in the family, (2) the "secret game" in the family, and (3) multifaceted closeness and distance in the family. It is crucial to adopt a family perspective during palliative care to meet each unique family's needs. Health care facilitators should be aware of the complex dynamics and challenges that these families encounter. This will help obtain a greater understanding of factors underlying effective palliative care.

  • 69.
    Möllerberg, Marie-Louise
    et al.
    Skåne University Hospital, Sweden.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Kalmar County Council, Sweden.
    Swahnberg, Katarina
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Sandgren, Anna
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Family sense of coherence and its associations with hope, anxiety and symptoms of depression in persons with cancer in palliative phase and their family members: A cross-sectional study2019In: Palliative Medicine: A Multiprofessional Journal, ISSN 0269-2163, E-ISSN 1477-030X, Vol. 33, no 10, p. 1310-1318Article in journal (Refereed)
    Abstract [en]

    Background: There is evidence indicating that family sense of coherence predicts quality of family life and promotes family well-being. In families living with the palliative phase of cancer, low hope, anxiety and symptoms of depression are common in both persons with cancer and their family members. Aim: To determine whether family sense of coherence was associated with hope, anxiety and symptoms of depression, respectively, in persons with cancer in the palliative phase and their family members. Design: An observational, cross-sectional, multicentre study was conducted. Nested linear regression analyses were performed in two blocks to determine whether family sense of coherence was associated with hope, anxiety and symptoms of depression. Setting/participants: Persons with cancer (n = 179) and their family members (n = 165) were recruited from two oncology clinics and two palliative centres in three regions in Sweden. Results: The main findings showed that family sense of coherence was significantly and independently associated with hope, anxiety and symptoms of depression. Stronger family sense of coherence was associated with higher hope and lower anxiety and symptoms of depression levels in both persons with cancer and their family members. Conclusion: Health care providers should strive to identify families with weak family sense of coherence, because of its associations with hope, anxiety and symptoms of depression, in order to offer them professional support and thereby achieve increased well-being during the palliative phase of cancer. Future studies should expand our knowledge of family sense of coherence and how to identify families at risk of lower levels of well-being.

  • 70.
    Ohlen, Joakim
    et al.
    Ersta Sköndal University College ; Ersta Hospital ; University of Gothenburg.
    Ekman, Inger
    University of Gothenburg.
    Zingmark, Karin
    Norrbotten County Council ; Luleå University of Technology.
    Bolmsjö, Ingrid
    Malmö University.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Conceptual development of "at-homeness'' despite illness and disease: A review2014In: International Journal of Qualitative Studies on Health and Well-being, ISSN 1748-2623, E-ISSN 1748-2631, Vol. 9, article id 23677Article, review/survey (Refereed)
    Abstract [en]

    Only one empirical study, the one by Zingmark, Norberg and Sandman published in 1995, explicitly focuses on at-homeness, the feeling of being metaphorically at-home, as a particular aspect of wellness. However, other studies reveal aspects of at-homeness, but if or how such aspects of at-homeness are related to each other is unclear. For this reason, the aim was to review Scandinavian nursing research related to at-homeness in the context of wellness-illness in severe and long-term conditions in order to take a step towards conceptual clarification of "at-homeness.'' The review included interpretive studies related to severe and long-term illness conducted in Sweden: 10 original articles and 5 doctoral theses. "At-homeness'' was found to be a contextually related meaning of wellness despite illness and disease embedded in the continuum of being metaphorically at-home and metaphorically homeless. This was characterized by three interrelated aspects and four processes: being safe through expanding-limiting experiences of illness and time, being connected through reunifying-detaching ways of relating, and being centred through recognition-non-recognition of oneself in the experience and others giving-withdrawing a place for oneself. This conceptualization is to be regarded as a step in conceptual clarification. Further empirical investigation and theoretical development of "at-homeness'' are needed. The conceptualization will be a step of plausible significance for the evaluation of interventions aimed at enhancing wellness for people with severe long-term illness, such as the frail elderly, and people with chronic illness or palliative care needs.

