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Werkander Harstäde, C., Andersson, S., Lagerbielke, E., Sandgren, A. & Heikkilä, K. (2025). Mealtime situations in nursing homes from the residents’ perspective – an integrative review.. BMC Geriatrics, 25, 1-16, Article ID 103.
Open this publication in new window or tab >>Mealtime situations in nursing homes from the residents’ perspective – an integrative review.
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2025 (English)In: BMC Geriatrics, E-ISSN 1471-2318, Vol. 25, p. 1-16, article id 103Article in journal (Refereed) Published
Abstract [en]

Background: When moving to a nursing home, the new resident also meets a new kind of culture, including communal, shared meals. Gaining greater insight into the resident experience of mealtimes in nursing homes is essential to identify the meaning that mealtime situations have and highlight the potential barriers and facilitators to the implementation of mealtime situations that create wellbeing for residents. The aim of this integrative review was therefore to shed light on mealtime situations in nursing homes from the residents’ perspective. Methods: The literature search was performed using a combination of MeSH keywords and free text terms in ASSIA, CINAHL, PsycInfo, PubMed, and Web of Science. After scrutinizing the articles and quality checks, 13 articles were chosen. The analysis was performed following Whittemore and Knafl’s instructions for integrative reviews. Results: The experiences of the mealtime situations were partly connected to residents’ personhood and partly to the nursing home’s organization of the mealtimes. Three main categories emerged: mealtimes as a source of well-being in nursing home life, mealtimes (re)creating continuity in life and preserving identity, and mealtimes as a balancing act between autonomy and need of support. Residents in nursing homes want the possibility to choose both what to eat, with whom they will eat and where they eat. The mealtimes in nursing homes and how they are constructed have an important role in residents’ feelings of having control over their life situation and can also strengthen residents’ identity and autonomy. Conclusion: Staff needs to be aware of the meaning of mealtimes to promote person-centered care in regard to meals. Further research is needed to explore how different mealtime situations have an impact on nursing home residents’ lives as well as on the care the staff gives. 

Place, publisher, year, edition, pages
BioMed Central (BMC), 2025
National Category
Nursing Geriatrics
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-136875 (URN)10.1186/s12877-025-05753-8 (DOI)001424268100005 ()2-s2.0-85218972571 (Scopus ID)
Available from: 2025-02-17 Created: 2025-02-17 Last updated: 2025-07-03Bibliographically approved
Andersson, S., Sandgren, A., Werkander Harstäde, C., Heikkilä, K., Lagerbielke, E. & Persson, C. (2025). Putting Staffs’ Beliefs About Values of Mealtime Situations for Long-Term Care Residents’ Health and Well-Being Into Practice: A Qualitative Study. Health & Social Care in the Community (1), Article ID 7938096.
Open this publication in new window or tab >>Putting Staffs’ Beliefs About Values of Mealtime Situations for Long-Term Care Residents’ Health and Well-Being Into Practice: A Qualitative Study
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2025 (English)In: Health & Social Care in the Community, ISSN 0966-0410, E-ISSN 1365-2524, no 1, article id 7938096Article in journal (Refereed) Published
Abstract [en]

In the context of long-term care facilities, mealtime situations have been linked to residents’ health and well-being. The optimisation of mealtime situations is dependent on multiple aspects and is complex. To better understand this complexity, this qualitative study aimed to identify staffs’ beliefs about the values of mealtime situations for residents’ health and well-being and to explore the facilitators of, barriers to, and challenges and actions in accomplishing and upholding these values. The results demonstrated that staffs’ belief consisted of achieving social and relational values, vitality values, self-strengthening values and atmospheric values. During mealtimes, participating staff had to constantly balance these values in relation to mealtime situational preconditions and residents’ individual and communal needs. Experienced facilitators, challenges, barriers and actions could be traced to and explained by identified beliefs, implying that knowledge regarding beliefs about values could be helpful for understanding and managing the complexity inherent in the mealtime situation.

