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Case-Based Clinical Ethics Support: A Description and Normative Discussion of Methodological Issues from the Swedish Perspective
Uppsala University, Sweden;Karolinska institutet, Sweden.ORCID iD: 0000-0002-4210-855X
Örebro University, Sweden.ORCID iD: 0000-0003-0679-5695
Karolinska institutet, Sweden;Region Stockholm, Sweden.ORCID iD: 0000-0001-5807-3438
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (iCARE;Centre of Interprofessional Collaboration within Emergency care (CICE))ORCID iD: 0000-0001-7865-3480
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2025 (English)In: HEC Forum, ISSN 0956-2737, E-ISSN 1572-8498, p. 1-16Article in journal (Refereed) Epub ahead of print
Sustainable development
SDG 3: Ensure healthy lives and promote well-being for all at all ages
Abstract [en]

Clinical Ethics Support (CES) includes various forms of systematic support to deal with ethical challenges in healthcare and case-based CES (C-CES) is used for CES in particular cases. The aim was to describe and normatively discuss organizational and methodological aspects of C-CES used in Swedish healthcare. A mixed-methods approach was used. A descriptive survey was answered regardingeight organizations on hospital, regional and national level, with large variations in the number of conducted C-CES activities. Data were compiled and frequencies calculated. Based on the survey results, normative questions were formulated. Six participants, with expertise of C-CES, participated in a normative group discussion. Field notes and transcribed data were analysed qualitatively. The top ranked goalof C-CES was “Supporting decision making”. Mainly prospective cases were used and C-CES was carried out as un-planned and pre-planned sessions. The normative results showed the importance of avoiding making C-CES unattractive to clinicians, for instance by keeping the time frame. The professional backgrounds of C-CES leaders varied greatly and arguments were provided for the facilitating role andthat C-CES leaders ought not facilitate where they have been clinically engaged. Identified challenges included variations in uptake of C-CES activities that don not mirror the ethical challenges of the context. The unfair uptake of C-CES can be compared with the uptake in Norway where there are legal requirements for CES. In this study patients and families were not reported to request or attend C-CES. Thus, further research and interventions are needed to ensure their representation in Swedish C-CES.

Place, publisher, year, edition, pages
Springer Nature, 2025. p. 1-16
Keywords [en]
Clinical ethics support, Ethics case reflection, Mixed-method, Moral case deliberation, Normative discussion, Survey
National Category
Medical Ethics
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-141992DOI: 10.1007/s10730-025-09566-5ISI: 001590972300001Scopus ID: 2-s2.0-105018637347OAI: oai:DiVA.org:lnu-141992DiVA, id: diva2:2005908
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Uppsala UniversityAvailable from: 2025-10-12 Created: 2025-10-12 Last updated: 2026-01-19

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Bremer, Anders

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Pergert, PernillaSvantesson, MiaBartholdson, CeciliaBremer, AndersBrännström, MargaretaFischer Grönlund, CatarinaJuth, NiklasBjörk, Joar
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Department of Health and Caring Sciences
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HEC Forum
Medical Ethics

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