  • 71.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Women's experiences of pelvic examination: an interview study2002In: Journal of psychosomatic obstetrics and gynaecology, Vol. 23, no 1, p. 17-25Article in journal (Refereed)
  • 72.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Den första gynekologiska undersökningen2004In: Forskningskonferens, reproduktiv och perinatal omvårdnad, Svenska  Barnmorskeförbundet, Uppsala / [ed] Svenska Barnmorskeförbundet,, Uppsala Universitet, 2004Conference paper (Refereed)
  • 73.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Därför  väljer kvinnor att avstå gynekologisk cellprovskontroll2007In: Reproduktiv och perinatal omvårdnad, SvenskabBarnmorskeförbundet, Stockholm / [ed] Svenska Barnmorskeförbundet, Stockholm, 2007Conference paper (Refereed)
  • 74.
    Oscarsson, Marie
    et al.
    Linköpings University, Genus and Medicin.
    Benzein, Eva
    Linköpings University, Genus and Medicin.
    Wijma, Barbro
    Linköpings University, Genus and Medicin.
    Helathy women or risk patients-non-attendees in a cervical cancer screening program2007Doctoral thesis, monograph (Other academic)
  • 75.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Reasons for non-attendance at cervical screening as reported by non.attendees in Sweden2008In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, Vol. 29, no 1, p. 23-31Article in journal (Refereed)
  • 76.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Carlsson, Per
    Promotion of cervical screening among non-attendees - A partial cost-effectiveness analysis2007In: European Journal of Cancer Prevention, ISSN 0959-8278, E-ISSN 1473-5709, Vol. 16, no 6, p. 559-63Article in journal (Refereed)
  • 77.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Hälsouniversitetet, Linköping.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    "I do not needto... I do not want to... I do not give it priority...": why women choose not to attend cervical cancer screening2008In: Health Expectations, ISSN 1369-6513, E-ISSN 1369-7625, Vol. 11, no 1, p. 26-34Article in journal (Refereed)
    Abstract [en]

    Objective  To describe and interpret why women with no cervical smear taken during the previous 5 years choose not to attend a cervical cancer screening (CCS) programme.

    Background  CCS programme is a service for early detection of cervical cancer. Today, some women choose not to attend the programme.

    Design  Data were collected by tape-recorded interviews and analysed by qualitative inductive content analysis.

    Setting and participants  Purposive sample of 14 women in southeast Sweden, who had chosen not to attend CCS during the previous 5 years.

    Findings  The following themes were revealed: I do not need to…, I do not want to… and I do not give it priority…. The women had a positive attitude to CCS but as long as they felt healthy, they chose not to attend. A negative body image, low self-esteem, feelings of discomfort when confronted with the gynaecological examination and fear of the results also influenced their non-attendance. The women prioritized more important things in life and reported various degrees of lack of trust in health-care.

    Conclusion  Women’s choice not to attend CCS were complex and influenced by present and earlier intra- and inter-personal circumstances. They had a positive attitude to CCS, but other things in life were more important. Health-care professionals have to facilitate a co-operative discussion with the women in order to contribute to a mutual understanding for the perspectives of the women and the professionals.

  • 78.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Individuellt utformade åtgärder ökar deltagandet i gynekologisk cellprovskontroll2007In: Nordisk Jordemor Kongress, International confederation of midwives, Åbo Finland / [ed] International confederation of midwives, Åbo, Finland, 2007Conference paper (Refereed)
  • 79.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Non-attendance in a cervical cancer screening program - What happens if women’s requirements are met2008In: Health Care for Women International, ISSN 0739-9332, E-ISSN 1096-4665, Vol. 29, no 2, p. 183-197Article in journal (Refereed)
  • 80.
    Oscarsson, Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Wijma, Barbro
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    The first pelvic examination – a transition into womanhood2007In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, Vol. 28, p. 7-12Article in journal (Refereed)
  • 81.
    Palmetun Ekbäck, Maria
    et al.
    Örebro universitet.
    Engfeldt, Peter
    Örebro Universitet.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    We feel rejected - experiences of women with hirsutism consulting physicians.2011In: Journal of Psychosomatic Obstetrics and Gynaecology, ISSN 0167-482X, E-ISSN 1743-8942, Vol. 32, no 3, p. 157-159Article in journal (Refereed)
    Abstract [en]

    The aim of the study was to describe how women with hirsutism experience their relationship with health care. Data were collected by tape-recorded individual interviews, which were analyzed by means of qualitative content analysis. The results showed that the relationship with health care, from the perspective of patients with hirsutism, is suboptimal.