Place, publisher, year, edition, pages
John Wiley & Sons, 2025
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-137241 (URN)10.1155/hsc/7938096 (DOI)001445931200001 ()2-s2.0-105000855793 (Scopus ID)
Available from: 2025-03-17 Created: 2025-03-17 Last updated: 2025-06-26Bibliographically approved
Nilsson, M., Andersson, S., Magnusson, L. & Hanson, E. (2025). The saviour of the welfare state: local politicians' views on welfare technology for older people and their carers in Sweden. International Journal of Care and Caring
Open this publication in new window or tab >>The saviour of the welfare state: local politicians' views on welfare technology for older people and their carers in Sweden
2025 (English)In: International Journal of Care and Caring, ISSN 2397-8821, E-ISSN 2397-883XArticle in journal (Refereed) Epub ahead of print
Abstract [en]

This article examines local politicians' assumptions and perceptions regarding welfare technology for older people and their carers. Carers were discursively constructed as merely part of the older person's social sphere, in stark contrast to the realities of the caring situations facing many carers. Older people who remain in their homes, maintaining a healthy and active lifestyle, were discursively constructed as ideal citizens. We argue that such a prevailing discourse leads to the risk of older people with extensive care needs becoming sidelined. Further, it leaves little room to consider carers' needs and preferences for support.

Place, publisher, year, edition, pages
Bristol: Bristol University Press, 2025
Keywords
local politicians, older people, informal carers, welfare technology
National Category
Social Work
Research subject
Social Sciences, Social Work
Identifiers
urn:nbn:se:lnu:diva-142405 (URN)10.1332/23978821y2025d000000130 (DOI)001601169900001 ()
Available from: 2025-11-11 Created: 2025-11-11 Last updated: 2026-05-20
Dahlberg, M., Wannheden, C., Andersson, S. & Bylund, A. (2025). "Try to keep things going" - Use of various resources to balance between caregiving and other aspects of life: An interview study with informal caregivers of persons living with brain tumors in Sweden. European Journal of Oncology Nursing, 74, Article ID 102779.
Open this publication in new window or tab >>"Try to keep things going" - Use of various resources to balance between caregiving and other aspects of life: An interview study with informal caregivers of persons living with brain tumors in Sweden
2025 (English)In: European Journal of Oncology Nursing, ISSN 1462-3889, E-ISSN 1532-2122, Vol. 74, article id 102779Article in journal (Refereed) Published
Abstract [en]

Purpose: Persons living with brain tumors may experience severe impairment, requiring social support (i.e., informal care). Although informal caregiving can be rewarding, it can also lead to physical or psychological burdens. The aim of this study was to explore how informal caregivers of persons living with brain tumors use resources available to them, including social support, to balance caregiving with other aspects of life. Methods: Sixteen informal caregivers (14 partners, two adult children) of persons living with brain tumors, varied in gender (10 female, six male), age (26-79 years), and caregiving experience (1-20 years) were interviewed. Data were analyzed using conventional content analysis. Findings: We generated nine categories representing informal caregivers' strategies grouped by resources used. Intrapersonal resources were used for: Flexibly adjusting to changing life situations; Separating the care recipient from the illness; and Reflectively renegotiating self-expectations. Interpersonal resources were used for: Coping together with the care recipient; Sharing responsibilities within the family; Seeking guidance from persons in similar situations; and Grouping social relations by function. Healthcare and community resources were used for: Active collaborations with healthcare staff and Accessing professional and community resources for mental well-being. Conclusions: Informal caregivers used their intrapersonal, interpersonal, and healthcare and community resources in various ways for mainly emotional and instrumental support. More informational support from healthcare was desired, indicating that healthcare services, along with patient and caregiver organizations, may be able to enhance such support for informal caregivers. This could, in turn, allow more flexibility to manage caregiving alongside other life commitments.

