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Health and Social Service Access Among Family Caregivers of People with Parkinson's Disease
Lund University, Sweden.
Lund University, Sweden.
Ersta Sköndal Bräcke University College, Sweden;Capio Palliative Care Unit, Sweden;Linköping University, Sweden.
Linnéuniversitetet, Fakulteten för Hälso- och livsvetenskap (FHL), Institutionen för hälso- och vårdvetenskap (HV). Ersta Sköndal Bräcke University College, Sweden.ORCID-id: 0000-0002-0961-5250
Vise andre og tillknytning
2016 (engelsk)Inngår i: Journal of Parkinson's Disease, ISSN 1877-7171, E-ISSN 1877-718X, Vol. 6, nr 3, s. 581-587Artikkel i tidsskrift (Fagfellevurdert) Published
Abstract [en]

Background: Being a family caregiver for a person with Parkinson's disease (PD) can negatively impact health and wellbeing, but it appears less clear to what extent caregivers' health/social service needs are met. Objective: We explored the extent to which PD family caregivers experience sufficient access to health/social services, as compared to age-matched controls; and the associations between this and demographic and health-related variables. Methods: A cross-sectional survey of 66 PD family caregivers and 79 age-matched control subjects including the SF-36 health survey, the Nottingham Health Profile Sleep section (NHP-Sleep), and questions regarding contacts with various health/social related services and whether these were perceived as sufficient. Results: People reporting insufficient access (n = 29) were more often PD family caregivers than controls (83% vs. 37%), did more often have a disease of their own (79% vs. 46%), and reported poorer health according to the SF-36 and the NHP-Sleep. Being a PD family caregiver (OR, 8.90), reporting more pain (OR, 1.02) and having an own disease (OR, 3.46) were independently associated with insufficient health/social service access. Conclusions: Our results imply that those in greatest need for health/social services (i.e., those with poorer health, an own disease, and who are PD family caregivers) are those whose health/social service needs are least met. Larger studies are needed for firmer conclusions and regarding how unmet health/social service needs impacts caregiver health and wellbeing. Health/social service providers should not only focus on patients but also consider their family members' needs.

sted, utgiver, år, opplag, sider
2016. Vol. 6, nr 3, s. 581-587
Emneord [en]
Caregivers, health, health services needs and demand, Parkinson disease
HSV kategori
Forskningsprogram
Hälsovetenskap
Identifikatorer
URN: urn:nbn:se:lnu:diva-57464DOI: 10.3233/JPD-160811ISI: 000383803000012PubMedID: 27176624Scopus ID: 2-s2.0-84983751678OAI: oai:DiVA.org:lnu-57464DiVA, id: diva2:1039872
Tilgjengelig fra: 2016-10-25 Laget: 2016-10-19 Sist oppdatert: 2019-11-13bibliografisk kontrollert

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