  • 82. Palmetun Ekbäck, Maria
    et al.
    Lindberg, M.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linköpings universitet / Ersta Sköndals högskola.
    Health-Related Quality of Life, Depression and Anxiety Correlate with the Degree of Hirsutism2013In: Dermatology, ISSN 1018-8665, E-ISSN 1421-9832, Vol. 227, no 3, p. 278-284Article in journal (Refereed)
    Abstract [en]

    Background: Hirsutism has a negative impact on women's quality of life. The relation between quality of life, anxiety, depression and the level of hairiness has not been described. Aims: To investigate the correlations between the levels of hairiness, quality of life, anxiety and depression. Methods: 200 patients from Malmo, Orebro and Uppsala, who had been in contact with the clinics for problems with excessive hair growth, were invited to answer a self-administered questionnaire including sociodemographic questions, EQ-5D index score, Dermatology Life Quality Index (DLOI), Hospital Anxiety and Depression Scale (HADS) and Ferriman-Gallwey scale (F-G); of these, 127 women participated in the study. Results: The mean values were: EQ-5D index 0.73 (SD = 0.27), EQ visual analogue scale 61.0 (SD = 22.6), HADS-anxiety 9.5 +/- 5.3 and HADS-depression 6.5 +/- 4.6. The mean DLQI was 11.8 +/- 8.4, indicating a very large effect on patients' lives. All were significantly correlated with the amount of hairiness. Conclusions: Higher levels of hair growth were significantly correlated with a lower level of quality of life and symptoms of both anxiety and depression. (C) 2013 S. Karger AG, Basel

  • 83.
    Persson, Carina
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Family health conversations: how do they support health?2014In: Nursing Research and Practice, ISSN 2090-1429, E-ISSN 2090-1437, p. Article ID: 547160-Article in journal (Refereed)
    Abstract [en]

    Research shows that living with illness can be a distressing experience for the family and may result in suffering and reduced health. To meet families’ needs, family systems intervention models are developed and employed in clinical contexts. For successful refinement and implementation it is important to understand how these models work. The aim of this study was therefore to describe the dialogue process and possible working mechanisms of one systems nursing intervention model, the Family Health Conversation model. A descriptive evaluation design was applied and 15 transcribed conversations with five families were analyzed within a hermeneutic tradition. Two types of interrelated dialogue events were identified: narrating and exploring. There was a flow between these events, a movement that was generated by the interaction between the participants. Our theoretically grounded interpretation showed that narrating, listening, and reconsidering in interaction may be understood as supporting family health by offering the families the opportunity to constitute self-identity and identity within the family, increasing the families’ understanding of multiple ways of being and acting, to see new possibilities and to develop meaning and hope. Results from this study may hopefully contribute to the successful implementation of family systems interventions in education and clinical praxis.

  • 84.
    Persson, Carina
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Saveman, Britt-Inger
    Umeå University, Sweden.
    Syrén, Susanne
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Forskningsrön kring Hälsostödjande familjesamtal2017In: Att möta familjer inom vård och omsorg / [ed] E. Benzein, M. Hagberg, B-I. Saveman, Lund: Studentlitteratur AB, 2017, 2, p. 87-106Chapter in book (Other academic)
  • 85.
    Persson, Carina
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linköping University.
    Assessing family resources: validation of the Swedish version of the Family Hardiness Index2016In: Scandinavian Journal of Caring Sciences, ISSN 0283-9318, E-ISSN 1471-6712, Vol. 30, no 4, p. 845-855Article in journal (Refereed)
    Abstract [en]

    All families face normative transitions. Some are perceived as stressful and calls for family resources to maintain or restore family well-being. In times of illness, families also need to develop strengths and capabilities to enhance family well-being. The way these are developed is related to family hardiness. Family hardiness is thus seen as a family resource, and the Family Hardiness Index (FHI) was developed to measure family stress resistance and adaptation resources. The index was not available in Swedish and no extensive international psychometric evaluation was found. Therefore, the aim was to translate and validate the Swedish version of the FHI. The study was approved by a Regional Ethical Review Board. Data from 174 Swedish participants, family members to persons with cognitive dysfunctions (n = 95) and nursing students (n = 79) were included. Family members were enrolled in outpatient clinics in primary care and rehabilitation, and nursing students at a nursing school. Psychometric properties were evaluated through calculations of missing data, distributions of item and scale scores, item correlations, Cronbach's alpha, confirmatory factor analyses and correlations with theoretically related constructs. Sample scores had acceptable data quality, internal consistency for the FHI total scale was satisfactory (alpha = 0.86), and construct validity was supported. Our findings cast some doubt on the intended interpretation since confirmatory factor analyses showed that a modified four-subscale version, excluding one subscale, showed best fit. The Control subscale lacked important psychometric properties in terms of homogeneity, internal consistency and construct validity. The sample size was probably sufficiently large for the factor analyses, but the subgroup analyses should be treated with caution. The conclusion is that the Swedish version of the FHI is a promising scale for assessing family hardiness, but more solid evidence for the factor structure in various Swedish and international samples is needed.