Place, publisher, year, edition, pages
Elsevier, 2025
Keywords
Informal caregiving, Social support, Coping, Self-care, Cancer, Brain tumor
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-135749 (URN)10.1016/j.ejon.2025.102779 (DOI)001402384400001 ()39823777 (PubMedID)2-s2.0-85214953307 (Scopus ID)
Available from: 2025-02-06 Created: 2025-02-06 Last updated: 2025-07-03Bibliographically approved
Nilsson, M., Andersson, S., Magnusson, L. & Hanson, E. (2025). Welfare technology in health- and social care: perceptions and positions of board members in Swedish pensioners' organizations. Nordic Social Work Research
Open this publication in new window or tab >>Welfare technology in health- and social care: perceptions and positions of board members in Swedish pensioners' organizations
2025 (English)In: Nordic Social Work Research, ISSN 2156-857X, E-ISSN 2156-8588Article in journal (Refereed) Epub ahead of print
Abstract [en]

Swedish national policy emphasizes welfare technology as an integral part of future health and social care provision for older people. This study examines how representatives of the two largest pensioners' organizations in Sweden perceived and adopted stances regarding the implementation and use of welfare technology in health and social care. It also seeks to understand the democratic implications of welfare technology, expressed in terms of participation and agency and impacts on the health of older people and informal carers. Four focus groups were organized to determine how representatives of the two largest pensioners' organizations in Sweden perceive the implementation of welfare technology in the health and social care sectors for their members and articulate related positions. The participants perceived welfare technology with concern, anticipating a harsher society for those lacking support from informal carers, and regarded the opportunity for participation and agency as limited. They expressed commitment to and solidarity with excluded groups, emphasizing the importance of leaving no one behind when care services are delivered via welfare technology. The participants adapted to the prescribed norm within the discourse, correcting their way of speaking and expressing critique rather subtly. Our findings have implications for policy, highlighting the importance of older people's participation and the central role of informal carers in the social welfare system. Carers' contributions were deemed critical in providing not only emotional support and companionship but also in facilitating daily living activities and healthcare management, essential for maintaining the dignity and quality of life of the older person.

Place, publisher, year, edition, pages
Taylor & Francis Group, 2025
Keywords
Pensioner organizations, older people, informal carers, welfare technology, social welfare
National Category
Health Sciences
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-137181 (URN)10.1080/2156857X.2025.2467681 (DOI)001425373300001 ()2-s2.0-85218141551 (Scopus ID)
Available from: 2025-03-19 Created: 2025-03-19 Last updated: 2026-05-20
Nilsson, M., Andersson, S., Magnusson, L. & Hanson, E. (2024). Keeping the older population and their informal carers healthy and independent using digital technology: a discourse analysis of local policy. Ageing & Society, 44(4), 812-842
Open this publication in new window or tab >>Keeping the older population and their informal carers healthy and independent using digital technology: a discourse analysis of local policy
2024 (English)In: Ageing & Society, ISSN 0144-686X, E-ISSN 1469-1779, Vol. 44, no 4, p. 812-842Article in journal (Refereed) Published
Abstract [en]

The general discourse in health and social care policy purports digital technology as necessary to meet growing demands for long-term care and health care as a result of an ageing population. This needs critical investigation since public policy influences people's health and wellbeing. This study aims to interrogate critically what we call the ‘digital technology solution’ discourse in local Swedish health and social care policies. The main concern of our analysis is the discursive constructions of older people and their informal carers and how the concept of health is constructed. A discourse analysis was conducted of 61 local policy documents using the ‘What's the Problem Represented to Be’ method. Our analysis revealed that so-called ‘e-health strategies’ were rarely concerned with health. Health was often referred to as an activity and seen as a means to achieve independence among older people. The norm advocated independence, with the responsibility placed upon the older person, supported by digital technology. Informal carers were constructed as a resource within an older person's environment and largely taken for granted. We argue that the digital solution discourse ignores older people's agency and capacities as contributors to society, not least with regards to being providers of informal care.

