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How do journals publishing palliative and end‐of‐life care research report ethical approval and informed consent?
Nord University, Norway;Uppsala University, Sweden.ORCID iD: 0000-0001-6011-6740
University of Oslo, Norway.ORCID iD: 0000-0002-8228-6078
Uppsala University, Sweden.ORCID iD: 0000-0002-5244-6878
Linnaeus University, Faculty of Health and Life Sciences, Department of Health and Caring Sciences. (CISA)ORCID iD: 0000-0002-8912-8101
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2023 (English)In: Learned Publishing, ISSN 0953-1513, E-ISSN 1741-4857, Vol. 36, no 4, p. 554-563Article in journal (Refereed) Published
Abstract [en]

This study explores how papers published in internationaljournals in palliative and end-of-life care report ethical approval andinformed consent. A literature search following PRISMA guidelines wasconducted in PubMed, the Web of Science Core Collection, Scopus, theProQuest Social Science Premium Collection, PsycINFO, and the Cumulative Index to Nursing and Allied Health Literature (CINAHL). A total of169 empirical studies from 101 journals were deductively coded andanalysed. The results showed that 5% of publications provided no information on ethical approval, 12% reported minimal information, 56%reported rudimentary information, and 27% reported comprehensivedetails. We also found that 13% did not report any information oninformed consent, 17% reported minimal information, 50% reported rudimentary information, and 19% reported comprehensive details. The prevalence of missing and incomplete ethical statements and inadequatereporting of informed consent processes in recent publications raises concerns and highlights the need for improvement. We suggest that journalsadvocate high reporting standards and potentially reject papers that donot meet ethical requirements, as this is the quickest path toimprovement.

Place, publisher, year, edition, pages
John Wiley & Sons, 2023. Vol. 36, no 4, p. 554-563
Keywords [en]
bioethics, ethical approval, informed consent, palliative care, palliative medicine, research ethics, systematic review
National Category
Medical Ethics
Research subject
Health and Caring Sciences, Caring Science
Identifiers
URN: urn:nbn:se:lnu:diva-125793DOI: 10.1002/leap.1580ISI: 001060429400001Scopus ID: 2-s2.0-85170373945OAI: oai:DiVA.org:lnu-125793DiVA, id: diva2:1815010
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Uppsala UniversityAvailable from: 2023-11-27 Created: 2023-11-27 Last updated: 2025-08-13Bibliographically approved

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Holmberg, Bodil

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Godskesen, ToveVie, Knut JørgenBülow, WilliamHolmberg, BodilHelgesson, GertEriksson, Stefan
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