  • 86.
    Rahmqvist Linnarsson, Josefin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Erlingsson, Christen
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Challenges of caring for victims of violence and their family members in the emergency department2019In: International Emergency Nursing, ISSN 1755-599X, E-ISSN 1878-013X, Vol. 42, p. 2-6Article in journal (Refereed)
    Abstract [en]

    Introduction

    Interpersonal violence causes illness and suffering for victims and their family members. Emergency nurses are often given responsibility for forensic patients and their family members, but there is limited knowledge of their experiences regarding this task. This study aimed to describe nurses' experiences when caring for victims of violence and their family members in the emergency department.

    Methods

    Individual interviews were conducted with twelve nurses from seven emergency departments. Data were analyzed using qualitative content analysis.

    Results

    The analysis resulted in the theme: a challenge to create a caring encounter. Hindering factors comprising this challenge are described under four categories: struggling to intervene and talk about violence; contradictions when caring for family members; being helped by forensic guidelines but needing more knowledge; and dealing with one’s own strong emotions towards violence.

    Discussion

    Creating a caring encounter is perceived as a prerequisite to providing forensic care. Nurses often felt hindered to act and forensic issues were left unaddressed. Family members are offered little or no support in the aftermath of violence. The hindering factors must be overcome to ensure forensic care for victims of all types of violence.

  • 87.
    Rahmqvist Linnarsson, Josefin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Erlingsson, Christen
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Vicarious victimization in the aftermath of violence: a family member´s experience in the emergency departmentManuscript (preprint) (Other academic)
  • 88.
    Rahmqvist Linnarsson, Josefin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. Linköping Univ ; Ersta Sköndal Univ Coll.
    Nurses' views of forensic care in emergency departments and their attitudes, and involvement of family members2015In: Journal of Clinical Nursing, ISSN 0962-1067, E-ISSN 1365-2702, Vol. 24, no 1-2, p. 266-274Article in journal (Refereed)
    Abstract [en]

    Aims and objectives. To describe nurses' views of forensic care provided for victims of violence and their families in EDs, to identify factors associated with nurses' attitudes towards families in care and to investigate if these attitudes were associated with the involvement of patients' families in care. Background. Interpersonal violence has serious health consequences for individuals and family members. Emergency departments provide care for victims of violence, and nurses play a key role in forensic care. However, there is limited knowledge of their views and their involvement of family members. Design. A cross-sectional design was used with a sample of all registered nurses (n = 867) in 28 emergency departments in Sweden. Methods. A self-report questionnaire, including the instrument Families' Importance in Nursing Care Nurses' Attitudes, was used to collect data. Descriptive statistics, multiple linear regression and ordinal regression were used to analyse data. Results. Four hundred and fifty-seven nurses completed the questionnaire (53%). Most nurses provided forensic care, but few had specific education for this task. Policy documents and routines existed for specific patient groups. Most nurses involved family members in care although education and policy documents rarely included them. Being a woman, policy documents and own experience of a critically ill family member were associated with a positive attitude towards family. A positive attitude towards family members was associated with involving patients' families in care. Conclusion. Many emergency department nurses provided forensic care without having specific education, and policy documents only concerned women and children. Nurses' positive attitude to family members was not reflected in policies or education. Relevance to clinical practice. These results can inspire clinical forensic care interventions in emergency departments. Educational efforts for nurses and policies for all groups of victims of violence are needed. Emergency departments may need to rethink how family members are included in their organisation.

  • 89.
    Rahmqvist Linnarsson, Josefin
    et al.
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Erlingsson, Christen
    Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences.
    Preparedness to care for victims of violence and their families in emergency departments2013In: Emergency Medicine Journal, ISSN 1472-0205, E-ISSN 1472-0213, Vol. 30, no 3, p. 198-201Article in journal (Refereed)
    Abstract [en]

    Objective To describe the preparedness to provide care for victims of violence and their families in emergency departments (EDs) in Sweden.