Place, publisher, year, edition, pages
Cambridge University Press, 2024
Keywords
ageing, informal care, digital technology, policy, discourse, health and social care, welfare state
National Category
Nursing
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-113164 (URN)10.1017/s0144686x22000514 (DOI)000800041200001 ()2-s2.0-85192002298 (Scopus ID)
Funder
Linnaeus University
Available from: 2022-05-31 Created: 2022-05-31 Last updated: 2025-08-07Bibliographically approved
Malm, C., Jönson, H., Andersson, S. & Hanson, E. (2023). Exploring the knowledge contributions of carers involved in a group process aimed at co-creating a targeted support intervention. International Journal of Care and Caring, 7(3), 479-497
Open this publication in new window or tab >>Exploring the knowledge contributions of carers involved in a group process aimed at co-creating a targeted support intervention
2023 (English)In: International Journal of Care and Caring, ISSN 2397-8821, E-ISSN 2397-883X, Vol. 7, no 3, p. 479-497Article in journal (Refereed) Published
Abstract [en]

Patient and public involvement is a way of ensuring that research and practices are more responsive to their target groups. This study, inspired by discourse psychology, explores the knowledge contributions of informal carers who participated in group meetings to co-create a support intervention. Findings highlight that carers’ knowledge is complex, including more than practical caring experiences. Acknowledging carers’ knowledge contributions and involving a heterogeneous sample of carers are key considerations for patient and public involvement in research; otherwise, there is a danger of establishing risks of injustice. Accepting the multifaceted knowledge of carers could increase the validity of research and the relevance of interventions developed.

Place, publisher, year, edition, pages
Bristol University Press, 2023
Keywords
carers, carer knowledge, discourse psychology, patient and public involvement
National Category
Nursing
Research subject
Health and Caring Sciences, Caring Science
Identifiers
urn:nbn:se:lnu:diva-119620 (URN)10.1332/239788221x16740618578816 (DOI)000972016500001 ()2-s2.0-85167419122 (Scopus ID)
Available from: 2023-03-01 Created: 2023-03-01 Last updated: 2025-08-12Bibliographically approved
Malm, C., Jonson, H., Andersson, S. & Hanson, E. (2022). A balance between putting on the researcher's hat and being a fellow human being: a researcher perspective on informal carer involvement in health and social care research. Health Research Policy and Systems, 20(1), Article ID 135.
Open this publication in new window or tab >>A balance between putting on the researcher's hat and being a fellow human being: a researcher perspective on informal carer involvement in health and social care research
2022 (English)In: Health Research Policy and Systems, E-ISSN 1478-4505, Vol. 20, no 1, article id 135Article in journal (Refereed) Published
Abstract [en]

Background: Public involvement in health and social care research is increasingly prioritized by policy-makers and research funders. Often, the impact of the involvement is described in terms of how it has contributed to the research outcomes and how it has affected the involved members of the public. There is a dearth of studies reporting from the perspective of researchers themselves of having involved members of the public in their research. Nevertheless, there is a general expectation for researchers to accept and embrace public involvement in research. This study aims to explore researchers' views of involving informal carers in health and social care research. Methods: Eleven individual in-depth interviews with researchers in the fields of social work, caring science, health science and medical science constituted the dataset of this qualitative study, inspired by discourse psychology. Results: The qualitative data analysis resulted in two interpretative repertoires describing researchers' views of involving informal carers in research, "Philosophy of Science " and "Personal relationships and growth ". Both repertoires need to be recognized; however, as of today, the Philosophy of Science repertoire is more acknowledged, while the second repertoire describing empathy, relationships and emotions may be viewed as the researcher being "unprofessional ". Further, the findings highlighted the dual perspective of being a researcher and a carer as creating opportunities for growth on the part of the researcher, on both a professional and a personal level. Conclusions: Researchers and their research work would benefit from acknowledging, discussing and reporting both interpretative repertoires in their publications, as well as recognizing the benefit of dialectal positions, for example, having a dual perspective as both a researcher and an informal carer.

Place, publisher, year, edition, pages
BioMed Central (BMC), 2022
Keywords
Informal carer involvement, Researchers, Health and social care research, Public and patient involvement (PPI), Interviews, Discourse psychology
National Category
Nursing
Research subject
Health and Caring Sciences, Nursing
Identifiers
urn:nbn:se:lnu:diva-118754 (URN)10.1186/s12961-022-00946-8 (DOI)000899891300001 ()36527014 (PubMedID)2-s2.0-85144096685 (Scopus ID)
Available from: 2023-01-26 Created: 2023-01-26 Last updated: 2025-08-20Bibliographically approved
Heikkilä, K., Andersson, S., Lagerbielke, E., Persson, C., Sandgren, A. & Werkander Harstäde, C. (2022). Mealtime interventions and their outcomes in care homes for older people considering the five aspects meal model: An integrative review. Geriatric Nursing, 47, 171-182
Open this publication in new window or tab >>Mealtime interventions and their outcomes in care homes for older people considering the five aspects meal model: An integrative review
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2022 (English)In: Geriatric Nursing, ISSN 0197-4572, E-ISSN 1528-3984, Vol. 47, p. 171-182Article in journal (Refereed) Published
Abstract [en]

Mealtimes are important events in care homes for physical and social well-being. However, residents usually have little input concerning meal timings, what food is offered, and how it is served. This integrative review explored mealtime interventions and their outcomes in care homes related to the Five Aspects Meal Model (FAMM). Research articles published 2010–2021 were searched for in ASSIA, CINAHL, PsycINFO, PubMed, and SveMed+ and resulted in 13 articles focusing on interventions. The analysis was based on the aspects of FAMM: room, meeting, product, management control system, and atmosphere. The result shows that even though interventions specifically focused on one aspect, they often evaluated outcomes related to several aspects. Different aspects can work together to foster effective mealtimes. FAMM eased to visualise the usefulness of mealtime interventions from a broad perspective and can be a useful tool for assessing and improving mealtime situations in clinical practice.

Place, publisher, year, edition, pages
Elsevier, 2022
Keywords
Care homes, Five aspects meal model, Integrative review, Mealtime interventions, Older adults
National Category
Nursing
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-115627 (URN)10.1016/j.gerinurse.2022.07.011 (DOI)000837090400001 ()35926339 (PubMedID)2-s2.0-85135512083 (Scopus ID)
Available from: 2022-08-02 Created: 2022-08-02 Last updated: 2025-05-15Bibliographically approved
Nilsson, M., Andersson, S., Magnusson, L. & Hanson, E. (2021). Ambient Assisted Living technology-mediated interventions for older people and their informal carers in the context of healthy ageing: A scoping review. Health Science Reports, 4(1), Article ID e225.
Open this publication in new window or tab >>Ambient Assisted Living technology-mediated interventions for older people and their informal carers in the context of healthy ageing: A scoping review
2021 (English)In: Health Science Reports, E-ISSN 2398-8835, Vol. 4, no 1, article id e225Article, review/survey (Refereed) Published
Abstract [en]

Background and aims There is a growing demand for health and social care services to provide technology‐mediated interventions that promote the health and well‐being of older people with health or care needs and of their informal carers. The objectives of this study were to scope and review the nature and extent of prior intervention studies involving ambient assisted living technology‐mediated interventions for older people and their informal carers, and how and in what ways (if any) the goals and aims of these interventions reflected the domains of the World Health Organization framework for healthy ageing.

Methods We conducted a scoping review. Data were collected between June and October 2018 with an updated search in October 2020. A total of 85 articles were eligible for inclusion.

Results Nine categories described the aims and content of the included studies. The healthy ageing domain “Ability to meet basic needs” was mirrored in four categories, whereas “Ability to contribute to society” was not addressed at all.

Conclusion The ways in which domains of healthy ageing are mirrored suggest that there is an emphasis on individual factors and individual responsibility, and a lack of attention given to broader, environmental factors affecting healthy ageing. Only a few of the studies used a dyadic approach when assessing health outcomes concerning older people and their informal carers.

Place, publisher, year, edition, pages
John Wiley & Sons, 2021
Keywords
aged, aged 80 and over, ambient assisted living technology, caregivers, health services for the aged, healthy aging
National Category
Nursing Health Care Service and Management, Health Policy and Services and Health Economy Other Health Sciences
Research subject
Health and Caring Sciences
Identifiers
urn:nbn:se:lnu:diva-99740 (URN)10.1002/hsr2.225 (DOI)000672475300009 ()33392394 (PubMedID)2-s2.0-85102111939 (Scopus ID)2021 (Local ID)2021 (Archive number)2021 (OAI)
Available from: 2020-12-29 Created: 2020-12-29 Last updated: 2025-05-15Bibliographically approved
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