    Methods A web-based questionnaire was sent to all hospital EDs in Sweden (N=66).

    Results A total of 46 out of 66 (70%) heads of EDs completed the questionnaire. The results show that most of the EDs are prepared to care for women and children who are victims of violence. However, there seems to be a lack of preparedness to care for other groups of patients, such as victimised men. Very few EDs have routines to identify victims of violence among patients. Results also indicate that nurses play a key role in the care for victims of violence; however, family members are rarely included in care.

    Conclusions A lack of general preparedness in EDs to care for all victims of violence, regardless of gender and age, can lead to many patients not receiving appropriate care and treatment. To correct this there is a need to implement guidelines and routines about the care for victims of violence. Further research can shed more light on which measures are needed to improve quality of care for these patients and their families.

  • 90.
    Rask, Mikael
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Malm, Dan
    School of Health Sciences Jönköping University.
    Kristofferzon,, Marja-Leena
    Institutionen för hälso- och vårdvetenskap, School of Health and Caring Sciences, Gävle.
    Roxberg, Åsa
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Svedberg, Petra
    University College of Halmstad.
    Arenhill, Eva
    Baigi, Amir
    Brunt, David
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Fridlund, Bengt
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences. School of Health Sciences Jönköping University.
    Ivarsson, Bodil
    Nilsson, Ulrica
    Annica, Sjostrom-Strand
    Wieslander, Inger
    University College of Halmstad.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Validity and Reliability of a Swedish Version of the Relationship Assessment Scale (RAS) – Pilot Study2010In: Canadian Journal of Cardiovascular Nursing, ISSN 0843-6096, Vol. 20, no 1, p. 16-21Article in journal (Refereed)
    Abstract [en]

    BACKGROUND: There is a need for a short and easily administered scale, in the Swedish language, for assessing partner relationships in the health care of persons with cardiac disease.

    PURPOSE: To establish the reliability and validity of the Swedish version of the Relationship Assessment Scale (RAS).

    DESIGN: The present pilot study has a methodological design.

    FINDINGS: Content validity has been tested for relevance, clarity and readability. The scale was tested for construct validity with explorative factor analysis. The reliability was tested by internal consistency and test-retest analysis. The result showed a two-factor solution, which does not correspond to the original proposed one-factor solution. The factor analyses revealed two quite distinct factors of RAS, labelled "Relationship built on expectations and satisfaction of needs" and "Relationship built on love and devotion".

    CONCLUSIONS: The scale has satisfactory psychometric properties in terms of content validity, construct validity, homogeneity and stability in a population of persons with cardiac disease. Wider evaluations of the RAS for other populations and settings are recommended.

  • 91.
    Saveman, Britt-Inger
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Here come the Swedes! A report on the dramatic and rapid evolution of family-focused nursing i Sweden2001In: Journal of Family Nursing, Vol. 7, p. 303-310Article in journal (Refereed)
  • 92.
    Saveman, Britt-Inger
    et al.
    Umeå University.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Engström, Åsa
    Luleå University of Technology.
    Årestedt, Kristofer
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences. Linköping University.
    Refinement and psychometric revalidation of the instrument: Families' Importance in Nursing Care - Nurses' Attitudes (FINC-NA)2011In: Journal of Family Nursing, ISSN 1074-8407, E-ISSN 1552-549X, Vol. 17, no 3, p. 312-329Article in journal (Refereed)
    Abstract [en]

    The instrument Families’ Importance in Nursing Care–Nurses’ Attitudes (FINC-NA) was developed to measure nurses’ attitudes toward the importance of families in nursing care. The low variations in item responses, which affect the discrimination ability and unstable internal consistency, have been considered as limitations. The aim of this study was to refine and revalidate FINC-NA regarding score distribution, homogeneity, dimensionality, differential item functioning for gender, stability, and internal consistency. There were 246 registered nurses studying at advanced levels who answered the revised FINC-NA. The FINC-NA had five response alternatives. The findings showed that although some subscales still deviated from a normal distribution, the variability of the scores and the homogeneity was improved. In addition, the dimensionality was reproduced and minor problems with differential item functioning for gender were detected. All FINC-NA scales showed good reliability. The results allow the use of the revised FINC-NA in studies where an assessment of nurses’ attitudes toward families’ importance in nursing care is desired.

  • 93.
    Saveman, Britt-Inger
    et al.
    University of Kalmar, School of Human Sciences.
    Mahlen, C D
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Nursing students' beliefs about families in nursing care2005In: Nurse education today, Vol. 25, no 6, p. 480-486Article in journal (Refereed)
  • 94.
    Strand, Marielouise
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Commentary on Strand ML, Benzein E & Saveman BI (2004) Violence in the care of adult persons with intellectual disabilities. Journal of Clinical Nursing 13, 506-514 – Response2005In: Journal of clinical nursing, Vol. 14 (7), p. 909-910Article in journal (Refereed)
  • 95.
    Strand, Marielouise
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Violence in the care of adult persons with intellectual disabilities2004In: Journal of Clinical Nursing, Vol. 13, p. 506-514Article in journal (Refereed)
  • 96.
    Syrén, Susanne
    et al.
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Being a family in the midst of living and dying2006In: Journal of palliative care, Vol. 22, no 1, p. 26-32Article in journal (Refereed)
  • 97.
    Söderström, Ing-Mari
    et al.
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Hagberg, Margaretha
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Family adaptation in relation to a family member's stay in ICU2009In: Intensive & Critical Care Nursing, ISSN 0964-3397, E-ISSN 1532-4036, Vol. 25, no 5, p. 250-257Article in journal (Refereed)
    Abstract [en]

    Objectives: To describe and interpret the family adaptation during the ICU hospitalisation andup to 18 months after discharge.Research methodology/design: A qualitative design was chosen.Main outcome measures: Individual and family interviews with eight families including 31 familymembers. A hermeneutical analysis was performed and paradigm cases were constructed.Results: The result is presented in three themes: striving for endurance, striving for consolationand striving to rebuild life under new conditions. The family adaptation started at the onset ofthe critical incident and continued during the ICU stay and after discharge. The family membersmetaphorically went through peaks and valleys during the whole process of adaptation.Conclusion: Adaptation is an issue for the whole family and is facilitated by being able to stayclose to the patient and receive supportive unambiguous information from the staff both duringthe ICU stay and after discharge.

  • 98.
    Söderström, Ing-Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Nurses´ experiences of interactions with family members in intensive care units2003In: Scandinavian Journal of Caring Sciences, Vol. 17(2), p. 185-192Article in journal (Other academic)
  • 99.
    Söderström, Ing-Marie
    et al.
    University of Kalmar, School of Human Sciences.
    Saveman, Britt-Inger
    University of Kalmar, School of Human Sciences.
    Benzein, Eva
    University of Kalmar, School of Human Sciences.
    Interactions between family members and staff in intensive care units - An observation and interview study2006In: International journal of nursing studies, Vol. 43, no 6, p. 707-716Article in journal (Refereed)
  • 100.
    Ternestedt, Britt-Marie
    et al.
    Enheten för forskning om palliativ vård, Ersta Sköndal Högskola.
    Andershed, Birgitta
    Enheten för forskning om palliativ vård, Ersta Sköndal Högskola.
    Benzein, Eva
    Linnaeus University, Faculty of Health, Social Work and Behavioural Sciences, School of Health and Caring Sciences.
    Norberg, Astrid
    Enheten för forskning om palliativ vård, Ersta Sköndal Högskola.
    Sahlberg Blom, Eva
    Örebro Universitet.
    Ett vårdvetenskapligt perspektiv på forskning i livets slutskede – erfarenheter från Sverige2009In: Omsorg: Nordisk tidsskrift for Palliativ Medisin, ISSN 0800-7489, no 4, p. 19-22Article, review/survey (Other academic)
    Abstract [sv]

    Denna artikel belyser kortfattat utvecklingen av vårdvetenskaplig forskning om vård i livets slutskede i Sverige från 1970-talet fram till idag. Den visar en ökning av forskningen när det gäller den döende personens, närståendes och personalens perspektiv. Vidare beskrivs exempel på forskning som bedrivs vid Enheten för forskning om vård i livets slutskede vid Ersta Sköndal högskola; en forskningsmiljö som kunnat formaliseras till innehåll och struktur med hjälp av en donation. Exempel ges på projekt med beskrivande och intervenerande designer. Områden som behöver studeras ytterligare är individers/familjens situation i samband med döende och död, döende personer med demenssjukdom och döende och död ur ett mångkulturellt perspektiv och ur ett genusperspektiv. Större mångvetenskapliga forskningsprojekt behövs. En stor utmaning är också att överbrygga gapet mellan forskning och klinisk verksamhet.

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